Hi everyone. I'm a teacher so I have a few weeks off in the summer and I'm trying to help my dad with my mom who has Alzheimer's. My mom was always difficult. She could be cruelly mean when I was growing up, and tended to become angry for no reason, and leave the family if she felt she was slighted. My dad is old and not in great health, so he really needs my help. My mom expects him to do everything for her. I feel she should be in memory care for her own safety and the safety of my dad, but my dad is refusing. Since I've been here she's been very mean, thrown things at me, left the house and refused to come back, insulted the neighbors who tried to help, used horrible language. These episodes are completely unprovoked. I've been very careful not to tell her what to do, or to step in when I think it may not be welcome. She almost looks gleeful when she's doing it. It reminds me very much of how she behaved growing up. My question is, how much of this is her disease, and how much of this is just how she is? My dad is sweet and has always loved her despite her difficulties. Any tips on how to get him to accept more help?
However, being aware of it doesn't solve your primary issue/concern, which is helping your dad. Her behavior may be directed at you when you are there, but most likely it doesn't disappear like vapor in the wind when you leave. It would be directed at your dad. Sadly he seems willing to accept this abuse.
The best you can do directly for him is to keep encouraging the idea of getting help, even if it means moving her to a facility. There might be medications that can take the "edge" off her abusive behavior without leaving her "doped" up. He needs to get her to the docs for a full workup and perhaps some additional testing in order to try medication.
Meanwhile, you can do the "leg work", checking out various places in the area. This can start with online, but should include in person visits. Tours are nice, but are "prepared", so can be a little misleading. If they allow visitors, go back at different times to observe. Keep a list and make notes. In particular, if there are any that offer "respite" care for a week or 2, highlight those. Then see if you can get him to just try one time, to get a break, which ANY care giver needs. Help him to understand these are not the old NHs of bygone days. Many MC units are very nice, have good staff, clean places, good food (you will hear the opposite from a few on this site - yes, there are crappy places, but that's why you check them first!!!) and entertainment.
Stress to him that he can still visit her, stay all day if he wants, help her with tasks, join her for meals, whatever he wants, but can go home to unwind at the end of the day. Visiting should be used often if the move is permanent, as much as he can handle. During respite, it might be best to encourage him to stay away, at least for a few days. Remind him that no one person can care for another 24/7 without impact on the body and mind. It's hard on younger people, it can be a killer for older people!!!
Stress also this isn't giving up on her, it's about getting help HE needs, so that he can be there for her, be her loving husband (although he'll still likely be her whipping post too.)
If nothing works, and he's unwilling to move her, then you can try bringing in hired help OR have to wait for the inevitable bus crash lealonnie1 mentioned. Hopefully you will have the tools you need (list of places, etc) prepared so that it won't be a scramble to get anything accomplished when that bus crash happens.
Do stay in touch with him, perhaps daily or more often as often as needed, to check on things. Stay out of mom's line of sight - no need to be a target! Even if you are, it likely doesn't take your dad off the target list, it just gives her more targets to aim for!
Hope you can eventually get through to dad. He needs a break.
1 - Is your parents' living situation safe and healthy?
I would consider that your mom's behavior is not safe for herself and maybe not for your father. Her behavior is partially mental health issues and probably part dementia. Please ask her doctor for referrals to a neurologist (for evaluation and treatment of dementia) and a geriatric psychiatrist (for evaluation and treatment of mental health issues).
2 - Are your parents still mentally competent?
Please make sure that each parent is evaluated by their doctor or a neurologist annually for mental competence. Sadly, 75% of seniors 75 years old and older have some dementia issues. If you notice dad having mental competency issues, it may be time for them to have caregivers 24/7.
Now, if there really gets to the point where your mom or dad doing physical damage to themselves or to each other. At that time you could call Elderly Social Service about your concern but once they step in, they can basically do what they think best and that might not be what you want.
So, as ling as they both have their mental faculties. You need to just step aside as it's between your mom and dad.
Just let your Dad know you're there for him when he wants help.
Did you miss this in OP's original post, second sentence??
"...my mom who has Alzheimer's..."
Don't think mom has her "mental faculties"... well, she HAS them, but they ain't working right!!!
think about your position and how much you are prepared to take. She won’t change!
Dad may have good years left but when you leave, there will be avalanche on him. Make sure someone is POA before you leave offer to help with his care if she is placed. But, my mom is bipolar with ALZtrust me that looks very diff as they age and it’s not pretty. There are other types of dementia that are dangerous look at lewey body she needs assessed immed .
