I have been easily manipulated my entire life. Spent much of my time trying to make those around me happier than I ever could make myself. I appreciate time by myself, but don’t get more than an hour or so at a time a couple times a year.
If something isn’t important to my mother then it isn’t important. If something isn’t valuable to her then it has no value.
There is just too much stuff I could elaborate on but I just couldn’t explain it.
Tell her exactly how you feel and for ya'll to continue living together, changes must be made.
Have your changes listed znd give her the list as ya'll go over them one by one.
Include your mom's feelings, thoughts and ideas and come to a mutual arrangement.
If this isn't possible then mom or you will have to move out
have no idea that they've been, manipulated for his/her entire life, and write about their situations in a completely different manner, from a victim's perspective.
Your writing is ...
You already have the answers.
What exactly are you seeking?
Hopefully you are finding a way to live in your own home, peacefully with your mom knowing that you are mistress of your domain and she is a welcome guest.
Please come and let us know how you are doing. We learn from one another and love to hear how others are implementing change.
You have to also understand that with this caregiving thing, the more you do for someone the more you create a decline for that person. When you jump up each time she wants thing, you are slowly removing her ability to walk. Look at every single thing you do. Even the simplest of chores/tasks that you do (just because it's easier than to talk about it) you are creating the debilitated patient down the road. Always keep that in mind.
You created the problem by allowing others to have their way with you. You've spent many years creating this environment. So change will come about slowly with you being consistent in making the changes. Say no when you have to and stick to it. Define the boundaries and stick to it. The first time you back down, you will be back to where you are now. It's hard. Best of luck to you.
Because you are dealing with someone suffering from dementia you are allowed to be sneaky... In other words you can justify a white lie or two--- you could tell her the house has burned down... or that it has a dangerous black mold problem and you are going to have to sell it to someone who will destroy it and build again. But in any case you and your mother will be homeless. So your doctor will advise your mother to go to an independent living facility. And you will have to go rent an inexpensive apartment. With dementia -- sometimes you are allowed to not tell the truth, but offer a distraction. NOW once she is settled in, she will forget everything and learn to enjoy sitting with women her own age as they eat their lunch. Make sure you get her to agree to you being her POA. Good luck.
Heartless to say no? Hardly. I made my decision before mom developed dementia that no way could we be in the same place 24/7. Dementia firmly cemented that decision! She was early 90s when we had to deal with that. First was helping her with grocery shopping and getting to appointments (we took the car away.) Financial takeover had to be done next, as she was messing it up. Plan A was to bring in help as needed, to keep her in her own condo (her wish at that point) as long as possible. We only got to stage 1 of that plan (1 hour/day, mainly to check on her and make sure she took her medications.) That didn't last 2 months. Given how she dealt with that and her adamant refusal to consider moving anywhere, she likely would be a lot like your mother, with a dose of dementia on top! She did tend to be critical of decisions and life choices I have made, but it IS my life! **(see add'l comment)
So, you need to start putting yourself first. If she really needs assistance, you could start pushing for her to move to AL, if she has the means. If she doesn't need that much help, then you need to allocate more time EVERY day for yourself.
"I have been easily manipulated my entire life."
Many of us can say this. Once you realize it and acknowledge it, which you have, then focus on changing that.
"Spent much of my time trying to make those around me happier than I ever could make myself."
I am a giving-type of person, and get pleasure from helping others, but at some point some of those we try to help out and bring some happiness to step over the line and start TAKING. It's okay to be a giver, to a point. When the helping hand is grabbed and dragged down, it's time to pull back that hand!
"I appreciate time by myself, but don’t get more than an hour or so at a time a couple times a year."
TAKE the time. Given your description of your mother's conditions, she doesn't need you 24/7.
If she is safe to be left alone, GET OUT and do what YOU want to do! Granted it's a tough time for that, but you can go for walks, drives, sit in a park, set aside space in YOUR home for projects, activities, crafts, etc that YOU like to do, and shut her out. It's your home.
If she isn't safe to be left alone, use her income to hire aides to watch over her while you do what you want. She's your mother, not your task master, not your boss, just your mother. Ensure her needs are met - NEEDS, not wants, and ignore anything else she has to say. She obviously is opinionated and critical, but that doesn't mean you have to listen to her or internalize ANYTHING she says. She starts in on you for anything, walk away. Let it bounce off or roll off your back. Words can be painful, but they can be ignored as they are only words and come from ignorance.
"If something isn’t important to my mother then it isn’t important. If something isn’t valuable to her then it has no value."
Fine. But finish the statements thus:
"If something isn’t important to my mother then it isn’t important TO HER."
"If something isn’t valuable to her then it has no value TO HER."
Whatever the "somethings" are, they ARE important to you and they ARE valuable to you! She has no real power over you. If she starts to criticize and/or complain, cut her off and just state calmly that this isn't a topic for discussion, then walk away. Don't let her rule over your life!
You CAN do this. It'll take some effort, it'll take some time. There might be some back-sliding, but don't let that deter you! TAKE BACK YOUR LIFE AND HOME!
