I am the younger sister who is a p/t care giver. I am overnight 4 days a week. I help them around the house, take them to doctor's appointments, go with them in the examination room to ask the doctors questions and make certain I understand the issues thoroughly (parents first language is not English and don't understand what's told them), take them grocery shopping, to the bank, etc. I've repeatedly asked my other brother, my only sibling, to assist. He lives 10 miles away while my home is 40 miles away. He says he will, but never shows. He's been passive-aggressive to me for years and years.
When I called him to help when my dad fainted and split his ear in half. Blood was gushing all over the kitchen. I thought dad had died. I was beside myself and called him to come by. He didn't. Dad had a heart issue and had a hairline fracture in his neck due to the spill. My brother did come to the hospital when I asked my mom to call him to come by.
I did "persuade" him to take my mom to the doctor's once. I asked my brother to sit in on the exam (no disrobing for mom) to understand her health issues. My parents told me my brother didn't want to go in and didn't.
I have asked my parents why he doesn't seem to help. They tell me he worked 12+ hours a day (starts work at 7am and goes until after 9pm every evening & weekend). He's a high school teacher at a private high school. I doubt his workload is this heavy. I could be wrong, but believe he is out with friends instead.
He's 60 years old, divorced and has a 30 year old daughter who is on her own. He does come once a week for two hours for Sunday dinner my mom cooks. He takes gifts of cash from my parents.
Has anyone had any experience with a sibling who refuses to help? I've asked nicely, I'm asked angrily, I've set boundaries. It's like talking to a rock.
You need to get medical and financial POA so that you can manage their care. It is too much for one person, so assisted living might be the answer. That will take a lot off of your plate. Most are very nice and they offer a lot, but they are expensive. Sounds like they need round the clock care It takes a while to get everything set up and to a manageable point, but you can do it. Start doing your homework...the sooner you do this the sooner your parents will get the care and companionship they need at this stage in their lives and the sooner you get your life back.
Forget your brother. You can’t make him do what he doesn’t want to do (and vice versa). His relationship with your parents will only ever be a source of pain and resentment for you and that’s not healthy.
Step 2: Read step 1 again.
Step 3: Realize you don't have to be the ONLY one. Get local agencies involved for suggestions and stop being as available IF you don't want to be.
Step 4: Get some legal input and become the POA so that the gifts diminish to brother or you are aware. Have the lawyer explain caregiver agreement. Parents will have to agree; if they don't, you can pull back also. Seems many of the greatest generation have an expectation of our being there to help..and we want to...but we have our own issues, work as well. We are exhausted too!
Any chance granddaughter could help? There is more invested in teaching than one realizes, not to defend your brother...but to be fair, he has his own limitations/boundaries and you can have yours as well.
Seems like you're a little burnt out. Get help from others. Stop badgering your brother. He will only do as he pleases, as we all do.
You might want to look into adult day care services or other services that will allow you a respite from caring for them. You say your mom still cooks so it appears they are in their own home. If there are finances for this, try to get a house cleaning service to come in. Or request they take medical transport to their Dr. appointments and you meet them there. It sounds as if they are still somewhat independent so perhaps you can cut back on your own visits and make phone calls instead of visits. You have to make it easier on yourself since your brother will not.
Make sure you have POA for finances & healthcare in place & get visiting nurse or some help so you can take a much deserved break.
I no longer have nor wish to have any future contact with my sibling. He has forever ruined our relationship.
Big hug to you,
TIna
You're not going to change your brother - stop making yourself sick over it.
My father would complain about my 2 sisters not doing their share but I just told him that they worked while I was home. It didn't bother me since I had the time. Only when I had to decide husband or father, then I called them and someone had to take Pop to wherever he needed to go. Thankfully, in 7-1/2 years, that only happened twice.
