I am the younger sister who is a p/t care giver. I am overnight 4 days a week. I help them around the house, take them to doctor's appointments, go with them in the examination room to ask the doctors questions and make certain I understand the issues thoroughly (parents first language is not English and don't understand what's told them), take them grocery shopping, to the bank, etc. I've repeatedly asked my other brother, my only sibling, to assist. He lives 10 miles away while my home is 40 miles away. He says he will, but never shows. He's been passive-aggressive to me for years and years.
When I called him to help when my dad fainted and split his ear in half. Blood was gushing all over the kitchen. I thought dad had died. I was beside myself and called him to come by. He didn't. Dad had a heart issue and had a hairline fracture in his neck due to the spill. My brother did come to the hospital when I asked my mom to call him to come by.
I did "persuade" him to take my mom to the doctor's once. I asked my brother to sit in on the exam (no disrobing for mom) to understand her health issues. My parents told me my brother didn't want to go in and didn't.
I have asked my parents why he doesn't seem to help. They tell me he worked 12+ hours a day (starts work at 7am and goes until after 9pm every evening & weekend). He's a high school teacher at a private high school. I doubt his workload is this heavy. I could be wrong, but believe he is out with friends instead.
He's 60 years old, divorced and has a 30 year old daughter who is on her own. He does come once a week for two hours for Sunday dinner my mom cooks. He takes gifts of cash from my parents.
Has anyone had any experience with a sibling who refuses to help? I've asked nicely, I'm asked angrily, I've set boundaries. It's like talking to a rock.
I really wish you the best, but you are between a rock, and another rock...him.l
taz0921 (Stan Z.)
During the 5 years I lived with mom (was forced to retire from 35 yr. career, the meltdown of a 30 yr+ relationship, mom deteriorated very quickly and dramatically. numerous 911 calls, following ambulances (usually in the wee hours of the morning) , 6 admissions, countless dr. appointments [never a letup]. Younger sis (by 7-8 yrs.) has always detested me (only Freud could begin to try to figure that one out), so even though she'd retired and did not need to work financially, she kept getting new full-time jobs while I was getting CRUSHED psychologically and physically, and refused to ever come over to visit my mom because "I" was there.
The older sister has always been icily selfish and self-absorbed, and not ever much interested in family.
At some point, they each sent e-mails telling me flat-out to stop contacting them with my 'hysterical' reports (each time following ambulance rides, surgery for broken bones, strokes, constant UTIs, full-time doc appointments). Just MEAN.
SO, MMadison, I finally gave the sisters 30 days notice that I was leaving. This was emotionally devastating for me, and in NO way gave me any satisfaction. But I knew (intellectually) it was the stronger thing to do given the facts. Expectedly, the one in town is experiencing what I went through, and is now the #1 caretaker. It's been a year now, and I'm gradually, slowly healing. I've had a gift of a GREAT therapist who I've worked with for many years, and always knew of the situation and supported me big time throughout that period.
I am sorry that I couldn't provid a more hopeful experience. You'll continue to learn how absolutely classic the sibling scenario is, so knowing you are NOT alone may help you. Thinking about it, though, I am serene that I have absolutely 'clean' karma because I never said an ugly word to either of them [they are how they are, nor would they respond to a scolding from me]. I did my best with my mom [and did a damned good job], kept my peace, and am now working on healing, which will never be complete for me. My therapist tells me that I need to work with PTSD from the experience, now that I'm 'out' of the situation.
In the end, I hope that you will also know that you did your best, and never slacked off your commitment. The support from this forum kept my head above water the entire time! My best wishes to you. Namaste.
Don't give your brother one more ounce of your energy. He doesn't deserve it and you can't afford it.
2ndly, I have no good advice to give you, but a lot of the people who have written to you about what they would do have many great things to consider advice wise. Stan Z. ( Tazzman )
Interesting info in the article
https://www.nextavenue.org/forgotten-middle-afford-senior-housing/
I'm a middle daughter (3 females). Asking sometimes politely and sometimes angrily for advice, support, opinions, neither ever bothered responding in any manner. 4+ years of daily appointments and 24. hr bedside butler/maid service, and six 911 calls at ungodly hours, resulting in 24 hours of no sleep -- and continuous psycho damage, not sleeping, indescribable depression. I'm blessed with being able to afford for awhile a gifted private therapist (I've no insurance). I left 8 months ago [NOT easy, logistically or financially], after the basic '30-day notice' to the sisters The two were forced to become involved, actually give their time and attention. Neither have ever contacted me. They've no clue where I moved to (2,000 mi. away), and obviously don't care. It is incomprehensible to me.
This is where my brave friends and therapist (alll 4 of 'em) became my teachers and supporters along the way. Over 2 years time, each communicated in their own perspectives that leaving, WITHOUT ANGER, was the only thing for me to do. I worked on the 'without anger' AND the guilt of abandoning my mom, for 18 months. It was pretty bad for me. But when I did it, it was with some bit of equanimity.
MMasonSt., I hope it helps you a little to know that your circumstance is not at ALL uncommon. Life's messy, as I've been told and have learned; acceptance is the answer. Bathe in all the good you have done and are doing. Your siblings don't mean to be (they know not what they do) toxic. But, MMasonSt., they are. Now you've gotta get down and dirty with your spiritual advisors, in whatever form it/they take. Blessings upon you . . . i will hold you in my heart as a 'fellow'.
1. Actions speak louder than words. The action of not turning up says it clear.
2. Nothing you say or do will change other siblings/people.
3. Siblings get to choose how they wish to help (or not help)
Even if your brother was retired & lived one street away he still might not help. He may see it as your parent's resonsibility to live their life, not his.
I get that it can feel so unfair when you are knee deep in all this! I certainly feel for you but can see both views.
