I took care of my mother for the past two years. On Monday, my time as her main caregiver came to an end. She was 95, and, as I was told, lived past her expiration date; but still it was a sad day. It seems so surreal....
Somehow I was expecting that I would immediately be able to sleep later and not have to go to her house every day. I thought that I would stay home and just clean my house for a change. So far, none of that has happened. Even when I get home early enough, I have to force myself to do something — and it’s not the cleaning I set out to do. I feel like I am trying to beat the depression.
I have never been through this before and am now overwhelmed with all the loose ends to be tied up — like cleaning up her bedroom, arranging to have the hospital bed and wheelchair picked up, contracting with the cremation service, contacting a lawyer about the Will, worrying about a memorial service (though I have tried to pass that on to my siblings, no one is making a decision...”It’s no rush” my one brother says....).... It still seems like my (much older) siblings are not doing what I had hoped or asked of them — to take over the responsibility.
I realize it has only been a few days, but how long does it take before you feel like life is back to normal (whatever that is....)?
Give yourself some time. Your grief is very new and that alone can be overwhelming. There are tasks to be done that have to do with the loose ends (the hospital bed, cremation); those can be useful "distractors" from the grief.
If you delegate tasks to your siblings, let them do it their way.
Are you the executrix of the will?
It takes time to get back to any semblance of "normal". Please be gentle with yourself and remember that we're here. (((((Hugs))))))).
It changes as time goes along - morphing from one thing into something else.
I’m better than I was, but not as good as I use to be - before it all.
I think its fair to say you’ll never be the person you use to be. How could you? The experience from beginning to end changes you. Into something different. But with time and effort I do believe it can be just that - not less than, hopefully better than - with wisdom and lessons learned. But definitely different.
I think I know now that there is no such thing as normal. And that has to be okay I guess.
I think any time you sacrifice for someone you become a greater version of yourself even if it may not seem so right now.
Well meaning people who tell you to take your time are trying to be helpful but only you can decide the pace at which you want to go. Personally I was inclined to gather all of her personal effects and over the course of a week sift thru them. (keeping in mind I needed to remove them from the LTC)
As I keep telling my Dad, this is a marathon not a sprint so be kind to yourself and allow yourself to feel all the feelings. We're thinking of you and sending best wishes.
Perhaps remembering nobody will leave this earth alive is cold comfort, and as long as you did everything expected of you as her child, eventually all of the mourning, crying, depression, anger, etc., will be replaced with peace knowing you did everything you could for her; she is in a much better place than we are. We could be facing nuclear war soon--she is spared of that.
The main stress if you did not preplan a funeral or cremation, you will have to go through that. Perhaps too your own siblings will create another nightmare if they start bickering about the estate. I preplanned mom's death years ago and seen an eldercare attorney for estate planning, and nothing will go into probate. I mean nothing. She has some ambulance bills which Medicare has refused to pay for unknown reasons, despite appeals (she had to go to the Emergency Room due to a urinary tract infection which she was unable to move). I think the EMS personnel charted wrong and gave the impression she was "stable" which she was far from that. I mean if you can't get up and had to go to the Emergency Room a person is not stable. So those idiots will not get a dime. Those are mom's medical bills and they will die with her--since nothing will go into probate they can't sue a dead person, even though I am POA..they are still HER bills and my POA no longer applies the moment she dies. Further, no executor was named.
Holidays can be very painful so I do not celebrate Christmas. Remember it's just another day and people die on that day just as any other. Just keep on with the business of living.
I know one thing--me being mom's caregiver for 20 years I will have to rediscover myself. I do not know how to think without mom being the center of my life. Seriously. Her Alzheimer's is so severe she cannot eat, drink, get up, or even use the bathroom without my help and it's often backbreaking work..but she has become my entire being since her care is so intense and backbreaking.
Did you know I never been separated from my mom. I never married. I never lived on my own. So you can imagine how crippled I will be when mom dies.
Then after a year where I barely got back on my feet, my SIL who lived with 89 yr. old MIL died, sending us back down the path of impending care giving. I am still waiting to really feel free to enjoy my life. Have friends rubbing it in about their great lives after care giving. More things went wrong but I won't get into that.
Everyone is different with different circumstances. I find myself wondering if I had ever properly grieved instead of jumping into handling the many things that demanded my immediate attention back then. I had hopes and dreams that I am losing faith in ever seeing having been thrown right back into it. You went through a lot and are probably feeling overwhelmed. Take your time and grieve. Tackle one thing at a time instead of seeing all of it before you at once. Take care of yourself too.
Normal? What is normal? I will never be the normal I was before caregiving. I barely remember anything about that.
