Has anyone had to transfer a parent to a different doctors office while they were on Zytiga? Is it possible to transfer to a different doctors office when a patient is on a drug like Zytiga that is so specialized, it's only administered by the doctors office? Dad's prostate cancer has progressed, it's spread to his bones, he was referred to another urology office who could administer the Zytiga. Everything is good with the office, but the doctor. I've gone with dad on appointments even before he really needed me, because he asked. Dad is intelligent but poorly educated, has always had a hard time understanding medical terminology, couldn't fill out his paperwork, says yes to everything in a doctors office, even in regard to when he's asked about symptoms. Can't pronounce prostate. Dad has a minor speech issue, born that way. I've been his caregiver for five years, he's 83, hard of hearing, has difficulty walking, we use a wheel chair. This doctor does not acknowledge me as a caregiver, does not want me to ask questions, does not talk to dad about side effects to watch out for. The doctor has one chair pulled to his desk for the patient and three chairs on the side against the wall always. I ask questions, doc gets angry, like I've inconvenienced him and I'm taking up good air in his office by being there. Doctor has been asked about walking, why doesn't he walk? Dad tells him in his way, doctor doesn't understand or listen. Yesterday dad was asked about his dentures. I said "dentures?". The man leaned up on his desk from a sitting position, put his fists on his desk, leaned over wide eyed and glared me down, took a moderate scolding/correcting stance towards me because I asked why do dentures matter with prostate cancer. My dad leaned back in his wheelchair, and in all honesty the behavior frightened me. I've noticed this doctor was extremely tense from the first appointment. I want to find another urology office closer to home, see if they can request dads medical records, schedule an appointment and see if they can get his zytiga in time without a gap in treatment. I don't want to cause conflict with the current office either, but I feel this doctor will not work well with us when dad reaches a point he needs Xofigo (Radium 223) and he's radioactive and may need to be hospitalized for that reason. We need a doctor who works well with the caregiver as this progresses. Any ideas, or similar experiences?
I've no idea what the doctor's issue is, but he has to accept that you are acting on your father's behalf and asking legitimate questions, and answer you as though you were your father. And you can't afford to let his arse-y attitude get in the way.
Having said that, why challenge a question? I've no idea what dentures have to do with prostate cancer either, but that doesn't mean it wasn't a perfectly good question.
I'm sorry you have this stressful matter to deal with on top of everything else, but then that's the thing to do. Get it *dealt* with, and out of your way.
I hope your doctor can become more responsive. As your father’s caregiver, medical staff should be willing to answer your question. Hope this all works out for you and your dad.
Did you make the doctor aware of Dads hearing loss and speech problems? Doctors like to feel the patient out. They need feed back from the patient. The best thing you can do is just sit and let the doctor do this. When you come into the office, tell the doctor who you are, daughter and caregiver. Dads problems with hearing loss, speach and that as his caregiver you have concerns. If he acts the same way, ask him why.
Are you restricted to what Urologist you can use? Medicare allows you to use any doctor you wish but Medicaid and supplimentals tend to have a network. When you call another office, ask if they take Dads insurance and handle his Meds. Is this doctor an oncologist specializing in urology that is why only he can administer that particular med?
To be honest, now his cancer is in the bone, will chemo help at all?
But seriously, doctors are a sad bunch. Very few care about health, wellness, and side effects. They are just drug-pushing robots.
Don't let this doctor intimidate you. Hopefully you can find a better one.
Q: What's the difference between God and your doctor?
A: God doesn't think He's a doctor.
But the important thing is that this is a little *joke*. I don't know how many doctors you know, but I know quite a few. They might not be surprised by your insulting remarks but they would be saddened by them, and they might well wonder why they even bother putting in the hours, the care and the concentration that they do.
i agree with letting the doctor know up front your dad's disabilities and letting him know you are his caregiver and (I hope) Medical POA and that you will be asking questions. Do this outside the exam room before the doctor sees him. Some doctor's love to intimidate and patronize with their God complex. But if that doesn’t work, in the meantime you have searched out other options and have a fall back.
We even changed in the hospital when Mom was near death. I reported the less-than-compassionate (also irresponsible) care to hospital administrators and websites alike. I wasn’t worried that the doctor was the hospital’s “superstar.”
When Mom recovered, she thanked me for advocating for her. She felt protected and loved.
word of mouth will hurt his reputation as a doctor...and his referrals...
If it's at all possible (insurance, scheduling, etc.), find another doctor, and then fire this one. Your dad doesn't need to feel uncomfortable with this guy - he has enough problems already - and you don't need the aggravation. And if you successfully engage another practice, be sure to tell this one why you're going elsewhere.
As a note--if he really knows his stuff and a very good doctor, I'd keep him. I would much rather have a nasty doctor who knows his stuff than a very nice one who will give you less-than-optimum treatment. Anybody can be nice. Besides you only have to put up with him sometimes.
Please do not worry about causing any problems with the current provider and his office. Your father deserves better treatment, most esp at this stage in life. You do not owe them anything. You don’t owe them any explanation. Gather up copies of his medical record with this practice. Ask the medical record dept for copies and just say, you want it for your records. So when you find a new doctor, there’ll be no need to deal with them.
I hope that you and your dad will finally find a doctor that believes in his calling.
I think doctors have been told a few years ago “patient centered” care or whatever where you look the patient in the eye, don’t speak around the patient but speak TO them. Unfortunately like many people they took that advice too far and now ignore the most loving and trustworthy person in the patient’s life. (I hate it when they flat out ignore me!)
I would ask for a different doctor/PA in the office if you can and then if that doesn’t work, switch companies completely.
