My mother (who has dementia and needs constant supervision after a recent sharp decline) has this best friend she hadn't seen/talked to in a month or so, so I called the friend yesterday so mom could talk to her. After a few minutes, I got on the phone with the friend to update her on mom's condition - during which she mostly talked over me about her own cognitive problems, the multiple medications she's on, and other health issues. The friend wanted to schedule some time to hang out and became very argumentative and hung up on me when I told her I'm not comfortable with leaving mom under her supervision at this point.
When she and mom hang out, the friend takes my mom around on numerous errands and doesn't stay with her the whole time, which mom finds scary, especially in the crowded big box stores the friend tends to frequent.
I don't feel the least bit comfortable with mom spending time with this friend anymore. I'm legally responsible for my mom now, and though it bothers me that I would have to restrict who mom hangs out with, I don't trust this friend to make sure my mom is safe under her watch.
Before the friend hung up on me, she said she was coming over anyway next Saturday to pick mom up, and I just need to deal with it. I'd prefer not to escalate the situation, but mom's friend tends to make scenes. How do I handle it if the friend shows up to the house demanding to take my mom off with her somewhere?
If it were a real emergency, before you have anything in place and this woman is behaving irrationally, yes. If it is a case of her just showing up unannounced and hanging around despite being told to leave or not answering the door, please see my comment on 9/17 - you'll have to talk with the police about it to get the details needed, but a chat with them and a certified/return receipt letter to her/them would allow them to deal with it. Without that in place, they can still come and try to diffuse the situation, but if she (or anyone) and they are on notice, they have a bit more leverage.
Given that you say she might lose the ability to drive this all may be unnecessary (will someone take the car away?? Too often just telling someone they can't drive or had their license revoked doesn't stop them!) One can hope. If they do take the car, but leave her living in her place, perhaps once in a while your outings can include a stop by to visit her, kind of a check on her and some socializing. Just a suggestion, I know how busy caring for someone can be and how hard/painful getting tangled into another person's sob story can be. No worries if you decide to just stay away - she was (past tense) mom's friend, not yours, and you have enough responsibility now without adding to it.
"It's unfortunate how when you're a pushover, people "like" you more, but actually just use you and aren't really your friend, and then when you start setting boundaries, suddenly you're a "raging b*tch" or whatever, but such is life I guess. Finding the right amount of pushback and the right time to drop out of situation is the tricky part for me."
Yeah, as the saying goes, nice guys finish last! I can relate to being a pushover, but having had an ex who was a push-type, I learned how to get through it. There were still flashbacks, but at this point I think I'm good!
"Based on my experience, unfortunately it seems like explaining things and showing empathy and understanding isn't the way to go a lot of the time. It just gives people leverage that can be used against later."
Try anything once, twice if I don't think they understood, then I am done. Usually one says try anything once, twice if you like it, but I generally give the second attempt because sometimes they didn't listen/hear/understand the first time (ex was one of those.) If the second attempt works, play it by ear from there. If it doesn't, move on without this person.
Clearly when you are home you can just say no to her, your mother is not going out, if she shows up unannounced at your door or calls. If you are not home, the aides caring for your mom are working for you and your mother. They should be just like a babysitter, no one is allowed in the house when I am not at home. They should be instructed to not open the door and not let mom open the door or go out. They are, in effect, your proxy and should do the same as you would do in your stead.
Even the fish in Cat in the Hat was smart enough to get this (although it is 'She should...' and '...your daughter is not.')
“He should not be here, " said the fish in the pot. " he should not be here when your mother is not.”
― Dr. Seuss, The Cat in the Hat
If she persists, initially I would make a point to override what she is blathering about (preferably in person, so she can't hang up.) If she interrupts you, you can raise your voice a bit and DEMAND that she stop and listen, and explain simply that your mother needs supervision and this person can't/doesn't provide it. No need to go into any details, more than likely this will just float over her head anyway. Just NO, mom is not going out unless WE have plans. Offer to schedule (she MUST prearrange with you) outings that you and your mother might enjoy (lunch, either at your home or in a restaurant, walk in the park or a mall, trip to a museum or zoo, etc.) Make sure it fits YOUR schedule, not hers.
She is probably lonely, but also needs to be tamped down. She is NOT your responsibility and it is NOT your job (or your mother's) to "entertain" her. So long as she is willing to work with you on making plans, I would welcome her for your mother's sake, but not if she is going to lord anything over any of you! YOU are in charge!
