Hi, new here. I am an RN, single and lived in a beautiful mountain area. I have moved to suburbia (don't like it as I am a big outdoor person) to care for my elderly mother. I still have my home in the mtns. which needs major repairs and I am caring for mom 24/7. She has always been critical of me and made me feel bad in many ways thru the years. As much as I miss my home, I am OK being here as she needs the care. But, when I mentioned that I would need financial help for my mortgage, etc. and just money for things like my car fuel, upkeep, etc. never mind just some extra for me, she balked at $500/wk. My mom can easily afford this but thinks it is WAY too much.
Is the amount I asked for too much?? She'd pay a lot more for an aide or companion. I don't want to be rich (evidently) but be able to have a little spending money for me. I feel hurt. I have already saved her life by holding some of the meds the MDs discharged her on which would have dropped her BP to 0 if given as prescribed. I don't want an award, just for her to appreciate my value and that I care for her enough to give up my life and she should care for me in this way.
However, parent at his Age, Tend to be Tight Fisted and maybe you Both can Come to some Other Fair and Square Agreement of 350 a week.
I do agree you should be Compensated but Maybe if You Hold this Cozy Care Carrot over her Nose, She will finally Bite, Hope I'm Right.xx
You will never get her to appreciate you no matter what you do, because she doesn't. If she is 100, she has lived her life, place her in a home or let her hire a RN team, don't give up your life for her, this makes no sense whatsoever to me.
She is living in the 1950's when 500 a week was a lot of money. If you decide to stay, then charge her 1k a week, it still is a real deal, don't short change yourself.
And it will get nothing but worse as time goes on.
And if you do accept this role - be prepared to be treated badly and not appreciated.
If I could, I would do it for free, but we all have expenses. I just look at it as an allowance every week for helping out.
If mom is not wanting to pay you your "allowance" of $500/week, which is more than fair. Then hire an outsider, she'll pay much more, you'll have peace of mind, then maybe after awhile she'll understand that she was better off with having you at a discounted rate. It's tough when parents treat kids wrong. I guess I got lucky. I wish you all the best.
Trust me on this....
If you are giving up employment to take care of her, of course you have to have some income to continue payments on the previous home as well as for misc items. So that amt is not much to ask for since she can afford to pay to have someone she knows in the home with her.
Give her some facts to think about - what an outside person would charge per number of hours she needs someone, what a facility would charge per month if you were not available to help, etc. Then let ask her to decide which one she would like to do because it appears you need some income to pay your bills.
If you are not needed 24/7 and plan to work while you're with her, are you just going to be there spending nights with her?? only needed in the evenings?? If you are getting a job and just staying nights with her, it might be considered too much.
At the same time, I would show her an alternative - either in home care or an assisted living situation. Before you do that, make sure the option of things continuing as prior to your moving in is not an option - older folks in this situation will not accept that this change is necessary.
As an aside, I think many of us on this site would agree that $500.00 per week is more than reasonable on your part, especially for a nurse providing 24/7 care. My dad's independent living apartment (cleaning, TV, utilities, and 1 meal provided per day) is about $130.00 per day, and personal assistant aides are on top of that. Double that for assisted living facilities
It sounds like you are doing what " needs to be done."
Is she able to tell you what she wants.?
I am concerned about your being taken out of "what you want". You are not going to be able to be the "care giver" your mother needs with your personal wants and needs unmet. You may need help in understanding that last sentence. I have observed Nurse' that bring their problems to work and it affects every part of their care for the patients. Spend her money on a full time person and you can supervise.
If you find yourself in a situation that won't improve because of her stubbornness or inability to recognize the sacrifice you are making on her behalf, than go home and have the piece of mind that you did your best. Rest assured at this stage in her life the chance of her doing a 180 for appreciating your efforts is remote. If you continue to care for her under these circumstances only bitterness and resentment will follow. Save yourself from this emotional turmoil.
Is mom mentally incompetent? If not, she does have the right to refuse care. You also have the right to decide on what kinds of care you can provide and the cost. Think of this as negotiation time not as anything set into stone.
I would like to save some $ too. I think my mom thinks I shouldn't need to be paid b/c I am her daughter. I also think she probably thinks that it is my own fault that I am not wealthy enough to manage this on my own.
You might want to assess mom's legal situation and what papers have been done or need to be while consulting with an elder law attorney who works for a flat rate per task. Even to consult for yourself to protect your well-being financially. There is an exception rule about an adult child who lives with a parent and provides care for 2 years preventing the parent from being in a nursing home that may factor in. Keep some notes/log
Remind her, if she brings up caring for her own mother, that she just provided space in her own home for her mother, not care-giving.