I have a new normal that I actually enjoy. The caregiving was 24/7 worrying, wondering, responding to what mom's next need or assist would be. It is overwhelming and exhausting and very demanding. My new normal is spending lots of time with just me. Go to work, come home to just me and the cat. I am enjoying the quiet and inactivity Go to local coffee shop on Saturday morning. Come home, putter, read, nap, check this website. Occasionally go to some sort of event. That is about it and that is fine with me.
Heck this is very new for you, stop being hard on yourself. Take your time. When you are ready, you are ready. You are in recovery. Relax.
All these losses have changed me forever. Losing my Mom as the end of my entire immediate family has been especially hard.
I highly recommend reading and support groups. The best book I have read is “Permission to Mourn.” It has helped me a great deal.
Take care and I am sorry for your loss.
It is normal to feel at loose ends; your usual life of caring for another has changed dramatically. It would be nice for the rest of the family to pitch in, but this rarely happens in the best of families. The priority is probably the memorial service and the will. . Everything else can "wait" until you are ready to deal with it. Talking with others about this is helpful. Check out GriefShare and other groups for those coping with loss of loved ones.
I'm very I'm very sorry for your loss of your mother and of yourself. I don't think you get to go back but you will come out the other side. A little battered and bruised maybe, but let's call it new and improved.
Your story could be my story, they are so very similar. I am the youngest of four siblings and was the live in caregiver for my mom until she passed 15 months ago at the age of 87.
The last few years with Mom were intense. The stress and frustration and lack of sleep we're piling up on me and the lack of help was heartbreaking. I also worked full-time and my department was short-staffed by almost half adding more pressure to my daily life. I was happy and proud to help and be with my mom but after 5 years without a break or a day off I was well on my way to a breakdown. The more I asked for help the more I was ignored.
After mom had passed I clearly stated that I had taken care of the life side of things I did not want the responsibility of the death side. That I was mentally burnt out and emotionally incapable of handling the task. Oh yes my siblings nodded in agreement. but they dumped the executors duties in my lap anyways and carried on with their own lives. No phone call to see how I'm doing or if I need help. I told them I now suffer with severe anxiety and need the estate to be handled fairly quickly so I can focus on recovery. There is no way I can do this on my own but if we work together it would be manageable and perhaps less emotionally-charged. I too, was told to relax, there's no rush, there's lots of time Etc.
??? Did you not hear me when I said I needed it to be done for my own health and Sanity???
I'm yelling help me! I'm desperate! And they just turn and walk away. They say they are not going to talk to me if I'm screaming. Yes! I am screaming because five years of asking, verbal and written, didn't work and I am now desperate. One of them actually asked me to define desperate. WTF?
Fast forward to one day after the first year anniversary of moms death and I find out through third party channels, not even a family member, that the house is being put up for sale. ????? Three months later they still have not send a word about it to my face.
There are there too many more awful details to get into here but my responsibilities, stress, anxiety, and depression have multiplied instead of lessened, so much so, that I really have not been able to grieve. I still reside in my mother's home where I cared for her, surrounded by all her things. I went through Mother's Day and her birthday, where I normally did the family gathering, alone. It's been quite devastating.
I finally had the break down I so richly deserve and I am in the process of going on short-term disability from work. Which ironically , creates more anxiety . My doctor has prescribed anti-anxiety medication. I no longer open up to my sisters about anything personal. If that's who they are, so be it.
There is no coming back from this, at least for me. I have learned many a lesson from this experience, good, bad, and ugly. I will never be the person I was before . In this moment, right now, I don't always like the person I've become. I keep telling myself that life always changes, this too shall pass. I'm going to do my best, get done what needs to be done, remove the obstacles from my path so I can focus on my future for a change. I know there is a new me and a new normal down the road. When? I don't know. But she's there, and she's waiting for me.
I wish you the best.
One day at a time.
Remember to breathe.
You can do this.
Hugs.
All I can say is be KIND to yourself - do not expect anything from anyone - sad but true. I plan to pay for transportation and home health if it comes to that. I'm tired of waiting for anyone to step up. It's a lonely road that is for sure. I'm single, work full-time and just try and do the best I can. I'm not sure what is ahead for me - I suffer anxiety and depression and have sought out counseling. God bless, and hugs to you!
In three years you will feel slightly better and less emotional. You will be more appreciative of all the time that you spent together. You will feel glad that you made sacrifices. You will feel pain at times, wishing you could do even more for your mom, even though you did absolutely everything that you could possibly do at the time. In your heart you will know that you gave your best. You will end up immensely proud of the choices and sacrifices you made.
