I am 71 years old, a widow and also an only "child", caring for my 100 year old father in my home. He is in full possession of his mental faculties and still does some things for himself such as bathing and dressing, though it takes him forever to do so but he won't accept help. Basically, though, my life belongs to him. I cannot be gone overnight or even out on an evening because he goes to bed so early and there are a number of things I have to do for him to get him ready for that. He could go to the best nursing home in the area which is for veterans only and has a sterling reputation. If I mention it, he starts crying and saying he would rather be dead. Meantime, my stress, frustration, and resentment are growing every day. I guess I'm looking for ideas to make him accept that I cannot keep this up. Oh, closest other relative is 200+ miles away.
but, as with more of us as care givers, eventually, the our health and mental wellbeing becomes compromised. That is a fact of the situation. That is where assisted living is helpful. AL is very expensive too, but has a lot more benefits to it than homecare. the activities, meals, socialization, outings, 24/7 etc. and, you can spend as much time as you would like visiting. and, its not like a hospital. you can take them out anytime you please. Its hard. As I said, I'm in the same boat. I have both my parents with me. so it is a touch situation. I am trying to get to assisted living for them. One step at a time. trying 30 days respite at the same place so they can see it and get used to it.
My mom was so negative about trying new things, but she eventually enjoyed "school" as she called it. To help her during the "transition" into a care home full time..we started 5x/week, then. 3x/week, then 2x/week, over 4 months. She's doing better now as the caregiver and I are able to take her on outings every week.
Please be kind to yourself, you're not being selfish, we all have limits and your overall health is very important! Best wishes!
Just this last week, she decided she wanted to go to rehab/nursing and was in the hospital a few days, but they was not "3-day inpatient hospital qualifying stay," so she can't get into a nursing home/rehab anyway! So frustrating all this hospital & insurance red tape. (She has Medicare and Aetna supplemental).
It is never an easy situation. Wow, 100 years old, that is an achievement. I'm sorry to hear that this situation is wearing you down. My father is 83 and shouldn't be alone but refuses to go into a nursing home. I don't know why people think these places are so bad. I've volunteered in some and see that they can be nice places to live. I have had the conversation a million times with my father. He needs the social atmosphere and physical help. Where he is now he is alone and that is not good for him. He wants me to be around him but I have kids still. My in-laws went to a place and they love where they are. I don't get it either.
Your dad might have gone visiting someone at one of those facilities and know what goes on there.
Couldn't you get him a 'caregiver' and keep him at home ... please ?
Nursing homes are usually for those who need a lot of assistance or those who are 100% dependent on others to eat, dress, and clean.
Change is hard, so if you can do a month respite trial, that would be a good start. However, if he thinks it is only short term, he might not engage, so you need to be sure the facility will ensure he makes friends.
He may also be afraid you will abandon him, so be sure you tell him you will be there every week to take him to lunch or a movie, or....
Good luck.
Oh my and your God…! something did not happened wen it should have.
For sure, according to my experience, it is not easy for you to decide….
If you force him, I cannot predict his reactions, everything is possible from the best solution to the worst one. The decision of joining a N-Home should always be made by the person himself when he or she is still lucid and in the earliest possible stage of the dementia. Visiting several N-H and decide for them self where they would feel the best. AND WRITE IT DOWN. But I cannot guarantee that they would stay with their decision, but it is most likely they will, provided the text is clear and unequivocal.
So think of yourself now, because you might face the same situation and decide for yourself with the assistance of a close family member so that you will not be a burden when you are very old. Leave no opening to escape because the presence of a third person who can draw your attention on the fact. This simplifies mostly the take of the good decision.
Now my tip for you: Write a letter addressed to the person(s) that will care for you later-on. State how you would like to be treated if ever dementia takes his toll with you. Be logical and reasonable with your wishes, a N-H will never be your home how good it might be.
A N-H is a community with rules were all wishes cannot always be met.
Store this letter in a place easy to remember and find, and read it regularly and adjust it if you feel like, so that when the time comes that you will need help, you will feel exactly what you will have to do and certainly give a copy of the letter to the N-H or the person that will take care of you. This happens seldom, but when it happens the best possible decision is always be lot easier to take if the person is not 100 % dement and can still decide a lot for her own good. Do not as may do, postpone your decision up to the moment it will be impossible four you to decide and be a burden for your surrounding. Do not forget that it is always better joining a N-H. when you can adjust your self more easily. I have no experience at what age this must happen as people live longer now. My humble experience is that it is always better to take that type of decision before you are 80 as this age is also a difficult cross road for many were health problems raise easier.
I wish you good luck and many happy days to come for you and your father.
Yves
Trainer in basic and simple gerontology
🤗 hugs to you
four weeks earlier and I told all relatives and nurses to say son was vacationing in Italy...
If your health suffers he will need a placement. You may as well investigate acceptable options now. It will be less traumatic for him if you and he do the choosing.
I had to approach this carefully and I explained to Dad they were helpers. I would show up when they were there at first and then they were on their own. He didn't realize I was paying them and that was fine. The original helper for over a year just quit and thank goodness his neighbor has stepped in for a few dinners a week and the 2nd helper recruited another lady. It's a network approach you have to take. Providing your Dad a comfort zone with someone. I am grateful for the help. I also installed a camera that works off the internet (WANSVIEW) had wifi installed at Dad's and I can see him in living area through my phone no matter where I am. This helps me hear and see helpers too.