Just work out how much *you* can do & want to do & start getting non-family in for the rest. Have eyes open to when it is too big for you & do what's required. Good luck :)
The cash gifts are going to penalize your parents as far as getting a state medicaid bed if/when their funds to private pay finally run out. You do need to have that conversation with the brother about no more asking for cash/gifts or accepting them because of this penalty period he is helping to create. Just tell him with all the hours he works, there should be no reason to use their money as well.
If funds available, hire someone to help in the current situation. Check in to local medical transports for the days you cannot get them to the dr appts which would also be private pay. Medicaid allows transports in certain states, but the patient will spend a day getting to/from an appt because others are transported at the same time. At any rate, it's time to hire some help if they can afford.
Don't spend any energy on being mad at your brother because it will only upset you, not him. He's not a caregiver and you are not going to change him.
I’m sending you good vibes and strength. God knows we all need it .
This is a huge problem for tons of caregivers and their siblings. You are not alone by any means.
It sounds like his overall behavior is and most likely always has been unfavorable to caring for and about others. Also sounds like a 60 yr old mooch who needs to grow up. Teachers dont work those kinds of hours all the time unless hes a coach, working two jobs etc. What the excuse he uses in the summer?
Anyway, attention needs focused on you! Changing him will be like getting a cat to like baths.
Check to see if there are any home health care providers in your area. Ask for meeting to see what they can do to help you when needed.
See if brother can at least help financially if it's not possible for parents to pay.
Thousands of families are falling apart due to this problem.
Get a few steps ahead by planning before it's too late.
Get power of attorney, longterm care plans made etc.
Take care of you with support groups or counseling if possible.
Caregiving takes its toll.
I was a strong minded confident person until my Dad became I'll. Brother helps with nothing. Sees Dad for less than 8 hours every 2 years. Because of my brother, I now have PTSD and depression to deal with in addition to helping Dad.
Take care of yourself first my dear.
Hugs for you and your parents.
I can assure you that you aren't alone with the sibling issue or having to figure out how to care for your parents w/out sibling help. From your additional posts, it sounds like you understand that now. Your brother is self-centered, lazy or just doesn't get it - whatever shoe fits. The issue at hand is neither you nor any of us are going to change him. It sucks that siblings often don't help, but on some level be thankful he doesn't butt in - some do, criticizing everything or taking legal action to get access to the parents assets.
Be aware that there ARE a few members on this forum who will mandate it is your responsibility to provide ALL the care needed and will try to guilt you if you can't/don't. IGNORE them. At least one will DEMAND that you stop catering to them and place them. IGNORE. The majority provide suggestions, options or just commiseration. It isn't always possible to do 100% care, and having two parents and no family to help, it could take you down first! Know your limitations, find whatever help might be available to give you a break now and then. Many of us have been/are in your shoes. We learned the hard way and hope to share our learning experiences with those who are new to all this fun.
I have 2 brothers. Both did provide some help, but it wasn't enough. Most fell on me to handle (I did/still do all the financial work, manage healthcare issues, provide OTC supplies that the facility doesn't cover.) Arranging for the cleanout, repair and sale of her condo sucked up over a year and a half of my time and energy, never mind $ for gas (it was 1.5 hours travel each way.) When I told OB it was getting to be too much to handle, he just bellowed at my to 'give it up'! No alternate plan or suggestion. USELESS! OB had to come from 2 days away, which he did several times, however I found on his last trip (May 2018) that his abusive nature towards me from childhood never went away. He was to be here 2 weeks to help and didn't make it through 1 week before physically abusing me! Yelling is bad enough, but enough to bruise my leg? Done with him and I do mean DONE. He isn't welcome here. YB was hard to get answers/commitments from, but now with mom refusing to walk, I need him to take over the medical/dental trips. I can keep track and arrange them, but I can't support her weight to transport her.
While it's good that you now know you won't get his help, getting the anger out and letting it go will help you. No real need to forgive, just get the anger out and let it go. It isn't easy, and can flare up again. I wrote each brother a long email expressing everything, but never sent them. It allowed me to express all the crap, kind of a catharsis and put it away. Sending it wouldn't have changed anything other than angering them. I just wanted to move on, so I did.
What was being advised is to stop wasting energy on trying to change the situation with him. It isn't likely to happen. You can't change him. You have acknowledged that, so now focus that energy on doing what you can for your parents and yourself. You mention wanting to socialize - YES! Of course that means maybe needing someone to be there while you are out (unless they can be alone for periods of time.) Since their care needs most likely will escalate, you need to have plans in place either to provide the potential 24/7 care yourself, hire help or find an affordable facility that can meet their needs.
Will continue in a post to this post....
If they have enough assets, you could try hiring aides to come help (they usually are not nurses, so generally can't give meds, can't drive them anywhere, etc.) The best you can get is a person to watch over them, maybe provide meals or minimal cleaning, etc. If they have trouble remembering meds, there are locked/timed dispensers you can get for them. Aides CAN remind them to take the meds if the timer goes off, just can't load/handle/dispense. You'll have to contact agencies to see what services each provides and the cost. Also understand that not all aides are worth the money paid! That is another common complaint on this site. You may have to try many before you find the right fit. If their income meets the requirements, there could be Medicaid money to help pay for some of the in-home care. It is something you will have to explore. A good Elder Care attorney can help with the documents (POAs, wills, trusts, etc.) and some advice on getting help via Medicaid, VA, etc. More work for you now, but it could help alleviate some care/frustration/burnout later.
Wow! I think that's very unusual! Many parents just make excuses (or even give money to) the ones that don't do anything.
I am in the process of letting go of this anger. I am not happy with it but it is his choice to bow out. Life is too short to worry about him.