I'm 37, single, no kids. I have finished my Master's degree few years ago and now work in a field that I love and for a great agency. My dear mom, who I live with, was diagnosed with dementia about 1.5 years ago. She is declining quickly. I have siblings, but of course since I'm the "youngest" and the one "not married and living at home with mom" I took most of the caregiver job. I have one sister that helps me so much above and beyond her capability, but again, she lives 1 hour away from us and still she commutes daily to take care of mom while I work. I don't want to put mom in a nursing home.
My job is pretty demanding, they are flexible with me, but demanding and requires 300% of my attention when i'm on the clock. Ever since my mom was diagnosed, my attention and performance went down---I reached a point where I gained a whopping 30 pounds, I started to freeze everytime I want to apply to another job within a different team that is a bit less demanding and miss deadlines of the application, I don't know why I've become like that...it's like I'm afraid of getting a new job or too exhausted to apply. My colleagues are growing and moving to other better opportunities and here i'm stuck, exhausted, I feel like i'm an empty battery with no power and still pushing myself to work. Seeing my mom decline, the pressure of my job, being a caregiver, fighting with my other siblings to be involved, doctors appointments, just made me unable to think clearly and miss on work/professional growth opportunities---i literally freeze every time I see a job application. Is it time for me to resign? resigning means losing an income, but I feel I will walk out of my work with dignity rather than being that one under-performing worker.
The work environment is one that is so demanding and they favor people with no families. My supervisor knows I have a sick mother at home and they are flexible with me, but im' also exhausted and I feel like i'm lying to myself for keeping like this and I feel it's time for me to call it quit.
When my mother declined I took a few months off under the Family Medical Leave Act. If you want to do that to get her affairs in order and to arrange for long-term care, I think that would be okay.
A nursing home would probably be best. When my 91-y.o. father in law arranged for in-home, 24-hour care for his wife who had Alzheimer's it was $20K a month. The caregivers mostly sat around looking at their cellphones or studying, if they were students. It was all-hands-on-deck when she had to go to the bathroom, and then back to the cell phones or studying. In a nursing home there might be some opportunities for socialization and I think the staff would be better equipped to handle incontinence issues, but that's just my guess.
Also, you can get her on Medicaid in a nursing home. Maryland only allows Medicaid in nursing homes, not home care. Do research on it online and you may need to contact an elder care attorney to arrange for her asset protection. If you don't do asset-protection and Medicaid, and you continue to work, as you should, long-term care will be really expensive.
If you decide to quit your job, don't before you have a written agreement in place with your siblings about your financial support. That could include being paid out your mother's funds. But it should include both current monies, monies paid into a retirement fund.
It is highly likely, that if you go years unemployed, that you willhave difficult finding employment. Plan for that with your siblings before you make this life changing decision
No-one can predict the future, but the known facts my help to make realistic plans. What is Mother's diagnose? What are the time frames?
Is this is a terminal situation? Or a living with an ongoing, worsening condition?
If terminal, is *end-of-life* likely within a short time frame (under 6 months)? If so, maybe you would want to quit (if you can afford to). To spend this time with her, fully focused on her needs & pick up your career later.
But if the situation is more likely to be longer term, it may be called *life-limiting*.
If so, care is required, then more care added, then maybe hospice support, then full-time nursing home care. Folk can stay in their home for differing times, depending on the illness, the care needs, the resources available.
Goals will change along this journey. A goal of *staying home* may change to *staying home as long as is possible*. A goal of *I will do the hands-on care* may need to change to *Myself + Aides will do the hands-on care*.
"I don't want to put mom in a nursing home".
It may be useful to shine a light on this statement & ask yourself the reasons WHY. Do that now.
Many carers become full-time carers, give up their careers, income, own housing & then face poverty & homelessness if the elder does need NH care. I admire their compassion & caring natures but the lack of a wider view or practical matters is a real hazzard.
The other thing to consider is your mental approach to work right now. You are freezing up just trying to fill out an application. If you quit now without resolving that issue, applying for a job after you've been off for years is going to keep that 'freezing' up feeling as the way to deal with your stress later on. I would not suggest letting your brain think it was the right thing to do.
Sounds like sis doesn't have a job if she drives 2 hrs a day plus taking care of your mom. Is it possible for mom to live with sis? You could go there on day's off to help her. Can you work from home/any location? If so, sell the house and move closer to sis who will help you and keep your job. You work - can you afford all the housebills out of your salary? If yes, use all of mom's money for care while you're working and let sis fill in as needed before you wear her out, too.
