My FIL was swtiched over to hospice way, way too early. He was cathing himself and then needed a cather put in but his visiting nurses could not do it. He refused to go to the hospital and then one day put a gun to his stomach threatening to kill himself. When visiting nurse found out, they said he needed Hospice to be called in. We asked if Hospice is a facilitate to die organization and was told no.
Hospice comes in and does little. No real help to the family, late to visits, etc. The main thing FIL wanted was pain pills. And more pills. And more pills. And they were happy to supply. Then his kidneys got worse and no urine was coming out when he cathed himself and he kept swelling.
Both visiting nurse and hospice nurses could not get a foley cath in. The social worker came in one day, called my husband and asked how much FIL had in the bank that he was going to a nursing home. They leave and FIL calls my husband and says, "I want to go to the hospital."
The nurse at the hospital got the foley cath in, a tremendous amount of urine came out. That has been close to 3 months ago and FIL is in rehab at a nursing home. Our family had hospice removed because we were told he could not have certain tests done.
We have now received a statement that Medicare has paid $0 on his hospital bill (over 18K) because he was a Hospice patient. Is this billed under a supplemental policy or does Hospice receive a bill and then turn it into his insurance? Anyone else experienced this?
There was a volunteer that came to give him a bath from Hospice. We considered that the only real help. FIL had a helper that came in every day and expressed concern many times to the hospice nurse about the sores on his legs (diabetic). She would wrap them and while she was doing so would ask the hospice nurse, "is this okay....and can you take a look at this because it looks really infected." The nurse would say, "oh yeah, you're doing it find, looks fine, bye." When FIL went to the hospital , the nurse on duty said he had never taken so much fluid off of a patient. They then asked me if FIL had skin grafts. I said no and asked why. They said, "his legs are so badly infected and in such bad shape, we thought he had skin grafts." We later found out he had MRSA, which has since been treated.
The nurse also would schedule a meeting with my husband and tell him, "I really need to meet with you to discuss important information about the progress of your dad." My husband told her he would have to lay off work for the meeting. He would then get to his dad's house and receive a call that she was going to be an hour or so late. Then she would show up and say, "hi, everything is the same, we are giving him more pain pills." Then walk out.
A chaplin showed up in a mini-skirt and said she was, "whatever religion my FIL needed her to be."
We had a 24 hour number which in our case was essentially an answering service.
They insisted my FIL get a hospital bed which he didn't want. So we had to move the majority of furniture out of the living room. He used it once and then went back to his recliner. They said that since we had a young child around FIL (she is 8) that they would bring in counselors, etc. to help her. Never was mentioned again.
I have helped caregive for 3 other people. All who died without Hospice. These were people who were sick for many years. It was actually easier than the experience we had.
What you ARE allowed to do under hospice is treat a condition that is NOT the cause of the hospice evaluation. For example, if the patient is in hospice for Alzheimer's and becomes worse, you can't do anything to trade the Alzheimer's. BUT if the patient comes down with pneumonia, you don't have to but you CAN treat the pneumonia. AND it can be done at the hospital. Because we never had this circumstance, I don't know who pays but I presume it would be regular insurance, not Hospice. The rules for payment by disciple national company is generally that it has to be Medicare approved, so if Medicare doesn't approve the charge, the supplemental won't have to pay either. Medicare COULD approve the charge but page ZERO, in which case the supplemental should pick up the rest.
There are some intricate points at play in this case and since &18 thousand is at stake, you may want to consult with a lawyer before you write the Medicare appeal. As I said above, your complaint will have to be the same incase Medicare denies and you have to file a lawsuit, you can't change your stories in midstream.
legal cause of action... for ENROLLING your dad under false pretenses
during the time WHILE UNDER Hospice
allowed only TO GIVE palliative
consider this facilitating DEATH, don't you?
you can't do anything to TREAT the Alzheimer's
rules for payment by THE SUPPLEMENTAL INSURANCE company
approve the charge but PAY zero
Since $18,000 is at stake.
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RE: HOSPICE
I would like to add there's a world of difference between groups. Our hospice had nurses on call who were in direct communication with the doctor, managing and upgrading patient medication, I health care worker 2 times a week who helped with showering or gave them a bed bath is the case was, and for my mom who just passed in January, the hospice nurse decided my mom was 'critical care' and provided LVNs round the clock 45 days while she was dying. Plez get a list of Hospice is from the hospital, talk to a couple of discharge case managers who work with the hospuce is all the time (since you often are getting a hospice evaluation in the hospital before discharge), and do some interviewing about their services prior to when you need them. IMHO, on top of everything else, you had a lousy Hospice.
Gather your paperwork, check to see why your dad was in hospice, was it for pain because of cancer, for trying to kill himself (a psych problem). Surely a building up of urine (which produces its own pain as well as becoming a medical emergency) and the inability of a nurse to properly cath him, can't in and of itself becoming cause to make someone hospice appropriate? I no I'm not aware of the entire case but this just sounds off to me.
The Medicare regulations that have to be followed are very strict. the Hospice receives a daily rate of payment for each patient and it is often difficult to pay for everything the patient needs within that amount. Some young patients use their primary insurance as long as it has a hospice benefit, otherwise they pay out of pocket on a sliding scale. many hospices hold fundraisers to help defray their costs. Hospices nurses typically are paid less than their hospital counterparts and receive lower benefits. making ends meet is a constant juggling game which explains why certain supplies are sometimes in short supply
The be eligible for hospice the patient must be certified to have a condition that can be expected to lead to death in six months or less. The MD must certifiy this and often will do so as long as they have seen the patient within the last six months. Often a patient's PCP will be a FNP or PA and the MD will never have actually seen the patient. an MD other than the PCP cansign the paperwork as long as they have been seeing the patient and often this will be someone like an Oncologist or renal specialist. Every cost associated with the terminal illness will be covered by hospice at their discretion so if you decide you want to go to the ER for some reason and it is not cleared with hospice first they won't pay.
Putting a catheter in a male patient can be very difficult if not impossible because elderly men tend to have enlarged prostates so there is no shame in not being successful at inserting a catheter but it is easy enough to check the patient for an overfull bladder and take him to the hospital where an MD can evaluate and treat. Hospice will usually pay those costs but if he refuses to come home when ready for discharge, hospice has the option to discharge him from their service. Hospice will continue to care for patients in hospital usually for five days when they will have either died or are waiting for nursing home placement. Hospice is able to continue to care for patients in N/H but only if the N/H allows it and many don't. If the patient leaves hospice normal nursing home Medicare/ Medicaid regulations apply.
Patients can be discharged from hospice if their condition improves and later be re-admitted for the same or another condition. The hospice may pay for things like radiation or chemo as long as it is of a palliative nature for example to shrink a brain tumor and relieve symptoms.
As most people know Medicare/Medicaid and any kind of health insurance can be an absolute minefield so question, everything, do your own research and demand answers which is not easy when you are dealing with end of life issues so the best advice is to be proactive when there is a family member with a chronic illness. Good wishes to all those doing and who have made the selfless sacrifice to care for a loved one.
My heart goes out to those families that not only had the heartbreak of losing a loved one while on hospice services, but then they also had horrible services with their hospice organization.
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