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Hi everyone. I'm a teacher so I have a few weeks off in the summer and I'm trying to help my dad with my mom who has Alzheimer's. My mom was always difficult. She could be cruelly mean when I was growing up, and tended to become angry for no reason, and leave the family if she felt she was slighted. My dad is old and not in great health, so he really needs my help. My mom expects him to do everything for her. I feel she should be in memory care for her own safety and the safety of my dad, but my dad is refusing. Since I've been here she's been very mean, thrown things at me, left the house and refused to come back, insulted the neighbors who tried to help, used horrible language. These episodes are completely unprovoked. I've been very careful not to tell her what to do, or to step in when I think it may not be welcome. She almost looks gleeful when she's doing it. It reminds me very much of how she behaved growing up. My question is, how much of this is her disease, and how much of this is just how she is? My dad is sweet and has always loved her despite her difficulties. Any tips on how to get him to accept more help?

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In my experience, dementia/ALZ takes what a person used to be and makes it worse. Takes a mean person and makes her meaner, for instance. Like my mother. She's 94 with moderately advanced dementia. She's always been mean as a snake but able to HIDE it behind a pretty little mask. Now with dementia, that mask is deteriorating & the sharp teeth are harder to hide. The mask slips more and more and the things that come out of her mouth are uglier & uglier. Cursing too, like your mother. It's always been there.......just hidden. Now we get to see the REAL JoAnn in all her glory & boy howdy, it's ugly.

My father was a good man; had the patience of a saint. He was never 'good enough' in my mother's book, either, and she let him know it. Daily. Yet he stuck up for her ALL the time. Drove me nuts. She'd treat him like dirt under her feet and if I called her out on it, right to her defense he'd jump!!! Then she'd put on the Poor Me Act and off we'd go, straight to the nuthouse. So I'd back off and let dad deal with the mess himself. That's what he wanted, right? He made that bed, so he could sleep in it! Towards the end of his life, as her dementia worsened and so did her sharp tongue & teeth, dad got aggravated more and more, and the fights got pretty bad between them. More than a few times my DH and I were called to their AL to break up the fights and calm them both down. Then dad passed away and mom pretty much didn't bat an eye. She was too excited about the man down the hall who invited her on a cruise. Nice, huh?

Anyway. My mother was always a mean and nasty woman when I was a kid and she's a meaner and nastier woman now that I'm 64. When she gets into one of her tirades, I leave her presence or hang up the phone (she lives in Memory Care but 'doesn't belong there', of course). I don't put up with her nonsense b/c she knows FULL WELL what she's doing and gets joy from it. She pokes me like crazy and gets a kick out of doing so! I don't have to take it, though, and neither do you. If your father wants to stand in the fire, that's HIS prerogative. Just like it was my father's.

When your father reaches the end of his rope, he'll be calling you to ask for help. That's when he'll be ready to cry Uncle and you can actually do something to help him. In the meanwhile, he's a glutton for punishment and willing to put up with his wife's behavioral histrionics, as he's proven for all this time.

Good luck!
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Your mom has Alzheimer's. Questioning whether or not it's "intentional" doesn't really matter when you're dealing with a brain that is broken.

I agree with you that you are going back home. Your dad is in denial. Be honest with your dad that you cannot help him as long as he chooses to keep her home. You can help him figure out their finances. You can help him get in-home help - housekeeping, meals, etc. - so that he doesn't have to do everything. You can help him find memory care. But you can't help and enable him to do nothing.

Your dad deserves some peace and enjoyment of life however much of it he has left. Caregivers often die before those for whom they are caring. Express these concerns to your dad. Maybe that will nudge him in the direction he needs to go i.e. placing his wife into the level of care she clearly needs. Her needs are only going to increase.
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What if you used the question: dad, what happens to Mom when you go? Wouldn't you rather she was settled in a good memory care unit so you would know she is being taken care of?
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I am sorry you and your dad are going through all this with your mom. I agree she should be placed in memory care. Her disease will only progress and get worse .Perhaps you should have a family meeting with her primary care and discuss placement, social service should get involved. Sad situation. You dad is devoted to her but in her best interest she really needs professionals to help her. Sending a prayer to both you and your dad. Hope things get settled soon.



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Thank you! I feel guilty, but I am going to go back home. I will come back if my dad is willing to take next steps. Thank you for taking the time to respond. This has been very stressful.
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Beatty Jun 2021
Once home, once you have some distance (physical, mental & emotional) you can start some reflection.

Some of my most stressful caregiving experiences became very good learning experiences.