"Seeing my mom decline, the pressure of my job, being a caregiver, fighting with my other siblings to be involved, doctors appointments, just made me unable to think clearly and miss on work/professional growth opportunities---i literally freeze every time I see a job application."
Your mom will continue to decline. There is nothing you can do to stop that. Staying in your job or quitting won't change it. Fact of life. Second fact is you NEED a job to pay for a place to live and food, minimally.
Job pressure is tough, but if you can resolve some of the other issues, it might give you more strength and fortitude to get back in the groove.
One thing mentioned IS going to drain you and WON'T change: fighting with the other siblings to get involved. You're fighting a losing battle. You can't make them do what they won't do willingly. You're using up energy and dragging yourself down with anger and/or resentment. Please put that on the shelf and forget about it. This isn't uncommon. Sad, but it happens. The BEST you can do is let it go.
"Is it time for me to resign? resigning means losing an income, but I feel I will walk out of my work with dignity rather than being that one under-performing worker."
Dignity is NOT going to keep a roof over your head or put food on the table. How can you possibly think you can care for your mother better if you have no income?
As to the care-giving - be sure to thank your one sibling who helps out. She needs your support as much as you need her to watch mom while you work. Just being the youngest and/or single and/or without children does NOT make one the ideal care-giver. Clearly the others are not cut out for it, as they refuse to help. Between you and your sister, you need to find an appropriate place for her.
That said, none of the links in your profile work, but I recall your screenname. One question - does mom speak English? I may be confusing your user name with another, as I only found these two recent postings doing a search:
https://www.agingcare.com/questions/caregiver-regrets-am-i-wrong-for-asking-just-3-nights-a-week-to-sleep-466600.htm?orderby=recent
https://www.agingcare.com/questions/my-lovely-neighbors-and-my-dementia-mom-am-i-overthinking-this-467409.htm?orderby=recent
Based on those other postings, this isn't just about job pressure. You have a serious situation at home and although you took this on with the best of intentions after graduation, you are in WAY over your head.
If she only has dementia, you should find a place that does respite care. NOT a NH, but a care home or MC/AL. She may need medication to tone down the screaming (has she had UTI culture and blood work done? Has the doctor been consulted about her behavior and lack of sleep?) If you can find a place, sign her up for TWO weeks, minimum. A month if you can. When you've had time to sleep, and get focused, see how you feel. You can't think straight or make good decisions with no sleep/stressed.
Most people would rather not put their LOs in a "home", esp NH, but sometimes it's the best for both sides. They have expertise. They go home and rest overnight. They get weekends off. They get vacations. You are one person trying to hold down your career. You WILL need it and should NOT give it up.
If you absolutely refuse to put mom in a facility of any kind, then hire 24/7 help and go stay at the hotel you booked previously. You can't keep going on with this situation as is.
What's better, you end up seriously ill, unable to care for her at all, or her being in a safe place, with care and you can watch over her and visit?
Remember - someday you will be an elder and you need to plan for your future now. So I wouldn't quit my job - maybe when you are less stressed and less exhausted you can re-evaluate whether this is the job you want; then make plans for your future.
Placing your mom is not a decision you should make by yourself - even if you and one sister do all the caregiving. Call your siblings and tell them that you are exhausted - that it is time to place mom. See if you all can work on this together. When my MIL needed to go to AL all 3 of her sons and wives worked together - my husband and a SIL looked for the facilities and narrowed them down so the family could make the final selection. They then worked together to get MIL in the facility.
Good luck.
I don’t know where you are, but if you are in the US you can take FMLA, family medical leave (unpaid after you run out of paid sick time and vacation time) that protects your job. A month of that, or similar, might help you get some perspective on how you need to proceed.
Starting a new job is tremendously stressful, which is why I suspect you are reluctant to do so now. You have a lot of stress going on now, so it’s not the best time to do something major like that. Try for a break, not an ending.
You can still look after her by being her advocate in a facility. She isn’t going to improve but you don’t know how long you would be away from your job. You do have to look out for your own future needs too.
I don’t think your mom would want you to give up your job and jeopardize your future.
Wishing you peace during this difficult time in your life.