If she refuses to work with you, then yes, you should speak with someone at the PD. There are rules as to what they can do if you want to prevent her from entering your home/taking your mother out (again, the aides should not be answering the door or allowing mom to do so.) I believe one of the first things you would have to do is send a certified, return receipt letter to her and the PD stating that she is not welcome at your place anymore. Might be a good idea to CC the aide company, in case there are substitutes sent. Only then can they do anything if she shows up and they are called. They may ask permission to enter your home, but so long as no one lets this woman in, they should have no need to come in. This is the extreme case. You should only proceed here if nothing else works.
Hopefully you can override her interruptions and perhaps get a tiny bit of understanding and agreement in place. Clearly she doesn't have a clue what mom's condition entails or how that impacts their "outings." It may take a few attempts, but you never know - the light might come on, it might be dim, but if it comes on, you've made progress!
(Just now had a thought... perhaps an outing for this woman's usual errands, but you are there too - then, painful as it might be, let mom get into that situation this woman leaves her in, BUT you are watching from close enough to intervene AND make sure this woman SEEs mom's fear, anxiety, discomfort. Sometimes it does take seeing to believe.)
Sounds like this "friend" is not in mom's best interests.
If the friend remembers to come over, I would explain that you are happy to accompany them on an outing - as long as it works for your schedule. Explain that mom's health requires constant, knowledgeable companionship. Explain that you are legally responsible for mom and you do not know this "friend's" abilities to allow mom to be with her alone.
Suggest plenty of other types of "visits" that you are comfortable with: meal at your home, short outing with everybody together, watching a movie in your home... If the friend balks, explain that you are not comfortable with leaving mom in her care... and she can get the "visits" as outlined or stick to phone calls.
Good thing is mom is under either my supervision or in-home care at all times.
I think the friend means well, but..."the road to hell is paved with good intentions" as they say. I'm waiting on the friend's diagnosis. She's supposed to go in pretty soon for her evaluation (it's scheduled, just takes forever to get neurology appts around here) and it's quite possible that she won't be driving anymore so that will eliminate most of the problem immediately if that ends up happening.
I also want to share that a similar thing happened at my senior's building when a 73 year old lady without a car was more or less using another senior lady who had vision problems and a car and so the 73 year old drove them around. It would seem a nice thing except the 73 yo was pushy and always wanted to be on the run but the one with the car was more fragile and the 73 yo didn't really care. The day came when they pulled into the parking space here and the 73 yo just got her stuff and went inside leaving the more fragile and vision impaired one to fend for herself and she fell and broke her hip. Many weeks later after surgery and a long rehab the family of the vision impaired lady has stepped in and simply not allowing the 73 yo to take advantage of her like that.
I hope this situation works out quickly for your Mom's safety and she doesn't have to go through a broke hip or worse because of this pushy woman. God Bless!
Mom used to enjoy going around for errands and other things with the friend, but she tends to get tired quickly now and when she gets home from hanging out with the friend she says, "It was okay, kinda boring just going around for errands," rather than saying she enjoyed herself. I'm not entirely sure how much of this is related to the dementia and aging process and how much of it is independent of that but I suspect a lot of it is the dementia and aging. A lot of the time she refuses going on walks now.
This is clearly not a situation that is going to be resolved just by reading. However, there are two books that could be helpful. The first is only 50 pages, "Can I Tell You about Dementia" by Jude Welton (Jessica Kingsley Publishers). It would only cost a few dollars second hand from Abebooks, or a bit more from Amazon or the Publishers. You could give it to "the friend" after you had read it yourself and say you wanted her to understand your mum's condition. It might also help "the friend" deal with her own fears.
The second book is a much longer 300 page plus read, but easy to understand and very helpful: June Andrews, "Dementia: The One-Stop Guide: Practical advice for families, professionals and people living with dementia and Alzheimer's Disease." That title is misleading because Alzheimer's is the most prevalent form of dementia. The book is written for the United Kingdom, but I still think it has a great deal of helpful advice. The main reason to read books about dementia is that you can learn from the experience of others without having to undergo the experience yourself with inadequate understanding of how to proceed.
I hope this all works out. It does sound like you have to take the initiative or "the friend" will have a very destructive impact in some way on your mum's life.
All the best, with prayers
The moment I read "....doesn't stay with her the whole time.." I was out. If your mother "needs constant supervision" then she doesn't get to leave the house with anyone but you (or a professional caregiver) because you are the only one who truly gets what that means.
While it sounds like this woman has plenty of her own challenges that doesn't change the fact that your mother needs constant supervision and she won't be able to provide that.
