How can we get help to cover for us to provide full care for my parents, so we can visit my husband's family? We can't afford professional care.

I placed my husband under hospice care although I'm taking care of him at home. Every 60 days I get 5 respite days. He's transported back and forth to a facility. All paid by medicare. They provide an aide for daily showers and even have a volunteer service to sit with him . I do pay for daycare 3x /week and that's my salvation. There is help out there call your council on aging

As I stated in earlier post:
This is formally called Community Medicaid in NY and includes home health care, adult day care, personal care assistance, and assisted living services. The “look back” will be 30 months (2.5 years) instead of 60 months as it is for Institutional Medicaid.
here’s another helpful link for Illinois:
https://www.medicaidplanningassistance.org/medicaid-eligibility-illinois/amp/

AlvaDeer….while certainly wise and true I think your comments are harsh. I too had my parents thrust on me 11 yrs ago. It happens. I understood I had a choice - but the choices were shitty and complex. I only now have a REAL choice years later. At first things happened suddenly. There was no plan. My parents needed help figuring one out. Nobody else stepped up. I even had family meetings. Tried to share the load. There were 5 of us. I was told by a sibling “I have a life, I’m not doing it” The rest had other excuses and tactics they used to back out and leave me with it. When you want them to be taken care of well you try to do as much as you can. You try to keep them home. I get that. I did it successfully but my husband and I paid a price. We lost 10 years of our life. I don’t recommend it. But I do understand how it happens.

KristinC2007: A google search brought up a few respite places in Hoffman Estates, IL. I don't understand how your parents' long term care needs were "expected to fall to (you)." At 77 years of age myself, I will NEVER expect my daughter to foot the bill for my care.

Part B. Taking Action

In the short term find out the cost of residential respite care. Ask your most local Nursing Homes. Call your council. Is there an Aging Service? A Social Worker? Ask how funding for respite care works. Hopefully there is something that is affordable (from your folk's income).

If your folks need round the clock assistance, I really cannot see an alternative to that.

Home with 24/7 aides is very $$$ & there are late cancellations & no-shows to deal with - way too stressfull of you are out of town. In a facility, even if short-staffed, they HAVE staff.

Book them in somewhere & go visit your DH's family.

On return, start working on a new plan. A better balance needs to be found.

** A new plan that works for ALL of you **

Part A. Where you are:
In a lopsided caregiving arrangement.

Sometimes it happens that the person/people needing care takes over the caregiver's life. They mosty don't mean to... their needs just grow & grow. The caregiver's own life gets put to one side, then squashed out.

Right now, your family time with DH's family has been squashed out. Plus probably so much more..

The Problem: Caregiving has become too burdeonsome on the caregivers.

The Thought that drove it:
"There is really no one who can take our place"

This. I am glad you are reevaluating this thought & starting to look for alternatives.

Kristin, you are a new poster. Your current profile says that your mother has ‘age-related decline, incontinence and mobility problems’. You don’t give her age, but her problems are not out of the ordinary for older people. Then you say that she ‘requires an extremely high level of care; she is almost completely dependent & bedridden’. Most people with just those problems would not class as requiring ‘an extremely high level of care’. You don’t say if your husband Chris is working, but you have two people providing this care at least some of the time.

Assisted Living or ‘hiring a professional care giver’ are the most expensive types of paid care. An 'extremely high level of care' is beyond the scope of AL anyway, and you need more than 3 'professional care givers' to cover 24 hour care including weekends. Have you looked at other options that could be more affordable?

It might be a very good idea to contact APS and have an independent assessment of M’s needs, how much she can do for herself, her professional care options, and their cost. Some posters have found that care 'requirements' can creep up, and a professional assessment from time to time is really helpful.

Since you are the caregiver, Medicare provides respite care. Call your mother’s Medicare insurance and ask for respite care.

Have you contacted Hospice? They won’t take care of your mother., but they will provide you with nurses, drs., medication, equipment as needed , all charged to Medicare. Should help your burden a little. They will also advise you as to how to proceed with care. Prayers for you🙏🏻

VERY difficult situation. The longevity researchers who are so gung-ho about adding more years to the life (existence) of old-old people like me should spend a month or two on this Forum! What's the point of more years if they are spent in poor health, decrepitude and dependence?