Anyway, she will be 97 in a few weeks and is still in MC (this is year 4). Your mother doesn't seem to have much in the way of life-threatening conditions, so she could live for a LONG time! Are you willing to continue with this arrangement, with no respite? You really need to think long and hard about that.
Instead of getting an hour or so every year, consider planning a get-away, even if it's just to a fairly local hotel, where you can spoil yourself for a week or 2.
There are some ALs that offer respite care. If she can't be left alone for that amount of time and care for herself, you either use her funds to hire someone to watch over her or find a place that offers respite and use her funds to pay for that.
You never know, she might like it enough to consider moving there, where she can direct her "staff" to do her bidding! I think that might be why some offer respite - to entice people to consider moving in! If she gets treated like royalty (obviously her wish now!), she might like it! You can still visit, take her out, have dinner at your place, love her, do little things for her, but have your life back! You are in the early stages of retirement, don't piddle it away!!! By the time she passes, you might be too old or compromised to enjoy any of your own retirement!
I say that last bit truthfully. My parents had a GREAT retirement. Condo in FL for winter, condo up here too, travel here, there and everywhere, cruises, get togethers with friends and family, etc. Mom still had this condo and friends, a few family after dad passed, but she was okay dealing with things herself and wanted to stay there. She managed alone for 8 years, then dementia crept in.
Just prior to dementia starting, or at least when I realized she had early stage dementia, I lost my job - I was caught between 2 houses and near to early retirement age. Between age, mom and various issues, I decided on retirement. BUT, that meant trips to help her out (grocery, appts, etc) and she was about 1.5 hours each way! Then I had to take over her finances... Then deal with hiring aides, ensuring she was getting enough food and supplies, etc. Meanwhile I was dealing with fixing TWO houses, in order to sell one and live in the other! In "spare" time, started research on dementia, checking out places, getting everything set to move forward - yadda yadda, lots there, but just leave it at it took a LOT of my time and energy, even though she isn't living with me!!! Next came cleaning, clearing, fixing and selling her condo = 1 and 3/4 YEARS!
Fast forward - despite having 2 brothers, one who is also POA, I get to manage and handle EVERYTHING for her. My place still isn't done. I am going to run out of retirement before it gets finished!!!!
Don't wait, please. Ensure that YOU get your full share of time. Whatever mom demands can wait. If she truly needs something, see to that, but not everything is necessary or needed NOW. She could AND SHOULD also be helping do some chores, if the medical conditions are only what you listed.
I love my parents, but they learned (in their 50s and early 60s) that the baby could and would leave them. They planned for me to have a career that would have provided certain opportunities.
Opportunities that would have afforded them options, in their own old age.
I have decided that I will help them, as best I can. I will not surrender my future, to them.
Please take care of yourself and your partner. Once your parents are gone, you will have your partner and yourself.
D
I write this knowing exactly how you are feeling about being manipulated and having reached a point when I felt I needed to tell my mother that the world did not revolve around her. It took several events to make her realize that I was actually an adult person rather than merely an extension of herself.
I should also tell you that I was not able to do this without the help of several counseling sessions with a psychologist.
Like you I was raised to be the "good little girl", the one who put themselves last. It took me some time with a professional counselor to learn to say "No". It was like the world would end and I would go straight to a burning place if I said that word. The first time I said no, it took me 3 weeks to do it. BUT, I did and it was so freeing.
If you have too hard a time, get some professional help. Look at the suggestions the wonderful people in this forum have suggested. Take the easiest one first, keep trying, you will be amazed at how freeing it is. Don't feel guilty or that you have let someone down. Just do it. Believe it or not, you have rights too. I am 86 and I know your mother could live another 10 or more years. One of my husband's extended family is 109 and just had to go to assisted living.
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If it's your house, set the rules, the tone and the conditions of your Mom living in your home. Even if your Mom pays her part of rent, utilities, etc. Boundaries are #1 important. Belittling, Bad Mouthing, Tantrums, Ill-tempers are not acceptable. Tell her so. Be kind, but very firm. Write it down and print it out if necessary. Make her sign a contract on living conditions. If she still fails to respect your boundaries and is still disrespectful, then it's time you make her move out.
If it's her house, it's a bit different in this way. If it's her house and you set boundaries on how you should be respected and treated and she still doesn't do that, then MOVE. Find a way and leave.
If she's always been this way, she needs to be confronted and told how her behavior and disrespect affect you. Be blunt. "Your attitude, tone and disrespect make me feel bad and I feel no obligation to have you in my home anymore."
If she has gotten this way recently or in last few years, have doctors do a medication check to make sure prescription drugs and supplements aren't interacting incorrectly to cause mood swings. Or maybe she is starting to get Alzheimer's which affects your behavior.