If you feel like you absolutely have to have this woman in your mothers life, invite her to your house for lunch this way you will be there. Just know if she is this much of a bully she may say push the issue of taking your mom out while she is there for lunch. Just hold your ground.
Good luck to you, these situations are so hard. You're doing a great job.
But in all seriousness, thank you for your supportive reply.
It's unfortunate that things have gone the way they have with the friend, but I try to stay as matter-of-fact about it as much as possible. I hope the friend will be able to cooperate with the reality of the situation, but if not, I really don't have the energy for the drama.
Ask to tag along, just to keep your mom safe, Sit back, let your Mom’s friend take the lead in the conversation and be a “fly on the wall.” If they need something, help them up- jump up to get that napkin, drink refill, steady them when walking on uneven sidewalk, carry a heavy package. Let your Mom have a swan song experience. Let her safely feel some “independence” and a slice of her former life. You may find that your Mom is a bit sharper and happier after these visits.
My mom had a similar friend. I didn’t understand how they were so close. When I started spending time with that friend, I grew to realize why mom loved her. She loved mom deeply. After mom died she told me hundreds of stories that filled my grieving soul with new memories of mom.
Now I visit Mom’s friend when I am In Mom’s town. She now is a widow living in AL. She welcomes me, and hugs me, and shares her precious stories again.
If this lady abandoned your Mom, you would be upset about that. Think of her side, like you, she is probably grieving these changes and it is natural for her to be in denial.
The bottom line is that they're both cognitively impaired now, and it's hard enough taking care of one person with cognitive impairment. If the friend is cooperative, I will gladly facilitate visits, but if she's going to create drama, I simply don't have it in me to put up with it nor do I think putting up with it is good for any of us in the long run.
My father had a difficult friend who sounds similar to your mom's friend. She had BPD and was prone to scenes, grudges, drama, and long, one-sided conversations. She also did have her good points, which I have to admit I did not really appreciate until she passed away suddenly last year. That was when the tragic impact of her personality disorder on her ability to relate to others really hit me. BPD and similar disorders are horribly sad and result in a lot of suffering.
This friend often expressed a wish for my father and me to meet with her in public at a park, theater event, art fair, local historic estate, etc. (Because of my father's recent disability, it wasn't possible for her to spend time with him anymore at these sorts of places without assistance from me or my sister.) I always politely smiled and changed the subject. I wasn't thrilled about supervising all her visits and phone calls, but I most definitely do not want to be in public with someone who gets into altercations. No.
Given your mom's health and the friend's past behavior, I think it's fine for you to let the friendship naturally fade away, or if you feel you must help to maintain it, set up and enforce strict boundaries that protect you and your mom.
My mom has borderline PD, narcissistic PD, histrionic PD, and dependent PD + dementia/Alz now. The friend has a history of problems with alcohol probably related to how her daughter treats her (which is terribly), and now cognitive impairment.
Before I took over as POA, I had been in an abusive relationship with a clinical narcissist/borderline for the five years prior to that which resulted in C-PTSD, which I am still trying to recover from, so I'm really not a fan of escalated situations.
What those sorts of personality disorders do to a person's life is tragic, but as I learned the hard way with my ex, if I become overly empathetic and giving and accommodating to their every whim, I will facilitate my own destruction. I can't be the "savior" anymore.
"The road to hell is paved with good intentions."
I have home care coming in 7 days a week now so mom has companionship and likes the people that are caring for her. It may not be the friend, but at least the caregivers know how to handle and engage with someone with dementia/Alz.
It is very nice of you to call the friend for your mother so that they can talk. I suggest that, when your mother is done talking with her friend, hang up the phone because, when your mother says "good-bye", that's the end of the conversation. If she calls back because she wants to talk to you, let it go to voicemail.
The BFF has a pretty rough family situation. Her daughter is bipolar, verbally and physically abusive, has had the police called on her for it, and been in and out of the psych ward several times. There's other drama I don't know much about going on with her son. The grandchildren aren't much better. Nonetheless, she is very socially active with friends. I understand her strong-willed, even stubborn approach to life, especially after what she went through for so long, but I went through some serious abuse too for many years, and two people with the type of iron will that comes from surviving abuse butting heads is an explosion waiting to happen. This is why I want to avoid an escalated situation if at all possible. Neither of us need any more drama in our lives.