I've put my life on hold to care for my parents for the past seven years, but that's mostly OK since I wasn't working anyway and still had a couple of kids at home early on. (I'm 60 now.) However, I have no friends where I live, don't let myself get involved in anything where I would need to be there every week reliably, and I rarely agree to go on a vacation. My husband retired a year ago, and thanks to Covid, we haven't really done anything anyway, but now that things are opening up, we'd like to travel and move to another state, but I just can't do it, because literally every time we go so somewhere, a crisis befalls Mom and/or Dad. My husband has been a saint about it.
You'd think from the description above that I'm caring for my mom (Dad's gone now) full-time, but no, she's in a memory care. I cared for both my parents in their house for the two months my dad was sick, and I knew immediately that the situation would never improve and would only get worse. Both my husband and brother suggested we move into my parents' house so I could care for Mom full-time, but I nixed that idea immediately. The memory care place has done an infinitely better job of caring for her than I ever could. I still worry about her a lot and have kept my life on hold, but at least we were able to leave town on short notice last week to deal with a crisis with one of our kids.
Your mom's situation is not going to improve, and it doesn't matter that you don't want to put her in a nursing home. You will simply be unable to care for her soon, because dementia doesn't kill people and she could go on a long, long time. (My mother is on Year 7 of dementia PLUS congestive heart failure.) Ultimately, you will likely have to put her in a nursing home, and then your career will be in tatters when you try to return to it. That's not a good plan for your future when Mom's no longer around.
Your marital status nor your place in the birth order do not require you to sacrifice your life. You have exactly the same responsibility to your mother as every one of your siblings has, and that's to ensure she's safe, fed, and cared for as best as possible. That doesn't always mean staying at home. The staff of a nursing home, especially a memory care, can do so much more than you could ever do alone, and that will add to your mom's quality of life -- and yours as well.
Tell your siblings that the current situation is untenable, and changes need to be made. Stand up for yourself, and don't let yourself feel guilty for deserving to have a life of your own, a job you like, and the satisfaction that comes with those things.
I'm wondering if you've explored part time or work from home opportunities, either in the same company or same field. Both would allow you to continue caring for your mother and work at the same time. Working at home seems to be growing in popularity as a result of the pandemic. I kind of suspect from what you've written though that this is a firm that requires a lot of interaction and "face time" with other employees as well as management.
Does your company offer family leave opportunities? If so, that might work for a limited period of time while you plan you and your mother's future. I'm wondering if your mother's or your financial status can support in home care. (And for all those who insist that you aren't obligated to financially support your mother, I offer that we're each entitled to our own opinions, and if you want to assist her financially, that's YOUR choice.)
And as to being discriminated against (and that's what it is) for taking time out to care for your mother, two of the best firms for which I work felt that my going to school at night "interfered" with my own prospects for advancement. (I was working on my BA.) Employers can find anything to use as a tool against advancement.
I think that it is time for you, once you know your Mom needs someone 24/7, to consider her placement in LTC so you can continue to work, have a life and a home and a family of your own.
I suggest you see a Licensed Social Worker trained in counseling (often they are highly trained on life transitions counseling.)
This is a decision that is full of grief for all involved, but there is no fix it here. There is no way you can both sacrifice your own life to your Mother and still HAVE a life of your own, and we all deserve to have a life this our one and only go around in life. You are only 33. The time will come when your OWN children will face this same dilemma; would you want them to sacrifice their lives to you? I am 79. It would deeply hurt me to think that could happen to my children, and I have worked hard and saved big to prevent my children taking this responsibility on.
Unless you're anticipating caring for your mom until the very end, which may be an overreach of your caregiving limits, and much longer than you expected, she may need care facility placement at some time. Sometimes a LO will adapt to placement in a care facility more easily early in their disease. Think about it. And what income would you have during your caregiving years?
Having been a caregiver for several, and possibly many, years is not one of the qualities or the experiences a prospective employee is looking for in a resume'. Your master's degree means nothing as a caregiver, but does have credence to an employer...stay employed.
Have you considered a Memory Care facility?
Do you have a sense from mom's neurologist what her prognosis is?
How many years can you afford to be out of the work force before it makes it impossible for you EVER to retire? Would your mom want that for you?
When my mom developed dementia after a stroke, had CHF and broke her hip, it became clear that she needed fulltime care.
My brothers and I all had mortgages to pay and no ability to stop working for more than a day or two when there was an emergency. Mom did very well in her Nursing Home...for 4 1/2 years.