You will at times “ping pong” between intense emotions, feeling sad, grateful, lonely, proud, orphaned, relieved, guilty for feeling happy about something trivial, aching, appreciative, mournful. I never wanted to take any antidepressants to level out these feelings because I wanted to, head-on, experience the full grief for losing my best friend.
People may make nasty little remarks. They will sometimes claim to be making them in an attempt to “comfort” or educate you. These remarks might bother you more than they should. Your emotions are “raw.” Let them roll off your back. Even people on this support forum might write you sharp messages and accuse you of “showing off” when you mournfully and honestly express your love or pain, or simply write about your perspective.
It will take about six months to wake up and understand, in those first foggy moments, that your “to do list” is no longer struggling to keep your parent alive.
Get a jumbo box of tissues for your car, your bedside and your kitchen table. Get pocket-packs for your pockets. Allow yourself to cry as needed. Know that tears can come quickly and might be difficult to suppress. They can be triggered anywhere, by a song on the radio, passing by the hospital, seeing a stranger with your mother’s hair that you just want to touch.
You were exhausted from the fight but now feel somewhat directionless and empty. Keep your chin up (and when it sinks, bring it up again). Life will feel better in time.
Your memory will expand and grow and you will start to more often see your mom —-not as just elderly and growing increasingly more frail —- but you will remember her more frequently as that young strong mom that scooped you up with her hugs and helped you fix your problems. “Thanks alot,” you will say to yourself— I really need that comfort now and the only one who can truly give it to me is gone. But everything will somehow get a little better.
You gave so much love and support to your mom and now you don’t know where to allocate that love and support. It feels like there is this big, gaping hole. It is such an empty feeling.
You must give that love and support to yourself. You are going through a difficult patch so heap your gentle care on you. Don’t get mad at yourself about anything. Don’t give yourself deadlines or ultimatums. Take time to savor little things when you can and you enjoy and allow yourself to find peace.
The only way way to avoid sibling disappointment is to expect nothing from them. I am embarrassed to even write here about my siblings’ behavior. To sum it up, I had 20% incredible support, 40% no-show and 40% sucker punch (by the same siblings that had been sucker-punching my parents for more than 50 years, each—it probably should have come as no surprise, but somehow it did).
I planned both of my parents funerals alone. (Not by choice). In actuality, my parents would have wanted it that way. I wrote glorious, obituaries that properly honored their lives and then fielded sibling complaints (about the publication cost) from those who visited my parents least.
Distance yourself from those that hurt you. Cut your losses. Spend your time doing things you like, with people you like, when you like.
Do not adopt any new “vices” to comfort yourself. Overspending, overeating, drinking excessively etc., will just cause you more pain and work in the long run.
don’t wait for them to plan the memorial. Do it yourself, when it will be convenient for you. You deserve to have a life and to start to put yourself first without any guilt. You won’t be able to do that until you have honored your mother. I am the same way. I buried my mom last Tuesday and am still finding it difficult but the one thing I can say is that once I was able to honor my mother and put that to rest, I felt physically and spiritually lighter. Have a memorial befitting the type of person your mother was and do it soon - you will feel much better once that is settled. I wish for you a light heart. May your mother’s memory be eternal.
When my husbands mother passed away one credit card company was particularly unrelenting. They seemed to think my husband was lying when he said that she had passed and he was sending them a death certificate. Finally, he told them “Okay. Here’s where you can reach her: area code 503-xxx-...” and he gave them the phone number to the cemetery.
you will be okay and as you get things done you will feel better. Please get some help. Time heals. You will be okay and life will return to a more normal pace in time
blessings to you🙏🏻😊
Last week, 13 months after DH's demise, I called my sister and told her I was ready to go shopping with her and I had a blast! Thankfully, she recognized my need to deal with the loss and she told me to take all the time I needed and she came to visit me almost weekly. Just for a couple of hours.
Allow yourself the time you need to get back to "normal" - whatever normal is. When my mother passed and my father was going through this, I told him that Mom was everywhere in the house and furniture. I advised him to go ahead and talk with her - the mind will often do what is needed to give us serenity.
I went graveside and spoke with my mother asking her the questions that I could no longer ask in person, like, "why didn't you keep me informed of Pop's needs?" No, I didn't get an answer, but I did find a calmness I greatly needed to assist my father for the next 7.5 years.
The doctor wanted to put me on Zoloft but I refused. Instead I am using Ashwagandha and it has taken away the anxiety and stress and allows me to sleep. Talk to your doctor. Did you have HomeHealth or Hospice? If so, call them and they can help you too. I received letters periodically from them telling me to call if I needed to. If you are religious, ask God for Guidance, Patience and Serenity (I asked for my sanity) - it helped me a great deal and still does.
I am terribly sorry for your loss. I will 🙏🙏🙏 pray for you.