You have multiple issues to work through on this problem and I am sorry you are going through this. Are your parents living in your home or are you living in theirs? You and your husband need to decide how and where you are going to live your lives. You need to stop using your money towards your parents care. You may need to consult a certified elder care attorney (make sure it's a certified elder care attorney familiar with Medicaid in the state to which your parents will apply : https://nelf.org/) to figure out how to separate your finances from your parents and to guide you through the Medicaid application process but you need to decide what state your parents are going to live in. If you leave them where they are, in case of an emergency, will you be able to handle it long distance? When you say "my family", who do you mean? Are they not involved at all with your parents care? Does Dad want to stay in the state you are in now in order to be near them?

It may be helpful to contact your state office on Aging to get their thoughts on how your parents would qualify for Assistance in your current state; they might also be able to give you their opinion on what would happen if your parents moved with you. You can also always contact the Office on Aging in TX and explain the situation to them and get their thoughts.

As almost everyone has indicated if your Mom needs 24/7 care she is way beyond what they can handle in AL. She needs placement in a LTC facility. You should contact your state Office on Aging and explain the situation to them particularly if you are planning to move to another state. Each state administers Medicaid differently but most will expect a 5 year look over the shoulder which means they will need Mom's receipts, bank statement, mortgage payments etc. You have to qualify financial for Medicaid and they need to make sure that applicants have not "gifted" sums of money to friends or family in order to qualify.
Dad is another issue because it sounds like he might not qualify for LTC and most Als don't accept Medicaid without a period of private pay. Is he mad simply because you want to move or does he fear that he might not be able to continue to live with you? He's lived his life, he needs to let you live yours. What are your parents relationship with your siblings? How come it all got dumped on you?

Regardless of where you decide to live, it sounds as if you are quickly going to be overwhelmed by caring for your parents. Mom's physical care is going to increase and Dad's anger may or may not lessen particularly if he decides to move to TX with you. Do you have all the VIDs for both of them (wills, DPoA, Medical Proxy)? I would suggest that if they elect to stay in the current state and you are moving, DO NOT accept the DPoA position as it is difficult to handle long distance.

Life is short (trust me .... I'm 80 and I could swear I was only 40 when I went to bed last night!!) You need to live your life............ now! Decide what you want to do, where you want to live. Then drop the decision on the family. If they like it, find, it not, fine. If Dad wants to stay, they figure out what to do with him. If Mom can make decisions, they can decide what to do with her also.

Wishing you good luck, peace and grace in this part of your journey.

Why are you doing this? Why are they not on Medicaid and in a home?

To answer you question, no there is nothing available to you so you can see his family. I really feel for you because this type of care will kill you.

and a resounding NO, you DO NOT push yourself physically. If you keep going like this, YOU are headed for a world of your own medical issues.

If she has no funds she should qualify for Medicare for Skilled Nursing facility. Talk to a facility and Medicare and an estate planning attorney.

I think you have a bigger issue on your hands here than FIL's party, your priority should be long-term placement for your Mom.

I would stay back while your husband visits his family, unless you can get a sibling to step in.

In the meantime, consult with an elder attorney about the best course of action to get your Mom into a SNF under Medicaid. Our attorney had us apply to SNF and submit my mother as a private pay individual initially (we had to pay 1-2 mos out of pocket) and then transition them to Medicaid payment.

There is no way AL is enough for your Mom.

Your father is the tougher question. If I could wave a magic wand, he would be in a continuing care facility connected to your Mom where there's an independent living area and he could easily spend time with your Mom. Still that's $. I would also talk to the attorney about that situation, in addition to a social worker at your local council on aging. Some states accept Medicaid for AL, here's state-specific information on coverage: https://www.payingforseniorcare.com/medicaid-waivers/assisted-living

caring for one parent is a handful..I can't imagine caring for 2 at the same time. It's a double whammy. Look into at minimum memory care or nursing homes. An elder law attorney can help with medicaid long term nursing home planning or at home medicaid. Perhaps your husband can go alone for a weekend to see his family. A good, reliable caregiver is hard to find. But you have to decide which you want to do....nursing home or home care medicaid. Nursing home has a 5 year lookback on all bank statement transactions. Home care is a shorter lookback. Some home care agencies that are medicaid certified can also help with this. Good luck and hugs.

