I took care of my mother for the past two years. On Monday, my time as her main caregiver came to an end. She was 95, and, as I was told, lived past her expiration date; but still it was a sad day. It seems so surreal....
Somehow I was expecting that I would immediately be able to sleep later and not have to go to her house every day. I thought that I would stay home and just clean my house for a change. So far, none of that has happened. Even when I get home early enough, I have to force myself to do something — and it’s not the cleaning I set out to do. I feel like I am trying to beat the depression.
I have never been through this before and am now overwhelmed with all the loose ends to be tied up — like cleaning up her bedroom, arranging to have the hospital bed and wheelchair picked up, contracting with the cremation service, contacting a lawyer about the Will, worrying about a memorial service (though I have tried to pass that on to my siblings, no one is making a decision...”It’s no rush” my one brother says....).... It still seems like my (much older) siblings are not doing what I had hoped or asked of them — to take over the responsibility.
I realize it has only been a few days, but how long does it take before you feel like life is back to normal (whatever that is....)?
Uneasiness about leaving the house without handing over to a caregiver first takes some months.
It's now been over three years, and I'm coming to the conclusion that I am just not the same person any more.
Each anniversary and holiday gets easier year by year. First birthday, Christmas, Mothering Sunday etc. are going to be tricky. Fortunately, you only have to pass these milestones one at a time - whereas I think you might possibly be trying to do them all at once.
You have had a week. Why do you have to "beat" anything? Don't you deserve time to grieve?
Then proceeds to,tell me he lost his mom 16 years ago and launches into a monologue about himself. I listened. When he stopped.,I said. I am going to be quiet for awhile. I have many things to sort out. And if you are not ok with that, it is your problem, not mine.
I am doing okay. I did clean my house a little, and I ran errands today. I also went to Mom’s today for a little while. My brother was not there. I have heard others say that they feel a sense of calm when they are in their parents’ homes following them passing. I sat in Mom’s room, wanting to feel something, but I only felt an emptiness. Two days after my dad died (almost 40 years ago), I smelled his aftershave lotion. I wanted to feel Mom there today, but didn’t.... That made me feel sad.
All you need to do right now is take care of yourself. It's true, there is no rush to schedule a memorial service. It can be anytime in the next year, if you like.
Try to get some sleep and keep your usual schedule as best as you can, meaning eat some meals, do what needs to be done, and get some rest. That's it. You've been through a traumatic experience and you just need to recuperate.
And if you need to take a book or magazine to Starbucks (or wherever) and just zone out by yourself for a few hours, you have my blessing.
It will take some time. Try not to judge yourself or your family for how they grieve. Be gentle with yourself and accepting of others.
When my Mom died, I walked out of the hospice kind of numb. I drove home and slept for hours. That was the start of the next chapter. Let yourself rest and take care of the details on your timeline. It does get better.
Just stop & breathe.....
Everything doesn’t have to be completed immediately. I have a notebook and am writing down who I have spoken with, date & time because I am truly a space cadet right now.
While I did not provide direct care to my brother. who passed June 8, he sure did leave me a huge mess to unravel as far as his ppwk & belongings.
After working to clean half his apartment ( he was a hoarder) I needed a break. We left his apartment and will return next week prior to move out date.
I feel like I am on autopilot. Last week I was robotic going through his stuff.
Broke out in tears, too, at the weirdest times, like at a Jersey diner last weekend.
To answer your question, it takes awhile. It’s too fresh now so don’t feel you have to decide or achieve anything except burial/cremation.
Be easy on yourself. Undoubtedly you are both physically and mentally exhausted.
Remember to hydrate well too especially if you don’t feel like eating.
I lost my appetite there for a bit but made up for it yesterday, lol.
One day at a time, my dear. It’ll all get done. Hopefully it won’t take too long to return to normalcy.
Normalcy....whatever that is. When you lose someone you don’t really ever let go of it, but with time you learn to adjust to life without that person.
You know, so,many of us have had a whirlwind. Getting care. Selling properties to,pay for care. Dementia behaviors. Putting on psych meds to deal with same. Feeling like an ass for doing.
