My elderly mom with mid-stage dementia is currently living with us while we wait for a spot in the local memory care unit to open up, and mealtimes are becoming a huge expense, a tremendous waste of food, and a huge difficulty for my husband & I. Today is a good example. While I was finishing dinner, my husband went into my mom's room to ask her what she wanted to eat for supper. As we've learned to do through trial and error, he gave her two options: First he showed her what I had cooked & then he showed her a can of her favorite soup. He asked her which one she wanted. She told him she was still full from lunch and her afternoon snack & didn't want dinner. He tried to encourage her to eat on schedule with the rest of us but she declined again and he backed off because the doctor has okay'ed her skipping dinner if she's had at least one good meal during the day. However, fast forward two hours. I'm ready to head up to our bedrooms to tuck in the kids and relax for awhile. I poke my head into mom's room, say good night & ask if there's anything she needs before I head upstairs. She asks for rice and beans. *Sigh* I remind her of the time and tell her that dinner was hours ago. She said she wasn't hungry and we've already cleaned up and closed up the kitchen for the night. She replies that she has a "craving" for rice & beans and will just cook it herself. Now, we've got the kitchen locked up pretty tight so she can't cause any serious damage (as has happened before). But now she's up & I'm certainly not going to head upstairs & let her start making a mess of the kitchen. So now I have no choice but to start cooking at 8 pm. I gently tried (as I've tried before) to point out to her that she needs to have meals when the rest of the family is eating. I cannot accommodate her whims because both my husband and I work full time and cooking at night needs to not happen. But no matter how gentle I am in delivering this rule, she gets angry and then we'll get days of her refusing to eat and not speaking to us. I know - dementia - she's not going to understand. She's not going to have a good grasp of time. This is no win-win situation for anybody. I get it. But for those of you with live in dementia loved ones, how do you handle mealtimes? Do you just serve it up and not give them options? Do you simply cook whenever they want to eat and not follow a routine (please say no!) How do you handle the cravings? I feel like trying to figure out what she'll eat - even from meal to meal - is a moving target (I'm spending a small fortune running to the grocery store every other day for the latest laundry list of cravings!). Any advice for this burnt out short order cook / daughter / wife / mom / full time working woman / caregiver? I absolute HATE cooking for her and I've always loved to cook. Help!
I guess ur problem is ur afraid she would get food on her own. I was able to gate Mom into her room. She was too far gone to figure how to get out. Try not asking her if there was anything she needed. Just say good night.
This is what I didn't like about CG. The constant worry about Mom doing something when I was sleeping. When she went into the AL, it was the first night in 20 months that I had a good nights sleep. Having her was like having an infant again.
When your dinner is ready, if she declines food, make her a plate of what YOU are eating and leave it in her room. Assure her that this is it. She eats or goes hungry. The chef has retired for the evening and the kitchen is truly “locked up”. Make sure she has some snack crackers or something in her room, but she will not waste away before breakfast.
You would not, or should not, be preparing a menu of options for meals for anyone, her, your children, your husband or even the dog/cat. I have to think that there is a part of her that is enjoying having her own personal Door Dash.
I recommend getting a dome that covers a plate and make your mother a plate at dinner time. If she doesn't eat it place the covered plate in the fridge and if she wants to eat at 8:00pm then reheat the dinner plate. Or let her eat snacks. I keep fruit and a container of animal crackers on a table in my mother's bedroom.
If this offends the nutritionist/ecologist in you, how about cooking in bulk over the weekend and freezing individual portions in containers? Living alone, I often do this for myself and many dishes cope with the process pretty well.
Longer term, it would be better for your mother to ease her back into the family schedule. Better for her diet and her socialisation/mental stimulation. For example, rather than presenting her with those (well-intentioned, I'm not being critical) options, you or your husband go to her room and state (not ask) "it's dinner time, mother, let's get you to the table."
