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My mother, 89 years old, has suffered from Irritable Bowel Syndrome for as long as I can remember. She also has Generalized Anxiety Disorder. She would give you a longer version, but basically, there are foods that she cannot eat without stomach distress. Periodically she gets to where she cannot eat anything, literally, without hurting. Latest bout is lasting longer than normal. Constipation is an ongoing problem. We have tried every type of fiber and laxative out there, but even when that is under control she still hurts, has gas and bloating. Every type of food, singly or in combination, including FODMAP. Worse when her anxiety is high (which she denies). She has also tried a number of prescription medications, including Carafate and Protonix, which she is using right now. Acid reflux is an occasional problem. She is on low dose amitriptyline and Lexapro.
Her doctor recently retired, and she refuses to go to a doctor right now anyway because of Covid. Over the years, I have bought quite a few OTC products for her to try. She uses lactose-free milk. Has anyone tried any OTC products that have helped similar problems? Brand names to trust or avoid?

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Bentyl has helped me a great deal with any pain. The magic little blue capsule seems to stop spasming, at least for me, in about 20 minutes.
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I probably have suffered from irritable bowel most of my adult life. I am 64 and just connected with an excellent gastrointestinal doctor. I always blamed my symptoms on stress. I take Heather's Tummy Fiber each morning and weaned myself off all acid reducers by using peppermint oil. Since IBS is an inflammatory disease I have begin a strict anti inflammation diet. Amazed by the results......no pain, diarrhea or bloating. I have had no flare ups in several months!!!!! So exciting. In the past I did use ginger pills and mint or chamomile tea for relief. Breakfast every single day is plain greek yogurt with fresh blueberries.
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Too many years ago, my doctor explained that the CARAFATE, with it's coating action, surrounds the other meds, rendering them inactive.
Do not know how the needed Lexapro could be working on the anxiety if your Mom is still taking Carafate. imo.

The Lactaid free milk has an added enzyme, called Lactaid. Can you try non-dairy products instead? Try Rice Milk or Almond Milk instead, imo.

Protonix has side effects listed:
Gas
Dizziness
Headache
Vomiting
Diarrhea
Stomach Cramps
Joint Pain

A review of her medications might help. One can consult a doctor over the phone now, or through online Zoom or Skype (the doctor can see you).
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Learn2Cope Oct 2020
Thanks. We were given to understand that we should just not take other medications within a two-hour window of the Carafate. I'll look into that, and double-check when she is taking things. She doesn't like the rice or almond milk, and the Lactaid has been okay for her until this last bout. She was off the Protonix until recently also. Though it definitely hasn't caused diarrhea, ha!
Her primary physician retired, and new doctor seems to require an in-patient visit for first appointment. Her insurance doesn't cover virtual visits. Paying for a virtual visit would be okay, but some of the routine doctor-on-demand services seem more appropriate for more cut-and-dried issues than what we are dealing with. I myself am having problems with less-involved issues that doctors are refusing to deal with virtually, grrrr.
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Have you tried a spore probiotic? Just Thrive has one that works wonders.
Then there is licorice root that’s great for settling an upset stomach.
Or essential oils rubbed on the stomach, like Digest ease , Peppermint or
Ginger.
Ginger tea is also good, made with organic ginger root.
Digestive enzymes before meals are another great help.
For the acid reflux, a nice cup of warm lemon water made with one whole squeezed organic lemon in purified water first thing after getting up really works.
I love raw organic garlic and eat about 5 cloves daily and the reflux and heartburn were terrible until I started with the lemon water each morning. Been doing this for over 7 years now no reflux or heartburn. And now I can indulge in my favorites habanero pepper which I put on everything!
Drugs are never the answer, look to more natural remedies and be amazed.
Yet, this is my opinion and things I use and have had great success. Give them a try they can’t hurt.
Diet is also important, try going low carb and get the sugars and refined flours out of there and add more fiber rich foods.
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You are now describing both upper and lower distress. Is this new? Has she been tested for SIBO (small intestinal bacterial overgrowth). There is a simple breath test for SIBO that can be an indicator. For myself I had it for many years thinking I had IBS-D.
You say you tried fibers. Have you tried specifically CITRUCEL. Metamucil is the big boy that gets recommended often and to my mind and in my nurse experience it often caused more problems because of the manner in which it ferments in the body causing gas and pain involved with gas. For me it is citrucel every night, and has changed my life; recommended with the information in ER by a great doc familiar with the fact Citrucel ferments differently in body and for many of us causes no pain.
I would say if you are now dealing with upper and lower pain, and a worsening in pain, that it is worth exploring with a new doctor as things get missed with those of us with IBS--it becomes the "go to answer" and other things can be happening. Happened to me with a severe bout of diverticulitis.
Good luck. I can identify!
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Learn2Cope Oct 2020
Yes, Citrucel is what I have recommended to her and is what she is using now. Also a little black strap molasses in warm water.
None of her pain is new. Having stomach issues and bowel issues together is quite common. The only thing new is that she had an injury that necessitated her taking pain medication that worsened the constipation for a while. Also limited ability to move around as usual, and also increased her anxiety.
She is a chronic complainer, so it is hard to sort out what is old, new, minor, or significant. I do know if it gets life-threatening she will go to the doctor. Until that time, I am the one that is dealing with it.
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Learn to cope, a stool softener often helps, colace perhaps once daily. Again, an over the counter thing. Not laxative but keeps stools softer.
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Learn2Cope Oct 2020
Yes, she's been taking that, too.
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sorry for her distress.....have you tried yogurt?  there is Activia which can be drank 2 times a day (about 3 oz) flavored which has good pro-biotics to help with some stomach distress.  she should definitely stay away from anything with seeds and bloating type foods.  you can google for foods that "reduce bloating" (which I have done for hubby since he has some), mostly they are foods with plenty of water in them or other good stuff, I could list some = ginger is good for stomach ailments (ginger ale), cantaloupe, watermelon, cucumbers (without the seeds), pumpkin, coconut water, sweet potatoes (you can google for more).  She should see a gastroenterologist (she can wear a mask) because she definitely doesn't want to get a bowel obstruction (especially since you mentioned she has had a constipation issue).  Wishing HER luck as well as you.
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On top of everything else that people are recommending is she chewing her food adequately and/or is there a problem with her teeth? Infection in the mouth can wreak havoc with the rest of your system and if food isn't broken down enough, blockage can occur. Last, on a similar note, could she have adhesions from old surgery that is causing a blockage? Strange things can happen. My dad had issues with low motility due to medications that led to entrapment of a portion of his small bowel in his thoracic cavity (next to his heart). Your mom should be assessed.
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InFamilyService Oct 2020
Very good points lynina2.
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Grrrrrr! You’re dealing with an awful situation.