I am still sorting out my feelings here on a multitude of issues. And frankly you have caregiver PTSD. Whether at home with you, or in a facility.the feelings don't change.
All of us going through this, gosh. Wish i had some magic words. I don't.but I am right there with you.
Strength and peace to us all.
I gave myself a large window of time to clean out their condo and get it ready to sell. That took 2 1/2 years, but it helped not to have the pressure of needing to get it done right away for some reason. I still had to pay the association monthly fees, but there was adequate money to do that, which eased the pressure. The realtor who helped me sell the condo and gave me advice on how to get it ready and how much to ask for had worked at the memory care facility I had found for my friends and we had become friends over the time it took me to get Beth and her husband to move in. He left shortly after my friends moved in and then got his real estate license just in time to help me with selling their place. Things fell into place so neatly that I am still in awe. The first day of the showing, the second couple bought it for my asking price.
Everything of Beth's belonged also to her husband, and I was the executor of their estate, too, so that simplified things. My advice is to give yourself a wide latitude of time for those lose ends to get tied up, but be business-like in closing credit card accounts if they still exist. With my friend's husband still alive, I keep their bank account open and use it to pay the memory care bills where he still lives now 4 years after her passing. Any money coming in goes directly to that account. Any money going out is by check in relation to a bill. I don't have to account to anyone yet, but I am behaving as though I do. I make sure none of their money comes to me. I hope some of what I am doing will apply to your case and simplify matters. Apparently, you will get no other help from family. I had no other family to turn to. More responsibility for me, but no arguments either.
I hope you do not mind sharing similar experience.
I took care of my mom for 2 1/2 yrs for 24/7 by myself, and 2 1/2 yrs at assistant living as primary caregiver/emergencies, etc.
My two younger brothers always had an excuse for no helping .
My mom passed at 93 1/2......Then my brothers showed up and demanded the share that they felt it was owed to them.
I felt at peace after she passed. I did everything I could do for keeping my mom comfortable till the end. This lasted a couple of months, and after that I fell into the major depression of my life that lasted several months.
I feel better now, but on and off I go into depression....Now I take one day at the time.
I found out that it takes time and lots of patience with yourself first, and then everyone else
Every one of us are different facing challenging situations.
best of luck.
Grieving takes a long time. I was with my Dad and those last few hours entered my dreams for months as I second guessed myself and every move made or thing said, or not said. I was 5 time zones away when Mom passed away quietly in her sleep so my feelings are different. Although I am spacey and forgetful (left my purse at a restaurant the other night) and clumsy ( tripped on a speed bump in a parking lot last week) and have a difficult time focusing or following ( or making) conversation, I know these moments will end. My new focus will be on learning to be the best elder I can be.
Try not to rush yourself thru the grief process, or to force yourself to feel or act "normal". The death process has to be THE hardest, most traumatic thing in life to witness and to help a loved one thru, so we need lots of time and compassion for ourselves to heal. Wishing you the very best on this leg of your journey.
This experience is different for each of us. Dios te bendiga!
I am trying to get my siblings to handle the memorial service and luncheon afterwards, but somehow I think I should have just done it myself.... I am being sucked in anyway. Like today, my sil texted me and told me that their priest friend can do the service on the date we selected. She told me to call my sister and have her call the church to see if the chapel was available. Why couldn't she have called my sister, or better yet, tell my brother (her husband!) to call my sister??? It is hard dealing with 5 siblings, trying to coordinate, get everyone's input.
Since this is depression from a situation, it may benefit you to get a depression medicine from your primary care doctor so that you have more energy to function. Do the people at the cremation service provide a chapel for a memorial service and maybe have a pastor they can call on in situations like yours if you don't have a pastor or priest? Or are the cremation service people connected with a funeral home that can help you. I gather that you are the exectress of the will? Get the memorial service behind you first before working on it. Executing a Will can take up to a year or more depending on how complicated things are in her estate. Otherwise, if her estate was like my mom's, it only took a few days.