I think the point in saying that to the OP is that her brother has a right to refuse to participate in caring for his parents, and she cannot change that. Her energy would be better spent on figuring out how to do this on her own. He has made his choice and she must make hers.
area after numerous comments (YOU need to do something about your mother!), so I did when I finally gave up my full time job to go part-time, got DHS involved, attended doctor's appointments and follow-up appointments with her, got animal control involved due to the large number of dumped animals she was feeding, and had enough documentation to prove that she needed help, and that I was the only one willing to step in and give it to her. It cost me my job, eventually, and I have had her for 3 1/2 years on my own ( with the help of facilities), but no more of "YOU need to do something about your mom" because I did. If I had had a sibling, that sibling WOULD have been involved or paid a high price for non-involvement in my mom's care because I would have made that sibling's life miserable until they became involved just to shut me up and get me off of their back. And believe me, it WOULD have carried it out!
I am in the process of letting go of this anger. I am not happy with it but it is his choice to bow out. Life is too short to worry about him.
Wow! I think that's very unusual! Many parents just make excuses (or even give money to) the ones that don't do anything.
I can assure you that you aren't alone with the sibling issue or having to figure out how to care for your parents w/out sibling help. From your additional posts, it sounds like you understand that now. Your brother is self-centered, lazy or just doesn't get it - whatever shoe fits. The issue at hand is neither you nor any of us are going to change him. It sucks that siblings often don't help, but on some level be thankful he doesn't butt in - some do, criticizing everything or taking legal action to get access to the parents assets.
Be aware that there ARE a few members on this forum who will mandate it is your responsibility to provide ALL the care needed and will try to guilt you if you can't/don't. IGNORE them. At least one will DEMAND that you stop catering to them and place them. IGNORE. The majority provide suggestions, options or just commiseration. It isn't always possible to do 100% care, and having two parents and no family to help, it could take you down first! Know your limitations, find whatever help might be available to give you a break now and then. Many of us have been/are in your shoes. We learned the hard way and hope to share our learning experiences with those who are new to all this fun.
I have 2 brothers. Both did provide some help, but it wasn't enough. Most fell on me to handle (I did/still do all the financial work, manage healthcare issues, provide OTC supplies that the facility doesn't cover.) Arranging for the cleanout, repair and sale of her condo sucked up over a year and a half of my time and energy, never mind $ for gas (it was 1.5 hours travel each way.) When I told OB it was getting to be too much to handle, he just bellowed at my to 'give it up'! No alternate plan or suggestion. USELESS! OB had to come from 2 days away, which he did several times, however I found on his last trip (May 2018) that his abusive nature towards me from childhood never went away. He was to be here 2 weeks to help and didn't make it through 1 week before physically abusing me! Yelling is bad enough, but enough to bruise my leg? Done with him and I do mean DONE. He isn't welcome here. YB was hard to get answers/commitments from, but now with mom refusing to walk, I need him to take over the medical/dental trips. I can keep track and arrange them, but I can't support her weight to transport her.
While it's good that you now know you won't get his help, getting the anger out and letting it go will help you. No real need to forgive, just get the anger out and let it go. It isn't easy, and can flare up again. I wrote each brother a long email expressing everything, but never sent them. It allowed me to express all the crap, kind of a catharsis and put it away. Sending it wouldn't have changed anything other than angering them. I just wanted to move on, so I did.
What was being advised is to stop wasting energy on trying to change the situation with him. It isn't likely to happen. You can't change him. You have acknowledged that, so now focus that energy on doing what you can for your parents and yourself. You mention wanting to socialize - YES! Of course that means maybe needing someone to be there while you are out (unless they can be alone for periods of time.) Since their care needs most likely will escalate, you need to have plans in place either to provide the potential 24/7 care yourself, hire help or find an affordable facility that can meet their needs.
Will continue in a post to this post....
If they have enough assets, you could try hiring aides to come help (they usually are not nurses, so generally can't give meds, can't drive them anywhere, etc.) The best you can get is a person to watch over them, maybe provide meals or minimal cleaning, etc. If they have trouble remembering meds, there are locked/timed dispensers you can get for them. Aides CAN remind them to take the meds if the timer goes off, just can't load/handle/dispense. You'll have to contact agencies to see what services each provides and the cost. Also understand that not all aides are worth the money paid! That is another common complaint on this site. You may have to try many before you find the right fit. If their income meets the requirements, there could be Medicaid money to help pay for some of the in-home care. It is something you will have to explore. A good Elder Care attorney can help with the documents (POAs, wills, trusts, etc.) and some advice on getting help via Medicaid, VA, etc. More work for you now, but it could help alleviate some care/frustration/burnout later.
