My husband, in a middle stage of vascular Alzheimer's, is great at "showtiming". It's an Alz Assn term for the ability to rally for short periods of time, like a dinner party or a doctor's appointment. The effort of it, however, makes him crash afterwards. This year, at Thanksgiving, EVERYONE told me that Henry seemed "fine." And he did, sort of. (Until later, back at the hotel when all hell broke loose.) I find myself resenting Henry's superpower of acting normal around others only to fall apart around me. It makes me feel more isolated. As if I am making up Henry's illness. Anyone else have this same experience?
This perspective can help you cope.
Wives often make their hubs look good even without Alzheimers.
Only you know.
However, EVERYONE mentioned he seemed fine. Maybe they were attempting to make you feel good, not judge you. They were judging Henry. If he were actually fine, NO ONE would have needed to say he seemed fine, imo.
Take better care of yourself this week.
My LO was described to me as functioning in something like a delicate donut of social adequacy, cracking jokes, asking superficial but somewhat suitable social questions, facial expressions of sympathy or humor or even comprehension, when her memory span is typically only a few minutes.
Given that explanation by a trusted professional trained in geriatric psychiatry, I can give close family and acquaintances a brief idea of what I KNOW about where she is really functioning cognitively.
I certainly understand your resentment. It is TERRIBLY painful to see my LO seemingly being as she was in her prior life, while I now deal with the tragic lapses that demonstrate to me how she actually is now, in her dementia stained present, but it is also MUCH less difficult to let the uninformed comments go now that I am fully aware of what she does and why it happens.
People who would think you were making up what is happening in your life with your husband really are not worth ANY concern on your part.
I make some of the decisions regarding my LO”s activities based on protecting her from feeling pressured to be “fine”’ because as you have experienced, the aftermath is becoming too difficult for us both.
Be proud of yourself and release yourself from the resentment as often as you can. How many of those from whom you feel criticism would trade places with you in caring for a LO wit dementia?
My 97 yr old mother seems to have selective memory. In the past year it has gone downhill considerably. She is living in AL (2 months) and isn't happy there and wants to continue to live with family. Since she's been in AL her memory is much worse, some of it contributed to kidney failure from the wrong medication. She has gotten into the habit of immediately saying "I can't remember" whenever I ask her a question about her activities, meals, visits, etc.. I now ask her to take a moment to think about it. Usually she comes up with an answer. Sometimes it will pop into her head an hour later. Am I wrong to press her to remember? I feel as if she's being mentally lazy, but more often than not, she will remember if she pressed.
Now she has Alzheimer’s and it is even worse. So my anger with this has led me to seek counseling and it has helped tremendously. She moved in 5 years ago with me (before Alz) and my husband and son saw right through it. I keep hearing from everyone that this is only gonna get worse and to be honest, I don’t know how much more I can take. I only have one sibling who lives far away and have no other family around. But I just wanted to let you know that I TOTALLY understand what you are going through!😢
has been different around others my
entire life as well.I do get it.It May take 3 days to get her out of house to go to Dr’s or funeral.But she gets
there and is a fine actress.Then after
she is exhausted, staying up all night
raiding the fridge.Quick tempered and argumentative.This website has been sooo helpful.The Emperor has on No clothes! Yeah, that’s what it’s like😢
Can't win for losing...
I think if people do not have an immediate loved one or in the medical profession they do not know the full dynamic of this disease, or what caregivers go through physically and emotionally.
When I did have doubts, I would refer to the neurologist report and MRIs. That throw me back on track pretty quickly.
One more thing - some people are made uncomfortable by witnessing a decline. They don't want to lose the friend or they don't want to envision themselves declining (they project) so they gloss it over and cover it up so they don't have to get too deep into it. Or, if they notice, they may feel obligated to help out.
As time goes on - it becomes necessary to get our validation for what we are going through from others who have gone through it before or our own close immediate circle who are likely more tuned in.
He'd be so fun, conversational, and wonderful to be around the first couple days. Then on the day before we left or the day we were supposed to leave, he'd do his damndest to pick fights with me or other relatives. He'd start repeating himself over and over and say offensive (often racist or sexist) things or use personal attacks to make one of us lose our temper. Then he'd run off with his wife who would act like *he* was the personal victim. He has been focusing on me more and more over the years.
Once or twice DH took his side, but then he started to see the bullying, too.
This past visit, I figured it out and realized there was a pattern... I think FIL was getting tired out from showtiming, and that is why he'd turn into a crazy trolling bully. So a couple days ago, I pointed it out to DH before it happened. DH was a bit skeptical at first, but listened and agreed we would leave if it happened again.
The next day—right before we were about to go home, FIL tried to pull the same stunt—directing his anger on me. DH swooped in and got our family out of their house like bats out of h*ll. Then DH apologized to me.
I'm thinking I'm going to talk with DH next week about showtiming... maybe see if I can find some articles on it. I hope this helps him understand how badly off his dad is. There are plenty of other signs, but I swear I have felt like the child from "The Emporer's New Clothes" story for the past 10 years.
None of his meds seem to help with this problem and I am at my wits end.
Then he really goes off, refuses to shower, refuses to let anyone wash his clothes, gets everything all mixed up.
So you are not alone-it really is crazy-making.
We believe you.