If she is living with you and on Social Security, make her pay you a monthly sum that would cover Adult Day Care or a Sitter for 8 hours a month or more! Take that time, go to a movie, go with friends to restaurants, soak in a tub. Etc. Make siblings if any, schedule times each week or month to relive you. I have been a care giver most of my life and it's exhausting. First, my grandfather with 6 years Alzheimer's, then my grandmother with 6 years Alzheimer's (all with young children at home), then my stepdad with cancer, now my Mom for past 25 years and counting. Take the vacations, trips, etc. Find someone she has to pay to watch her if needed while you are gone. My Mom goes back and forth between her house and mine due to health issues. She was with us for 8 months one time and just recently 4 months. She is super sweet, never degrading BUT she was very needy. In the beginning she needed extra help and I didn't mind helping her but then she would just sit there until I made meals, or did laundry or clean her bathroom. Finally, I said if she wanted to go back home, then she needed to prove to me that she could take care of herself. Make her meals or help me, do her laundry, clean her spaces, etc. She said ok and did it. Sometimes, they get in a habit of us doing for them. If it's gets to the point that they can't do for themselves, then you may want to start the conversation about Nursing Care at a Home. There is nothing to be ashamed of in that. My Mom and I have talked often about this. I told her I would help her and keep her home as long as possible, she is 85. However, I told her that if she becomes disabled to care for herself, then she would have to go into a place of care.
I hope all this helps. Praying for you. Set Boundaries and stick to them. Walk away and do not allow any disrespectful talk from your Mom.
It takes practice to remain calm, focused, and with backbone. At the same time, be sure to do a couple of things your mom likes or wants so that you can also calmly remind her that you did that her way.
And, find a way to have time for yourself each day. Start watching an hour of a talk show or a soap opera, or something on a regular basis. Don't worry about paying attention to the screen, just be able to sit and not do anything.
Here's another idea that works with my NPD/BPD mom: whenever you refuse to do her bidding, use a completely bland look and neutral voice. I believe this is called "Grey Rock", and I can confirm that it works. No drama, no excitement, just "No, I'm not going to do that", "Sorry, I can't do that", etc. It's beautiful when you get it, because you get to stand your ground, and she doesn't have the satisfaction of making you angry, flustered, etc. A big WIN for YOU!
Be prepared to leave the house for awhile if she tantrums. Just make sure she's safe alone for awhile, of course. After doing this for awhile, my guess is that she'll get it.
I too have a controlling mother. Sweet as pie as long as she gets her way. I've spent most of my life taking care of her emotionally. 4 weeks ago I went "No Contact" with her, and am starting to feel happy and hopeful again for the first time in 51 years. She's got many issues, but the key is BOUNDARIES!!!
Your mother lives with you - that's much harder than my situation. Still, the key point is boundaries. YOU MATTER!! It's not "all about her", even though she may think so. She needs to realize this, but she will only do so if YOU stand firm about the things YOU need.
Think about what you need. How much time away. How much time to yourself. Have a "schedule" for the day. See if it works for awhile. I wouldn't give it a long time, because like I said, YOU MATTER! You have a right to the life YOU want. It isn't selfish...that's just the line we've been told by our mothers to keep us in line. In truth, they are jealous of women who "get to do what they want", because maybe they themselves didn't voice their own preferences when they were young. NOT YOUR FAULT.
Go for it. Own your own life. YOU MATTER, my friend!
But PLEASE, put your foot down NOW and set some boundaries. Your home, your rules - it's as simple as that!
If your mother needs care 24/7, then hire a caregiver or companion a few hours weekly while you get out of the house to run errands, take a walk, etc.
You have some self-preservation instincts left, although it appears she has tried mightily to snuff them out.
Make a list of all that you do for her. Cross off half of the tasks and tell her she will have to hire them out. (Got this from fellow poster Frequent Flyer).
Maybe being manipulative and difficult is the only way they know how to maintain control of a life that’s now dependent on their children for just about everything?
Being a people pleaser myself, I totally understand what you are going through, the guilt of having to tell someone no, the internal struggle to make yourself happy and feeling like you are hurting someone else in the process, it's agonizing BUT it does get easier! Just keep one thing in mind, from the sound of it your mother wouldn't give a second thought of hurting you for her own comfort and you need to remember that. When our parents age, the roles swap, you are now the "mother" and she sounds like the spoiled brat of a "child" and your new role is to make the best decisions for her health and well being which may include YOU getting time alone and HER NOT getting her way. Set boundaries and reminding her that it is your home and she will have to live by your rules and way of life or you can find her a place that she can live life her way. Stand your ground and get relief from her whenever you can, in fact make a weekly date with yourself to get away.
The real question is how can you create your "happiest environment" while not being overwhelmed by your mom's "take charge" traits. Start by considering what would actually be your "best life", your "ok life", and your "worst life". You'll need to let mom know what is the "worst life" and create strategies for dealing with her when she strays into this area - because it seems to be happening. Also consider how to get more "best life" scenarios into your "ok life". You appreciate "me time," time by yourself, but seem to not get enough of it. How much would be ideal and how much would be ok? Find others to take on your caregiving duties to mom so you can get this need met: friends, family, church, paid help...
Consider other "needs" you have and how to rearrange your current situation so that you live more in the "best life" to "ok life" zones without straying into the "worst life" zones.