My takeaway was to stand well back from the looming bus crash - I would be of more use as a bystander calling for assistance than if inside the wreakage.
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Has your Mom been evaluated for UTI? What suggestions have you made to Dad other than placement in facility? What ideas does he have for help? Is the care of mom manageable for him under normal circumstances? You say Mom has ALWAYS been very difficult. Despite that your Dad and she have stayed together, and that is his choice. I would simply cut your visit short, and do let your father know in private that you are open to help him when he decides your Mom should have further evaluation, or ask him to let you know how you can help him. You cannot make the decision for him. It is his to make. I would not visit a lot if your visits agitate your Mom. This may be harder for your Dad, or it may make his life easier. Ask him.
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I would actually fear for your dad’s safety. A mean and violent person is capable of anything. In her mind her actions are justified. Your dad isn’t ready but by the time he is, it could be to late for him. I would keep talking to him about placing your mom and make him see that his own safety is a concern.
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AT1234 Jul 2021
My SIL developed LewyBody, she would get up in night and get butter knife and stab husband not deep but repeatedly. She’d hit him with things he finally had to lick her in room to sleep in another part of the house. Complete reversal of personality these dementias are horrible.
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I am so sorry that you are dealing with this, especially since she has always been temperamental. I feel for your dad too. It is a shame that you and your father are walking on eggshells all of time.

What do you think it would take to convince your dad to consider placing your mom in memory care? How have you approached this so far?

You are kind to help your father. He certainly needs help. I understand this but what if you told him something like, ‘Dad, this isn’t working for any of us and I can no longer help you.’ Do you think that would cause him to consider placement? I realize that it isn’t easy to step away from helping him but it may be what it takes to force him into placing your mom.

Have you contacted Council on Aging in your area, or a social worker to speak to your dad? Is he in denial of her condition? Does he know that this is a burden on you? I know that you want to help but he’s asking for a lot from you. Stepping away doesn’t mean that you don’t love your parents. It actually means that you want the very best for them.

Wishing you peace as you navigate your way through this challenging situation.
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CyndeeLou Jun 2021
Thank you so much. I have done all you suggested. I think my dad will only make a move if the situation becomes severe. Unfortunately, they've been doing this dance for more than 50 years, but it's nice to hear some words of support. Thanks again for taking the time to answer. This has been stressful.
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"dad will only make a move if the situation becomes extreme"---um, from what you say, it's BEEN extreme for some time.

To HIM, it's normal. To me, reading about it, I'm think she's long past the case where she can function in society.

However, it's DAD who is calling the punches. I'd be a persistent pusher who was quietly checking out MC facilities and talking to dad about moving her.

He's probably terrified of her. My FIL was absolutely scared to death of my MIL, who finally divorced him after 42 years of the worst marriage on record. He had 14 years of peace and actually had some joy in his life.

MIL lives alone and has ONE friend. ONE. She allows no one in her home but her daughter and openly says the nastiest things I've ever heard about people she hates (everybody, really).

It did take us YEARS to get dad to leave and forge out on his own.
Be a support to dad and hopefully help him to find some joy in life. Being called nasty names in your own home has to be painful.
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Hi, my mother was always viscous and cruel to me when I was a kid and it continued all my life. My husband and I would go round , despite her having carets in 4 times a day and never know what we were going to get. She was absolutely vile. I put 6lbs on once after Christmas and she was in such a rage she started foaming at the mouth ! I started to do some research and came to the conclusion that she had Narcissistic Personality Disorder. Her behaviour was a classic fit for the symptoms of this disorder. It really shocked me but was the only thing that made total sense. My dear Dad also enabled her. As she got older she just got worse and worse until I decided that in my 60s I was no longer prepared to put up with the abuse. After one particularly bad visit where she was beyond evil because of some imaginary slight or other ( she wouldn’t tell me what I had actually done, but that was part of the game), she told me to get out and never come back. That’s exactly what I did. She died in hospital 5 months later, I arranged her funeral but did not go to it. The relief of her death was overwhelming and I have never ever regretted not seeing her before she died. Many people find this very harsh but believe me when I decided I was no longer going to allow her to abuse me, it was the best decision I have ever made!
think about your position and how much you are prepared to take. She won’t change!
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guiltandanger Jul 2021
I can relate to the experience you described. In my 60s, here was a horrible incident at my mother's house where she said things to me that no one else would have endured. I could feel my heart beating so fast I knew I needed to leave. I picked up my purse and said I was leaving. She screamed at me for leaving. I drove to the parking lot of my pharmacy because I needed to pick up some prescriptions. I couldn't get out of the car for thirty minutes because I could not stop crying and my heart continued to race. I truly thought I was having a heart attack. I tried deep breathing, and eventually I was able to go inside the pharmacy. I decided that day that I would never subject myself to my mother's abuse again. It was always mental or emotional abuse, attempted guilt trips, manipulation. I decided to limit my contact to phone calls, continued to handle her finances (bill-paying) online. I would not go to her house. On the phone, I told her that if she started being abusive that I would hang up. I did that many times. It broke my heart that I could not have what I thought of as a normal relationship with my own mother. Anyway, my point is that once I decided not to tolerate her abuse, my anxiety decreased dramatically. I never had another "heart attack" (panic attack?) feeling. I didn't feel guilty about not going to visit her in person (I thought I would). She was a very negative person for many years. She could hold a grudge forever and never tell the person what the grudge was about. She passed away a year and a half ago. I just recently went through some of her envelopes full of papers. I found a letter I had written to her years ago offering to do things with her because I thought she was lonely and acting like she was miserable. She wrote on the last page "you don't know what you're talking about". She wrote on the outside of the envelope "save forever". I guess that was one of her grudges she intended to hold forever. It sort of hurt my feelings, but mostly it made me sad to think of all the lost opportunities to enjoy life.
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