My oldest daughter has Chron’s disease. Any of these intestinal issues are so difficult.

Best wishes to you.
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AlvaDeer Oct 2020
Anyone who has Chron's gets the hero badge from me. It is such a tough thing to deal with. My best out to your daughter. Like me she almost certain knows where the toilets are FIRST anywhere she goes. Hugs.
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The only insights I have into something remotely close are my sister's challenges with ulcerative colitis, which our paternal grandmother also had.    The mediocre health care plan doctor she had been seeing through work provided heatlh care had repeatedly diagnosed her condition as "flu", and she suffered miserably for months until one of her nurse co-workers arranged to have her nephew (radiologist), intervene,  and he D'X'ed UC.    She took a med for it but I can't remember what it was.    No more problems since then.

As to laxatives, we've always believed in natural resources, but you've indicated that she's already tried FODMAP regimens.

I don't know if this helps or not.   

What you might try to do is work on lessening her anxiety, which admittedly is hard at this particular time b/c of the pandemic as well as political strife.    Maybe you could have quiet sessions to inject calm, something like listening to her favorite music, thumbing through soothing magazines with photos of baby animals, country scenes (Country and Country Extra magazines are like this).

I think that sometimes facing medical issues directly can be reinforced by interaction methods.  When my mother was aging and facing health challenges, I brought her either carnations or roses every time I visited.    She was so happy, that I knew it was a worthwhile gesture, and a helpful one.
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Learn2Cope Oct 2020
My mother is legally blind, which increases her anxiety and stress. She cannot do any of the things that she used to do - she has always been a very "doing" kind of person. Has never had patience to read or focus for very long at a time. I've tried music - works some times, but she's really picky. Either she's "tired of the same songs", songs by singers that are dead "make her sad because they're dead now". Did I mention she's negative (even when not depressed, so worse when she's anxious or depressed). Says she can't follow plot lines in tv shows any more because she can't see the characters. Listens to news all the time because she can understand it. (And yes, I've told her it's not a good idea with all negative things right now.) She's terrified of getting Covid, worries about all the family members - this is normal for her. When I was growing up, I thought she was a worrier, until I read about Generalized Anxiety Disorder. I realized right away it was her problem.
Only one doctor said, yes, she has an anxiety disorder. And still she thinks her anxiety comes from her stomach problems and not the other way around.
She thinks worrying is normal, and worries about the fact that other people don't worry about things - especially family members. I have tried for years to use Cognitive Behaviour Therapy tools with her. Before she lost her eyesight, after she lost her eyesight. Now if I try, it is "You've told me all that before. It doesn't work."
I do record short articles from podcasts for her to listen to. She doesn't have or want the Internet.
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