My mom died of AD, and it was a blessing she passed. I feel sad about the last years of her life, but I don't dwell on it. she lived a long life and did a lot of things besides work.
My brother had AD too, but died relatively young at age 67. I feel bad that he never got to enjoy his retirement at all. That bothers me at times, and it's been 5 years.
THERE is no normal.
First, deal with the cremation service. You do not need to have a memorial service right away. My MIL died Mar 1 and we had her service in May between their wedding anniversary and her birthday. I know people who have waited a couple of weeks or more. I just went to one at Church. The Urn sat inside a wreath of flowers. There was a viewing, a service and then a luncheon in the hall. You don't need a funeral director for something like that. My MIL was cremated, buried with FIL, minister said a few words and we all went to a friends home for a nice luncheon.
Then call the people to pick up the equipment. Maybe clean while ur there.
The Will u can do nothing about for a few days anyway. Where I live, it was 9 or 11 days before I could even probate. Since there was really no estate, I waited over a month.
Let your body adjust. Unlike a regular funeral, you can take ur time.
So sorry for your loss.
May God grant you grieving mercies, strength and peace for this trying time.
One step at a time and remember to take care of you. Try to remember the happier times as you find your new normal.
Hugs!
God bless you,
Bob
So glad you reached out, first step in the right direction. This forum is loaded with smart, real people that actually really do look out for each other. A lot of us on here have been to hell and back . This is a good place to find the compassion you need right now. Be well, take care of you, too.
All I can say is to take each moment as it comes. You will have to work through details, and you can do it. It would be nice if siblings would come forward to help, but they’re grieving, too, and some are better at assisting in dark moments.
Life does go on. It’s never the same, but healing takes time and it’s fine to miss those we love. If you feel you need support, there are grief groups in many locations who meet to support each other. If you have a church group or even friends who’ve experienced losses, they can be a huge help to you at this time and in the days ahead. Sometimes, we fail to let others know we could use their help.
Both of my parents are gone, and I do miss them every day. Certain holidays bring up fresh tears (even nearly 7 years since Mom’s home-going and 3 since Dad’s). Those moments pass, I have great memories to hold on to, and I have some difficult ones of their last days that I don’t wallow in.
You will get through this, by God’s grace. He promises to be be the “God of all comfort” and He is!
As far as the neverending task of trying to get everything straightened out and finalize everything, thats going to take time.
Its been a year and a half for me and everything is still not done. We are still going through probate, still dealing with selling all his stocks, he passed Jan 2018, we finally sold his house Feb 2019. (Long story there) on and on and on
My point is that it never seems to end. You have to remember that you are basically “taking over” your moms life. Its hard! Oh my gosh is it hard and overwhelming BUT I feel like its these last things we do for them is an act of love. Yes theres some days I want to run down the street screaming like a crazy person, some days I cry all day but the next day (or when my husband comes home from work lol)
I put on my big girl boots ready to take on another fight.
You will get there, maybe not “normal” as you knew it but after everything is done you will be able to get somewhat close.
I still havent had time to grieve. Going through everything still has kept my mind busy. Kept my mind on one thing or another.
The only real advice that I can give you is to take care of yourself. I know it sounds cliche but I got really sick and I had to make up my mind that all this wasnt going to beat me!
Take care of yourself, take walks (that saves me) take vitamins, make sure you dont skip meals even tho you dont feel like eating or “forget” to eat, if your tired go to sleep or take cat naps. Do whatever you have to do to take care of YOU! This is going to be a stressful time and sometimes you are going to need to say enough is enough “Im done”, and take a break and go rest.
Do it for you!
As far as other siblings helping, good luck with that. My “brother” is no where to be found. He took off to England and left everything for me to do. Even when my 86 year old father-in- law lived with us for a year and 9 months, no one helped. We told everyone we were moving him out, no one helped or even offered to take him in. Hubby has 4 other siblings and nothing. Its a shame how when one person steps in and takes over because they are a responsible genuinely good person everyone else is like “yep you got this” and dont think twice about helping. Its just that way.
My advice to you is just get it done, tell them “your not helping and Im going down today to make the arrangements for mom, if your not here and you dont like it, too bad but I NEED to get this done.” Believe me if they really want to be involved they will. You have to get everything set up for your moms cremation and memorial and soon. Sometimes you just have to blunt, straightforward and get things done. You cant have this all hanging over your head for weeks until someone decides they are ready to help. You need to do whats best for your mom and to put her to rest. If the others dont like it then they can step in, if not? Tough!
(When you set up the reading of the will they will trip over themselves to be there, just the way it is)
Good luck sweetie and remember that we are all here for you.