Remind her that you have expenses of your own that you cannot cover without employment.
Remind her this isn't 1950, when things were much less expensive!
Give her that breakdown of what the $500 gets her (24/7 RN at less than $3/hour!)
Tell her how much you are losing by not working.
Tell her that you would prefer to be her care-giver, but not her slave.
In-home care, no matter where you live, isn't cheap. It varies by region, but where you are it is likely AT LEAST 25$/hour. THAT is only for aides, who cannot administer medications. We set up a timed dispenser and all they could do was check to see that she took them, and if not, point her to them. If she needs more than just personal assistance, that rate will go up, and it goes up even more for nights, overnights, weekends and holidays. Provide detailed information to her from several agencies about what they charge and what services they provide.
AL isn't cheap either. We had to go to MC, so our cost is much more, but it will still be MUCH more than $500/week AND depending on her actual needs, she might not even qualify for AL. In that case, the only option would be NH, which is even MORE expensive than the MC cost for our mother (just shy of 8k/month this year - I checked a local NH and it was more like 15k/month!)
Moving to your place would be akin to her caring for her mother, except she is older and has more needs. This might not be the right answer for you. More than likely it would result in selling her home and that could rattle her and other family members (not sure if it is siblings, but you implied there are others and they feel it is your job. Common. Wrong, but common.) If they are not there to help or make reasonable suggestions/decisions, ignore them. If they persist, tell them it is their turn and that you are going home.
IF you can make her see sense, definitely get a proper care-giver agreement set up, preferably through an EC attorney. Covers your butt for many issues (siblings, potential need for Medicaid, etc.) The attorney might even be able to make her see how little this is and suggest paying more. He (or better yet, talk to an Enrolled Agent) might be able to advise you on tax implications. From the little I checked, you may have to claim this as "other" income and pay taxes on it - if so, paying quarterly estimates is recommended, otherwise you could end up with a large tax bill AND a penalty.
When searching for MC, my brothers got the "sticker shock." Both immediately said Gee for that kind of money, I'd take care of her myself! ME? No way Jose. It would be more than 5700$/month more than what you are asking and it still wouldn't be enough to convince me to take this on!!! Could I use the money? Sure. Do I want that to be my cause of death? Nope.
Given your mother is 100 yo, one would hazard a guess it might not be a long time stint, but beware - if your home is unoccupied more than a short time, you likely need a special insurance policy (if you have family living there, disregard this.) When we moved mom, it took almost 2 years to get her condo ready to sell (it was a life estate, so that was another whole ball of wax, but it was costing a minimum of 14k between RE tax and condo fees to keep it!) In the meantime, it was unoccupied, and we had to get another special homeowner's policy. Shop around if you need this.
In summary, definitely lay out her options. Let her choose - if she refuses to pay you, I would help her make other arrangements and Exit Stage Left!
To get that appreciation, you'll have to look in the mirror. YOU know what you have done and will be doing for her - knowing you did the right thing is your reward. It is nice to get acknowledgment from others, but often this doesn't happen. Whether it was a job I had or feedback from helping someone (including mom), I most often got my "reward" in knowing that I did my best!
WE know!!! :-)
(This applies even if the decision comes down to finding other arrangements for your mother. Don't let anyone guilt you into staying if it isn't right for you. You have done your best, and to continue doing your best, you might need to step back, let others take over the daily care and be her advocate - despite there being 3 of us, all the non-hands-on work falls into my lap. Only recently have I requested YB take over medical/dental trips. Mom is refusing to walk and I cannot support her weight. Everything else (and there IS a lot! He doesn't get it, but most of us are aware!) still falls to me. Thankfully, although I get no help with it all, they also don't stick their noses in and make my existence even worse!
That's a lot of dough, and what you're asking for is not even minimum wage.
But when my loved one was in the hospital, and the nurses asked all the embarrassing questions about his health, bowel movement, and activities accompanied with it, I had to step out of the room. I see him in a certain light, and seeing him in a vulnerable and even helpless situation doesn't sit well with me. I respect and love him enough to let him keep his dignity for as long as time will allow, and when those details come in later, I'll deal with it then.
Do you think she needs her daughter more than a nurse?
She maybe procrastinating you caring for her because of the stripped down, no dignity way old age and loss of strength brings with time.
Does she need someone to hold her hand, cry with her, be angry with her rather than be the technical nurse she knows you are, but wants to keep her dignity?