You will immediately spot that the downside is that you and your husband have to cope with having your mother present at mealtimes; and I remember and sympathise that this does not make for the most relaxing dining experience ever. But it is an important aspect of her inclusion in the family home. How do you feel about it?
has vascular issues, limited mobility etc.I have loved cooking
my entire life, I collect cookbooks.She just sits and imagines
and says, I feel like such & such it ..I’m down this rabbit hole right now.I think your husband’s idea is great to show her a can of soup as an option.I’m out of ideas but I really try to make sure she eats dinner early, on a good day I get her tired
enough that she won’t get up at night and ramble around.I also notice she plays with her food more.I give her soup,she’s
dunking The spoon and dropping the soup back in the bowl
til It’s cold.Then asking me to reheat it.I don’t think this gets
better..
They don't seem to have a sense of meal times, or when they ate last. Mom would eat dinner then someone would stop over and I would offer them something to eat. Mom would forget she just ate a half an hour ago and wanted another dinner.
The older we get the less energy we use the less we eat. I know she is not going hungry. This all may change as the disease progress. But what will never change is that I make one dinner.
It sounds to me that you mom might being playing games with you. I am in no way saying she is doing it on purpose, she may really have no knowledge of what she is doing. Give her one option for dinner and make available no cooking snacks or microwave food.
Good luck!
She doesn't eat breakfast. She eats 'lunch' at about 11 and 'dinner' at 4:30. Taking her out to either meal is challenging--I can't eat a steak at 11 or 4:30! I try to take her to lunch occasionally, and it's hard, a lot pf places don't even HAVE the lunch menu out at 11.
She lives with brother's family. They keep even weirder hours. Really, only dinner as all the 'kids' are still home in their 20's and 30's. They eat huge dinners at 10-12 pm. I've suggested they just put aside a small microwaveable plate for mom, they don't do it. It would be simple enough, there's 6 of them!
It's becoming increasingly difficult for mother to make her own meals. Takes her a full 30 minutes to make a simple salad, and my observations as to how she could make that so much more efficiently--were met with and icy stare. "Let me take care of MYSELF". She needs to still be as independent as she can be.
I think we'll be to MOW pretty soon, if she'll allow it. If brother will allow it. She's ok healthwise, just 89 and failing, as all 89 yo's are bound to do.
If I had your situation, I would not kowtow to mom's weird eating patterns. I raised 5 kids and I was not going to be spending my entire life in the kitchen b/c somebody was hungry.
There are so many 'single serving' containers of things that can be left out with no problem. Leave her a little snack tray on the bedside table. Hopefully, seeing that and knowing she has food in case of getting 'snacky' will help curb her desire to have you fussing her.
Mother puts a glass of milk and some graham cracker by her nightstand. I can't bear warm milk, and I wonder about it sitting there all night-but what can I do?
With dementia, memory is such a hit and miss experience. You can remind and remind and the memory is gone almost immediately.
When I am there I make several large meals and package them up individually in single serve TV dinner like containers I bought on Amazon and freeze them. So the freezer is stocked with good, healthy low salt meals she can pull out and throw in the microwave any time. I even put frozen vegetables in each dinner for a well rounded meal. She is and always has been fond of fresh fruit and vegetables so she get's those for herself and typically eats them along with yogurt and cheese so fresh or not there is always something available for her to eat without much work. Doesn't always mean she will go out to the kitchen and get something but there is always something there. My suggestion for you is perhaps a form of this, have some ready made frozen meals for her and each night when you have dinner invite her to join the family and if she isn't ready to eat yet, fine fix her a plate or dinner container of what you had and she can reheat it later if she chooses, if not stick it in the freezer for another time or if your DH is like mine, leftovers for lunch! As long as mom is eating, has 1 decent meal a day or equivalent let go of worrying about her "meals". Truth is as we age and become less active we don't need as much food and timing does become different (lol the age old standard being early bird special!). If you make the right meal (one you know mom likes sometimes) make enough for an army and re-stock the freezer with meals. Then have other options easy and at the ready for her to choose from if that nights menu doesn't interest her when she is hungry.