Mom has one other friend who calls her everyday, but they rarely hang out. I think this is because they dated for awhile, it didn't work out, and he finds it awkward now to spend much time physically around her. He occasionally takes her to Costco, etc., but unlike the BFF, he stays with her the whole time. I don't push anything when it comes to those two because I know from personal experience what the "awkward ex - I still care about you as a friend but it's weird" thing is like.
My mom used to have more friends, but she's the type where they make most of the effort while she makes very little and puts all the blame on them if something isn't working out. External locus of control. She was the same way with my dad before he divorced her. She's like that with me. So most of them got understandably fed up and stopped calling/visiting.
I made a Facebook account for my mom years ago but she didn't use it back when she could still use a computer. When she started to decline, I went back on the account to manage it for her and keep in touch with her friends, let them know what was going on, but I think one of them was pissed off at her and/or Facebook didn't like that someone else was managing her page and the account was insta-banned with no warning or explanation one day.
However, the lawyer has told us that if Mom asks to see her, we can not prevent her from visiting. The only way to do that is to document any damage she causes (and it is all indirect, so difficult) and go back to court. We can only block her visits if we can prove to the judge that she is doing Mom harm.
We CAN prevent her from taking Mom anywhere. The facility knows that there are only a handful of people specifically allowed to take her out and there are a couple who are specifically NOT allowed to take her out. Brother is one of them, along with this friend. Both just want to live off of Mom's estate. It's fairly easy at the AS because the doors are locked and those two don't have key fobs, so they have to ring the bell for staff to let them in or out.
We feel horrible that the AS staff has to deal with these two when they visit, especially when they bully and try to take her out or get privileged medical info (friend tries to get access), but it is part of the job.
It's tougher when your Mom is still at home or if you don't have a guardianship. But I would say that you still can set restrictions on visits. She isn't allowed in the house if you aren't there - just lock the doors. Tell home care staff not to let her in. She isn't allowed to take Mom anywhere without you (easier if you stick to not letting her in without you). If this friend is anything like my Mom's friend, she won't understand/care/listen to your explanations, so you have to set the boundaries and just stick to them as best you can. But I would be worried about trying to completely block her from visiting, even though I completely understand the desire to do so. Good luck and I wish I had better/more hopeful advice.
Call the friend back and tell her she is not to come to your home for any reason, ever, and if she does, you will call the police, as she will be trespassing! If she does show up don’t answer door or converse - call the police.
Do you know BFF’s family? You may want to advise them what is going on.
You also should call the local PD and speak to an elder advocate. They can come to your home. They will also contact this friend. Your Mom’s BFF sounds like she has “issues” and may need serious intervention by both PD and her family.
Good luck and hang in there.
Call the friend and tell her Mum cannot go out, but you would like to have her over for lunch or coffee at Mum’s.
That will allow a supervised visit.
We had one of those friends. They stopped by and told us all about their problems and then left. six months later Luz, DW, was diagnosed with FTD and we never heard from them again until I sent them notice that Luz had passed away. That was just over three years after they were here. I have not spoken to them since.
Do what you think is right and know that I totally agree your decision the advice given here.
Best of luck to you and Mom.
I doubt she will try to PHYSICALLY intervene, but it may be necessary to ask her to leave if she makes a scene. Should it escalate at all you can tell her that she will no longer be welcome to come to the house if she cannot maintain civil discussion and gentle manner, as this, too, would be upsetting to her good friend.
Dependent on her own level of mental impairment it will go one way or the other. It IS your home. And you are correct; you now are responsible TO and FOR your Mom.
When she is rude do the grey rock thing. Answer briefly and gently and repetitively with only the gentle facts. Do not argue. Do not defend. Do not explain.
Just as a side note you say SUDDEN decline. When was the last urine test? You know how we jump on this one here. A bladder infection can cause sudden, profound and unpleasant behavior changes.
Good luck. Update us how it goes for you.
My mother did have evidence of a UTI, so I took her to the doctor and then a urologist, they found a UTI, which they treated, and quite a lot of kidney stones, so they did two "non-invasive" surgeries to remove them, during which she was under general anesthesia. We were aware of the risks the anesthesia could pose, but it was between surgery and mom being in constant pain and having to pee all the time, so they went ahead with the surgery. Mom's advance directive specifies "comfort care," so that's what I tried to provide. Her neurologist agreed that it was a tough choice but that it had to be done. The anesthesia, according to medical research and her neurologist, is what caused the sudden decline. She was still in the mild to moderate stage before the surgery, but afterward was when she started to decline quickly.
Thanks for the heads up about the facility, that will probably be happening soon.