This is a huge problem for tons of caregivers and their siblings. You are not alone by any means.
It sounds like his overall behavior is and most likely always has been unfavorable to caring for and about others. Also sounds like a 60 yr old mooch who needs to grow up. Teachers dont work those kinds of hours all the time unless hes a coach, working two jobs etc. What the excuse he uses in the summer?
Anyway, attention needs focused on you! Changing him will be like getting a cat to like baths.
Check to see if there are any home health care providers in your area. Ask for meeting to see what they can do to help you when needed.
See if brother can at least help financially if it's not possible for parents to pay.
Thousands of families are falling apart due to this problem.
Get a few steps ahead by planning before it's too late.
Get power of attorney, longterm care plans made etc.
Take care of you with support groups or counseling if possible.
Caregiving takes its toll.
I was a strong minded confident person until my Dad became I'll. Brother helps with nothing. Sees Dad for less than 8 hours every 2 years. Because of my brother, I now have PTSD and depression to deal with in addition to helping Dad.
Take care of yourself first my dear.
Hugs for you and your parents.
I’m sending you good vibes and strength. God knows we all need it .
The cash gifts are going to penalize your parents as far as getting a state medicaid bed if/when their funds to private pay finally run out. You do need to have that conversation with the brother about no more asking for cash/gifts or accepting them because of this penalty period he is helping to create. Just tell him with all the hours he works, there should be no reason to use their money as well.
If funds available, hire someone to help in the current situation. Check in to local medical transports for the days you cannot get them to the dr appts which would also be private pay. Medicaid allows transports in certain states, but the patient will spend a day getting to/from an appt because others are transported at the same time. At any rate, it's time to hire some help if they can afford.
Don't spend any energy on being mad at your brother because it will only upset you, not him. He's not a caregiver and you are not going to change him.
1. Actions speak louder than words. The action of not turning up says it clear.
2. Nothing you say or do will change other siblings/people.
3. Siblings get to choose how they wish to help (or not help)
Even if your brother was retired & lived one street away he still might not help. He may see it as your parent's resonsibility to live their life, not his.
I get that it can feel so unfair when you are knee deep in all this! I certainly feel for you but can see both views.
Just work out how much *you* can do & want to do & start getting non-family in for the rest. Have eyes open to when it is too big for you & do what's required. Good luck :)
I'm a middle daughter (3 females). Asking sometimes politely and sometimes angrily for advice, support, opinions, neither ever bothered responding in any manner. 4+ years of daily appointments and 24. hr bedside butler/maid service, and six 911 calls at ungodly hours, resulting in 24 hours of no sleep -- and continuous psycho damage, not sleeping, indescribable depression. I'm blessed with being able to afford for awhile a gifted private therapist (I've no insurance). I left 8 months ago [NOT easy, logistically or financially], after the basic '30-day notice' to the sisters The two were forced to become involved, actually give their time and attention. Neither have ever contacted me. They've no clue where I moved to (2,000 mi. away), and obviously don't care. It is incomprehensible to me.
This is where my brave friends and therapist (alll 4 of 'em) became my teachers and supporters along the way. Over 2 years time, each communicated in their own perspectives that leaving, WITHOUT ANGER, was the only thing for me to do. I worked on the 'without anger' AND the guilt of abandoning my mom, for 18 months. It was pretty bad for me. But when I did it, it was with some bit of equanimity.
MMasonSt., I hope it helps you a little to know that your circumstance is not at ALL uncommon. Life's messy, as I've been told and have learned; acceptance is the answer. Bathe in all the good you have done and are doing. Your siblings don't mean to be (they know not what they do) toxic. But, MMasonSt., they are. Now you've gotta get down and dirty with your spiritual advisors, in whatever form it/they take. Blessings upon you . . . i will hold you in my heart as a 'fellow'.