I live in NY state and my 87 yo dad with Alzheimer’s is living with me and my husband. My mom is living with my sister. It’s too much for one of us to care for both 24/7 so we split it. They have Medicaid however very few nursing homes take Medicaid and the ones that do, have a limited number of Medicaid beds and of course waiting lists are very long. I am trying to find respite care for a week for my dad as well and unfortunately hardly any available. He is ambulatory but still needs 24 care. I wish you the best of luck. Unfortunately I don’t have any advice.

There are options for your parents, like Medicaid. Your mother is beyond this home health care arrangement, she needs 24/7 care, and you and your husband need to start living your life, not theirs.

Who has the DPOA? Is there a will?

IMO it is time to start the Medicaid application process, you should NOT be paying for anything for your parents.

Sounds like you have siblings, where are they in this on sided deal?

AlvaDear's response is excellent! there is one point I don't understand regarding your hoped-or trip. I understand, I think, the financial concerns you have about caregivers while you are away at your FIL's birthday. However, if you could have caregivers, I don't understand why they couldn't come to the house to care for them. If you had caregivers 24/7, they wouldn't be alone.

I want to re-emphasize a main point AlvaDear made. Many people on this forum have parents with severe health issues and meager financial resources. if any. The children are not required to pay for their parents' care, nor in this country, to give up their own financial well-being for their parents. That's one of the main functions of Medicaid! It sounds like your parents will qualify. While it takes some time and won't help for the upcoming birthday, it will help immensely for the long term. Please contact your area Agency on Aging for info on getting started. I am very sorry that no one ever told you about Medicaid.

You tell us this:
"Our role as caregivers was put upon us nearly 8 months ago (Aug '23), 4 months prior to our planned move to TX to be with Chris's family. He has been living here (in the Chicago metro area) for 18 years, and we have only really been able to see his family for occasional visits. We are unable to place my mother in assisted living or hire a professional caregiver because we cannot afford it. My parents never planned for their long term care needs. It was just expected to all fall to us."

First of all, this wasn't "put on you". You "assumed this". It is best to take responsibility for your actions so that you don't assume the mantle of victimhood.
You say that you are unable to put your Mom in ALS because YOU cannot afford it; what you mean here is the SHE cannot afford it and that's because she never saved for care.
You also say that it "was just expected to all fall to us".
What is expected in life is seldom what really happens.

Now. What do you suppose happens to elders who live in that manner, expecting the world to take care of them when they DO NOT HAVE CHILDREN?
I think you have got this one.
They apply to Medicaid and they go into care with the government's help. They spend down what resources they have, and Uncle Sam picks up the rest.

You use words that indicate you ACCEPT that she did this, ACCEPT that you must care for her, and ACCEPT that this is right.
But it isn't right.
You have a right, in fact, to your own life.
If you choose to throw your lives onto your parent's funeral pyres then that is YOUR CHOICE AS A GROWNUP and you must assume responsibility for making your own choices and living with them.

If you continue feeling responsible for everyone else who took no responsibility for themselves, then I think your lives will come to sad waste. Moreover, you will not make anyone happy. Not them and not yourselves.

You have hard choices to make. Only you can make them. No one can help you.
You surely are welcome to come here to vent. And you haven't really asked for what might help; I think you already know there's not much that can. If you do come here, people will level with you honestly. You can pick up what tidbits might help you, and you can kick the rest to the curb.

I sure wish you good luck, but I can tell you this would not be my choice for my life. And at 81 it would shatter me to think it was my daughter's choice for her and her hubby's lives.

Do you or anyone have POA? Are your parents living in your home ? Or are you living in their home?

Your parents could apply for Medicaid so your mother could be placed in a LTC permanently . I’m not sure if Medicaid pays for temporary respite . Each state Medicaid rules are different . She would need skilled nursing SNF. Your mother is too debilitated for an assisted living facility . Call your local County Area of Aging to have a social worker to do a needs assessment and to help you with the process .

If Mom ends up in the hospital for some reason , tell them you can not take care of her anymore , no matter what promises they say of setting up homecare to come from Medicare because it won’t be enough . Tell them Mom needs to be placed in a facilty that accepts Medicaid .

Placing Mom permanently would relieve you of a bulk of the hands on care. It will free you up to move as you want . Placing Mom is possible . What you are going to do about Dad , I don’t know . Where would he live if you moved ? That’s the harder part to solve . Would a sibling take him in for awhile at least so you get to go visit in Texas ? Your description of them , it doesn’t sound promising .

Hopefully others here will have some additional tips . Stick around.