I have asked Dad about going to the VA home in Charlotte Hall, MD. He says he wants to stay home. Dad is 91 with dementia but he knows who I am and others but still declining a bit. I know that if I put him there it will be an immediate decline plus the guilt I will feel so my mind focuses on keeping him home unless something major happens and even then I will access the situation along with health professionals and possibly it would be time for Hospice.
You do have to give yourself your time and locate someone who he is comfortable with. I called nursing homes, assisted living and attended dementia seminars, etc and always asked for people who could help and I did interview several private ladies. Does he have any male friends who could lend a hand or just visit? I also introduced the helpers as my friends and said they wanted to help US. I told the helpers is was a WWII Navy Vet and retired from NASA, played golf and still throws a bowling ball so they would jump in and start talking about these subjects which created a connection.
Is your Dad receiving the aid and attendance benefit? That $ actually can go to you, the main caregiver as well as other helpers. Paperwork is no picnic but well worth it and a local VA facility can provide some help as well as the VA website.
I've learned so much and am here to provide any guidance.
Your father may have some mental images of how bad so many nursing homes were - and, alas, some still are (without even meds to block out the reality).
One suggestion: you may need some respite. And perhaps your doctor or his could help with this. A rest for YOU - say, two weeks (or even one) - might be good for you both.
Maybe he would see the advantage! Or not ... but another (longer) rest a month or two later might sell him on the conveniences. And the activities. And perhaps a friend or two to remember the good old days.
Meanwhile, I would encourage you to bring more help into the home. If you would like to take a long weekend, say, to go and visit your family, there shouldn't be anything stopping you if you can call on a trusted, competent person to take care of your father. And for this, your father's consent (although of course you'll want to know he's okay with it) is less of an issue, because you are hiring the help for *you* at least as much as for him. You are organising cover for your own job, rather than requiring your father to do anything out of his routine.
Leave him there and you go to Assisted Living.....
For real..
You just have to tell him you can't do this anymore. End of explanation. Make whatever arrangements need to be made and follow through.
And him moving to the Veterans Home will not "kill him" he is doing the same thing you probably did when you were 3 or 4 when you could not get the toy you wanted or when you were 16 and he said you could not stay out later than usual. Called a temper tantrum.
I am sure after he adjusts he will be just fine but probably would not admit it.
You have to find a way to get these breaks so that you don't die before your dad does--then what would he do? He'd end up at the vets' home and would have no one at all anywhere. Explain this to him so that he supports your breaks.
Once you find a way to get time away you can see how you feel and go from there.
I can see how trapped you are and I can see why your dad doesn't want to move. Your situation sounds very tough. I wish you and your dad the best.
We had attempted round the clock 7 day per week in home care, but it was also unsuccessful.
Given her age and her status as a survivor of a severe stroke, her sisters expected she’d never “last 6 months”, and she lived 5 1/2 very happy years before dying at 95.
Had my mother been asked, I’m certain that she would have cried and resisted going. Because I KNEW she needed professional help that I couldn’t provide at home, she went, and thrived.
I am presently caring for her last “baby” sibling, who is 90, and also has dementia, and at a relatively advanced age, I myself have three grandchildren, ages 2 or younger.
I am able to maintain a balance because of our very good Assisted Living, and at least at present, everybody is happy. Including Grandma.
At 100, it seems unlikely that your father is in full possession of his faculities. He may be, but I would guess he has some slowing cognition. And difficulty with decision making and multiple step processing. He is fearful of any change, probably cannot fathom change and could not begin to think of how that change could be initiated. You have to be the one to initiate the change. Or it will not happen for you. I would suggest you ask him questions about how he sees the next 3 months or 6 months or one year playing out. What is his plan if he needs more help than you are currently providing him? What is he becomes unable to take care of himself? They all do think about it, (as we do). They just don't tell us so you have to ask. You will be able to see if his plans make sense. They will never take into account the impact any of this has on you, so don't wait for that. But you can ask him those questions too. Ask open ended questions so he talks about it.This generation did not care for old people, rarely did any make it to 90+. so they have no history with it. You need to tailor your approach for your problem depending on what you want. And don't ask him "wouldn't you like to go to the nursing home? That answer is no so don't ask any questions that will lead to no, since no is not an option. My husband and I did not want to care for our inlaws in our home; they might have agreed to come but we both agreed this is not what we wanted and they have the money to pay for care. You really have to put your foot down to say, that you cannot take care of him any more as he is needing more and more assistance and you physically cannot do it. He is not going to go willingly but in his heart, he knows he needs to. And he knows that he is causing you anguish and physical pain but he is stuck and does not see an option. My father in law said, after agreeing to move that, "No, we cannot move because we have too much stuff". Not because he wanted to take it all but because he could not put the process together to get themselves and their stuff moved. We had to help with that but without the dialogue I started, I would never have know what was in his thought process.
You need to do this for you; your duty to your father is honorable but realistically, you are doing more than you should and injuring your health. And possibly impacting your own ability to have a happy healthy retirement.
Please keep in touch here as we will be interested in how this works out for you.
us posted on how hou deal with this. My prayers go out to you for strength to do what you know you have to do as difficult as it is.