There is no way to win this. Just boundaries as best as possible. Though when we/sibs distance... and we do, some more than others... then the complaint is that we are abandoning her... " just like your father". I just repeat the serenity prayer..... and "honor thy father/mother" mantras.
Good luck
For those who need a laugh, search for serenity prayer joke
There are many more than the "original" I found funny...
To HIM, it's normal. To me, reading about it, I'm think she's long past the case where she can function in society.
However, it's DAD who is calling the punches. I'd be a persistent pusher who was quietly checking out MC facilities and talking to dad about moving her.
He's probably terrified of her. My FIL was absolutely scared to death of my MIL, who finally divorced him after 42 years of the worst marriage on record. He had 14 years of peace and actually had some joy in his life.
MIL lives alone and has ONE friend. ONE. She allows no one in her home but her daughter and openly says the nastiest things I've ever heard about people she hates (everybody, really).
It did take us YEARS to get dad to leave and forge out on his own.
Be a support to dad and hopefully help him to find some joy in life. Being called nasty names in your own home has to be painful.
I agree with you that you are going back home. Your dad is in denial. Be honest with your dad that you cannot help him as long as he chooses to keep her home. You can help him figure out their finances. You can help him get in-home help - housekeeping, meals, etc. - so that he doesn't have to do everything. You can help him find memory care. But you can't help and enable him to do nothing.
Your dad deserves some peace and enjoyment of life however much of it he has left. Caregivers often die before those for whom they are caring. Express these concerns to your dad. Maybe that will nudge him in the direction he needs to go i.e. placing his wife into the level of care she clearly needs. Her needs are only going to increase.
My father was a good man; had the patience of a saint. He was never 'good enough' in my mother's book, either, and she let him know it. Daily. Yet he stuck up for her ALL the time. Drove me nuts. She'd treat him like dirt under her feet and if I called her out on it, right to her defense he'd jump!!! Then she'd put on the Poor Me Act and off we'd go, straight to the nuthouse. So I'd back off and let dad deal with the mess himself. That's what he wanted, right? He made that bed, so he could sleep in it! Towards the end of his life, as her dementia worsened and so did her sharp tongue & teeth, dad got aggravated more and more, and the fights got pretty bad between them. More than a few times my DH and I were called to their AL to break up the fights and calm them both down. Then dad passed away and mom pretty much didn't bat an eye. She was too excited about the man down the hall who invited her on a cruise. Nice, huh?
Anyway. My mother was always a mean and nasty woman when I was a kid and she's a meaner and nastier woman now that I'm 64. When she gets into one of her tirades, I leave her presence or hang up the phone (she lives in Memory Care but 'doesn't belong there', of course). I don't put up with her nonsense b/c she knows FULL WELL what she's doing and gets joy from it. She pokes me like crazy and gets a kick out of doing so! I don't have to take it, though, and neither do you. If your father wants to stand in the fire, that's HIS prerogative. Just like it was my father's.
When your father reaches the end of his rope, he'll be calling you to ask for help. That's when he'll be ready to cry Uncle and you can actually do something to help him. In the meanwhile, he's a glutton for punishment and willing to put up with his wife's behavioral histrionics, as he's proven for all this time.
Good luck!
Some of my most stressful caregiving experiences became very good learning experiences.
My takeaway was to stand well back from the looming bus crash - I would be of more use as a bystander calling for assistance than if inside the wreakage.
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Has she physically hurt your dad yet?
Do you live in the the area or are you visiting them?
What, you're all sitting there peacefully watching t.v. or eating your suppers, and out of the blue she chucks the salt cellar at you?
My guess is that by completely unprovoked, you actually mean completely unjustified. You can be sure that, in her mind, there is provocation. No doubt nobody else would see it that way, but that's not the issue. She does.
Alzheimer's Disease on top of an unaddressed, unchallenged and presumably undiagnosed personality disorder, or at least difficult personality traits: you're not going to solve that problem in a hurry. But what you can do is shift your focus to protecting your father.
Write a list: what are their respective care and support needs?
What do you think it would take to convince your dad to consider placing your mom in memory care? How have you approached this so far?
You are kind to help your father. He certainly needs help. I understand this but what if you told him something like, ‘Dad, this isn’t working for any of us and I can no longer help you.’ Do you think that would cause him to consider placement? I realize that it isn’t easy to step away from helping him but it may be what it takes to force him into placing your mom.
Have you contacted Council on Aging in your area, or a social worker to speak to your dad? Is he in denial of her condition? Does he know that this is a burden on you? I know that you want to help but he’s asking for a lot from you. Stepping away doesn’t mean that you don’t love your parents. It actually means that you want the very best for them.
Wishing you peace as you navigate your way through this challenging situation.