I tried to pass the memorial service and luncheon on to my siblings, but feel I am being sucked into it (for back of a better way to put it...)... I probably should have just done it myself. I am not a control freak. It's just when you ask for an opinion from my siblings, they just nod. It's frustrating. It might be good to be able to go to someone and say, "This is what we want," and have it done, much like a wedding planner does. I can imagine that would be expensive, though... I think I could do it myself, I am just trying not to do it....
We used a cremation service rather than going through a funeral home because I feel the funeral homes rip people off at their most vulnerable time. In my State, $10,000 is the average cost. Mom wouldn't want that. So, I/we are trying to keep it simple. I just need to find out how many people may be coming from out-of-town....
As far as the neverending task of trying to get everything straightened out and finalize everything, thats going to take time.
Its been a year and a half for me and everything is still not done. We are still going through probate, still dealing with selling all his stocks, he passed Jan 2018, we finally sold his house Feb 2019. (Long story there) on and on and on
My point is that it never seems to end. You have to remember that you are basically “taking over” your moms life. Its hard! Oh my gosh is it hard and overwhelming BUT I feel like its these last things we do for them is an act of love. Yes theres some days I want to run down the street screaming like a crazy person, some days I cry all day but the next day (or when my husband comes home from work lol)
I put on my big girl boots ready to take on another fight.
You will get there, maybe not “normal” as you knew it but after everything is done you will be able to get somewhat close.
I still havent had time to grieve. Going through everything still has kept my mind busy. Kept my mind on one thing or another.
The only real advice that I can give you is to take care of yourself. I know it sounds cliche but I got really sick and I had to make up my mind that all this wasnt going to beat me!
Take care of yourself, take walks (that saves me) take vitamins, make sure you dont skip meals even tho you dont feel like eating or “forget” to eat, if your tired go to sleep or take cat naps. Do whatever you have to do to take care of YOU! This is going to be a stressful time and sometimes you are going to need to say enough is enough “Im done”, and take a break and go rest.
Do it for you!
As far as other siblings helping, good luck with that. My “brother” is no where to be found. He took off to England and left everything for me to do. Even when my 86 year old father-in- law lived with us for a year and 9 months, no one helped. We told everyone we were moving him out, no one helped or even offered to take him in. Hubby has 4 other siblings and nothing. Its a shame how when one person steps in and takes over because they are a responsible genuinely good person everyone else is like “yep you got this” and dont think twice about helping. Its just that way.
My advice to you is just get it done, tell them “your not helping and Im going down today to make the arrangements for mom, if your not here and you dont like it, too bad but I NEED to get this done.” Believe me if they really want to be involved they will. You have to get everything set up for your moms cremation and memorial and soon. Sometimes you just have to blunt, straightforward and get things done. You cant have this all hanging over your head for weeks until someone decides they are ready to help. You need to do whats best for your mom and to put her to rest. If the others dont like it then they can step in, if not? Tough!
(When you set up the reading of the will they will trip over themselves to be there, just the way it is)
Good luck sweetie and remember that we are all here for you.
All I can say is to take each moment as it comes. You will have to work through details, and you can do it. It would be nice if siblings would come forward to help, but they’re grieving, too, and some are better at assisting in dark moments.
Life does go on. It’s never the same, but healing takes time and it’s fine to miss those we love. If you feel you need support, there are grief groups in many locations who meet to support each other. If you have a church group or even friends who’ve experienced losses, they can be a huge help to you at this time and in the days ahead. Sometimes, we fail to let others know we could use their help.
Both of my parents are gone, and I do miss them every day. Certain holidays bring up fresh tears (even nearly 7 years since Mom’s home-going and 3 since Dad’s). Those moments pass, I have great memories to hold on to, and I have some difficult ones of their last days that I don’t wallow in.
You will get through this, by God’s grace. He promises to be be the “God of all comfort” and He is!
So glad you reached out, first step in the right direction. This forum is loaded with smart, real people that actually really do look out for each other. A lot of us on here have been to hell and back . This is a good place to find the compassion you need right now. Be well, take care of you, too.