Well, my mother transport to the rehab facility. I was told by the hospital that once her weight improve the tube can be remove. The feeding tube was being run from 8pm-6am, then getting breakfast, lunch and dinner at 8am, 12pm and 5:30pm. My mom is complaining about being full and vomiting. So her weight was 150 lbs and now 161lbs in two weeks. They have repeatedly turn the feeding tube on early. My Mom is eating but she has never eaten in her lifetime a full course meal for breakfast, lunch and dinner. Her weight have always been 155lbs to 165lbs. She is small build woman. These people at rehab refuses to remove the tube. They refuse to bring my mom to the toilet, honor the POA. They have lied on my mother and this point I am ready to take her out. They don't care about my mother. They told me I have to have a meeting. At this point, my mother wants to leave.
Attend the meeting. There needs to be communication.
Your mother won't be eating a normal intake while she is getting tube feedings, because she will feel too "full" to do so. Other than that there is no substantial harm being done. So just await the meeting. There is something here that's being missed. I am curious if they are administering medications via this route that Mom will not otherwise take?
You will know more after the meeting. Your approach should be calm, gentle, and do consider bringing a friend to take notes for you if that is allowed.
Hope you update us with more after that.
That said, after lots of specialized swallowing therapy he began to eat a modified diet again. I continue to tube feed one or two meals daily mostly for convenience as well as minimize his risk for aspiration. If we were not using the tube for feeding, it would need to be flushed once or twice a day to keep it open.
Facilities are scrutinized if residents lose weight so they may be reluctant to take that risk. You might suggest they discontinue using the tube for feeding to see if she maintains her weight. This way, the tube is still there as long as they flush it daily and it can be used again if she has a sudden weight loss. It could also be used to continue administering her medicines if they are already using the tube for that.
I would see what they say at the meeting. Also, call her PCP.
The one way you maybe able to get it removed and her home is to ask for a Hospice Evaluation. If Mom fits the criteria, they will have to remove the tube because its considered an extreme measure. Then you can take her home on Hospice. Once home you can cancel them but you may find you like them. A Nurse checks on Mom 2 or 3x a week. An aide to bathe her 3x a week. How long may depend on how large the Hospice is. One member said she got 4 hrs for every aide visit. Where I live its an hour. You get depends, prescriptions, equipment, etc. Just be aware, no extreme measures will be taken.