You and DH have learned the art of giving her 2 choices/options, good for you but if she keeps coming up with something completely different, rice and beans, maybe just invite her to dinner with you, don't even tell her whats for dinner unless she asks or offer a different option unless she says shes hungry but doesn't care for what's being served, give her that control. Then when she's hungry a couple hours later a plate is ready for her or she can microwave something out of the freezer or eat something out of the fridge. If she wants rice and beans and that isn't in the freezer just say that sounds good, unfortunately we don't have any at the moment but I will put it on the list for my next shopping trip. You may find that the less you try to control it the less she wants to make a mess of the kitchen at odd hours and perhaps the more she will choose to join family meals but if not. so be it as long as you have things locked down for safety maybe a mess or two will get that out of her system when other good options are available
I sure hope you find a solution and don't have to wait much longer for her spot in memory care.
When mom was at NH some residents went down for meals early as they all were together .... worth a try
Despite dementia sufferers seeming to behave like spoiled bratty kids, remember they are NOT. Kids can be told this is it, nothing else and most will eventually learn to eat what is given or go hungry. Those who have dementia really cannot "learn" and often cannot retain what they are told, so trying to train them to fit into your schedule is probably never going to work. It will only frustrate you more. Also taste habits and preferences can and do change as we age, as well as the need for as much food at specific times. Personally my habits are not the norm - I eat when hungry, not at a time predetermined by old habits (tough to comply with others needs when you are working and staying in the norm is best for the majority for sure!)
Is mom not able to join everyone at the table, whether she eats or not? At least joining you all can keep her socially interactive. You must know what her typical likes/dislikes and cravings are by now. Are the kitchen/food areas mom-proofed? If she can get to the kitchen/food areas, "child-proof" it as best you can. I understand there are locks for refrigerators and cabinets. Microwaves, even much older ones, have a "lock" capability for the controls (learned about this when mom accidentally locked hers and my brother had to fix it -press/hold the stop/cancel button for about 3 seconds to lock or unlock - newer washer/dryers have this option and my newer stove has it as well. If stove doesn't, remove knobs/controls and lock the oven door.) You indicated she does go there and make a mess, so mom-proofing should be done. For those who are concerned about leaving the water on, generally there are shut-off valves under the sink. Inconvenient, but better than dealing with the aftermath!
I like the suggestions others gave for having her own small fridge with "tasty" single serve items and/or fresh fruit/veggies. Ensure/other drinks, etc, if she will drink them. Unless she is still capable of using a microwave, that is a questionable option, based on her ability. Packaged single-serve snack foods are also good - cookies, crackers, some with cheese, nuts if she can manage them, etc.
For times like her wanting rice and beans, or some other food she likes/craves, you know what she generally asks for, so make up a big batch and freeze single servings for quick heat up in the microwave! Rice and beans freeze okay. I make chili and freeze it, so I know beans can handle it and I make at least one dish with rice, so I know cooked rice can be frozen and microwaved too. Most other foods can be frozen after cooking, so you can have most of her yearnings available - no cooking required before bed, just nuke and serve!
As for her being restricted to what's available at a MC facility - before moving in, mom's facility did ask for likes, dislikes, restrictions, etc. At all meals the residents ARE given choices, generally two main meats/dishes and a choice of sides - even dessert has choices! They eat as much as they want and leave what they don't want on the plate. Waste of food sometimes? Yup. Unfortunate, but you never know what might get eaten or not, and have to err on the overabundance side. Timing? There are some who I have seen eating breakfast at lunchtime! Often sleeping habits are out of whack, so if a resident sleeps in but wants breakfast, s/he gets it. Might be warmed up leftovers, but still. Even odd choices for a meal is tolerated. I saw one woman have a toasted bagel for dinner - nothing on it, just the toasted bagel. If residents ask for foods between meals, they have some options available (fruit, cookies, packs of crackers, etc.)
There are many ways to accommodate mom while waiting for a place without compromising your own schedule. Standing your ground and saying this is it is a little on the harsh side. They are not being difficult just because - they live in a different reality now. It often doesn't mesh with our own, so we have to get creative!
The only thing I would add to disgustedtoo's post is that exercise will stimulate the appetite no matter what the age. If possible, make sure the loved one gets some exercise. S/he will be more anxious to eat at the convenient time, and will be happier with whatever is on the table.