As for doctors asking strange questions about dentures and things, I urge you to trust them in this case. My grandma has cancer too, and they have done some bone density treatments and dental health is paramount. Our dentist was kind enough to explain why and how the meds could effect bones in the jaw.
Still, if you have questions like “why do dentures matter” the jerk should at least answer you. Hello? Isn’t that what you pay them for?
Let your fingers do the walking, find one that can meet your need, then do a consult as listed said. You should not have to endure a doctor like that. And by the way, be sure you bring a copy of your medical POA with you to have on file so they know you have the right to act on your dads behalf.
One last thing, since your dad has some challenges, prepare a letter of introduction that explains all this to give to the doctor. I did this with my moms new neurologist and it helped greatly. Maybe if you do that with the current doc, he'll be more understanding. Worth a try...
Now, you are talking about a specialty that may not be as easy to find in your area by the sounds of it which probably limits your choices a bit but there should be another specialist in your area that can and will administer the medication your dad needs. I would start by letting the doctor that referred you to this guy in the first place, you can let them know the details or not and simply ask for a different referral. I would urge you to let them know the issues so they are aware for the next patient that needs this specialty and maybe refer to someone else. Also there is no hope of this guy ever getting better if he isn't made a aware of the problem and sounds like the only way this guy might (I say might) hear the critique or care is if he stops getting referrals. Anyway I would start with the original referring doctor and then maybe ask any of your dad's other providers if they have suggestions too, his PCP or another cancer specialist of his might know the perfect provider with this specialty for your dad. People switch providers all the time so no worries about being proactive about this, being comfortable with your choice in provider is a very important part of the care equation.
All of that said, to some degree it depends on the specialty and situation as to what you might decide to overlook or put up with. Surgeons for instance are notorious for having crappy bedside manners but they don't interact with patients all that much so it may not be as important. I remember my grandmothers heart surgeon was one of those guys but he knew it and had a nurse or PA (I forget the exact credentials) who not only organized him but did 95% of the patient interaction, he was a master in the OR and his right hand was great with people, it worked for us. Sounds like this relationship is going to be a long important part of your dad's (and yours) journey so making sure you are happy with your choice in partners is critical and I am with you 100% on needing to feel heard, you and dad are in charge of choosing his provider, making sure they have all the information and carrying out their orders, which includes knowing what to watch out for and why and the provider is in charge of knowing the medical side, the best options for outcome, both sides are as important and need to be able to work together. Some people prefer to be left in the dark and blindly follow doctors it's what they need, others need to know the why's and what if's just like any relationship it's about providing each other what they need.
According to what you have said & then he's placing his two fists on top of his desk then glaring at you?!?!?! He's fired! Get you a geriatric doctor. Other doctor's can adminster this specific medication. Do it right away.
😮
Wow.
Definitely get your dad out of there. Start making phone calls immediately.
Here is some info. Maybe you can get in touch with them and get the ball rolling. You shouldnt have to be intimidated or silenced. Good luck.
https://www.cms.gov/medicare/appeals-and-grievances/mmcag/grievances.html
Older people do not want to answer personal questions OR the question is not asked properly.
A doctor asked my mom about my dad being a fall risk. She said yes, the doctor was going to change his meds because of it. I found out and let the doctor know my dad was in a wheel chair in memory care. Mom said: Well, he fell all the time when he lived at home. 🤦♀️
HOWEVER....a HUGE part of their jobs is 'whole-person' treatment. I've had far too many encounters with far too many drs with my DH and all the crap he's been through.
Drs. WORK FOR YOU. Remember that.
After my DH's liver transplant (miraculously, he didn't die because ONE dr actually took charge and actually called us back and actually LOOKED at DH's thrice weekly blood tests....) I could not WAIT until we hit the end of the year mark and could 'fire' the entire team that was caring for him and moved to a different hospital, clinic and group of drs. The peace we felt from these drs was night and day.
There were plenty of things I could have complained about, but in the end, the surgeon (who was the doc who stepped in and really watched my DH, even though it's not part of his job) did in fact bring about a miracle with the transplant of an organ that was waaay too small for my big guy. I didn't want to burn bridges and be one of "those" people. We had enough stress in our lives.
4 months after we'd move to a new clinic , I got a call from the transplant coordinator (total waste of space)..she says "Oh, hey, we haven't seen B's labs since December. Did he die?" She was SERIOUS!!!!!!!!!! He was still having blood draws every single week. NOBODY in their clinic even noticed.
I told her we'd gone to a different hospital and she should have known that because he got copies of all his records and HAND CARRIED them to the new clinic. Also, I did tell her that she had been of absolutely no help whatsoever, and I said I hoped I never saw her again. Hung up on her with gusto.
As for myself, if I get a dr for some reason who is not listening to me, who doesn't bother to even listen to my heart and check the 'basics', I will fire them.
life is too short to be dealing with a jerk as a dr.
2 of my kids are Drs. I can say that they both take their oath very seriously. In fact, my SIL became a transplant specialist BECAUSE he watched the drama we went through with DH's transplant and the following issues. He gives amazing care, above and beyond. Even tho he tells me that only about 25% of his patients actually comply with care--he still works many hours to take care of them all.
I go with my DH to his cardiologist appts. The dr WANTS me there. Dh doesn't. but I go anyhow. I love that he includes me and asks me questions and lets me have a say in what'd going on. I do not go to the transplant clinics anymore--but he'll be seeing this cardio doc forever, so I am glad I have a good relationship with him.
Yes-everybody has a bad day now and then but you still have to buck up and DO YOUR JOB.