I take care of my 95 year old mother who is bedridden. I am finding this hard. I am stuck in my house. I barely leave my house. I am lucky to go shopping. I have no one who can help me. I hired a caregiving agency to help me. First agency person was not dependable and they had nobody else, they are desperate for caregivers. Went with another agency. I was going to start back with piano lessons but caregiver never showed up and when I called they said she could not get out of driveway. It snowed 2 days ago. They said she could not get out in morning but everything was melted just about by afternoon. I guess the caregiver wanted whole day off. I am frustrated. I can't seem to be able to make any plans. I am hoping it gets better. Does anybody else find it hard getting caregivers?
My Dad was self-pay, and the caregivers showed up for each of their shifts [3 shifts], and if it was a really snowy day the owner would pick up the caregivers and leave them off at their client's house. Or if bad weather was on its way overnight, the 3rd shift caregiver would stay and fill in for the 1st shift if the 1st shift couldn't make it in.
I know when it comes to driveways, it depends on which direction one's driveway faced. My neighbors across the street would have clear driveways while I would still have several inches of snow and ice on my driveway because the driveway faced north.
I used a nationwide group called Home Instead, and here in my area they were excellent.
One thing that can make a huge difference, though, is where you live. If you're hard to get to or in a sparsely populated area, then naturally there are simply going to be fewer caregivers around. Something to bear in mind for all of us who dream of country cottages for our old age...
Here's an idea that comes from a friend: Peruse the obituaries (heck, I'm of an age where I do that anyway). Often an obit will thank caregivers, if not by name then by agency. My friend saw that the father of someone she knew had passed, and that his caregivers were named in the obit. She called the deceased's daughter, who praised the caregivers to the skies and gave my friend their contact information. My friend hired the caregivers for her mom before the deceased's visitation even took place.
I am paying top dollar for private care for my mom, and consider myself lucky to only be on my second care agency. The first was a disaster: caregivers poorly screened or not at all, caregivers so lacking in skill that they dropped my mom, yet another who seized my mom by her neck and bad hand (stroke side) when my mom asked to get out of bed ... I could go on and on. The current group has been excellent, by and large, and so I am prepared to overlook some things. The problem now is that there is some kind of conflict going on between the agency owner and one of my mom's caregivers, and I have been drawn into it (although I still don't fully understand what's going on).
I will echo what's been said above: Most of the ladies who have cared for my mom seem to have financial or family issues. The current group is very professional and we've not, so far, had times when there were gaps in coverage, and for that I am very grateful.
The first was hired privately... she was a disaster. Took the pay and failed to show up, or on one occasions dropped my disabled Dad at a clinic and refused to come back and get him....all during what was her shift!
The next 2 were found through the church. Both were wonderful. Both became close friends. Both were with us to the end.
The other 2 were part time, fill in From an agency. Both were not at all reliable.
So...I recommend you check with other friends, church, social groups.
Also, you know you are in trouble if the agency employees or 1099 arriving at your door complaining on their cell phones to their friends and co-workers! That is a major sign to find another agency an upscale agency! Those agency usually charge $18 to $20 bucks an hour with a minimum of 3 hours and I do tip. So times it's worth it to get out and take in a movie.
Thus, I have no one coming in the home to help me with my mom even thou I have four brothers living in the same town. Who are just sorry! I arrived home to avoid going to jail. My five sorry brothers left the care of my then 87yo mom to the care of my brother with an intellectual disability (very low IQ)
Thus, I buy most of my household items online. My mother's adult diaper, chucks and wipes comes via delivery as well. Now, that food can be order on line and delivered to my house that is how I will address purchasing groceries just to avoid an undependable caregiver. Last but not least I save money or keep my credit card balance at zero and take a five, ten or 14 days vacation and place my mom in SNF or AAL when it gets bad. I am now saving for a 30 day vacation it takes me about 90 days to plan for the big trips. Three cities out west then to England and France. I am not getting any younger as well and I had plan to travel when I became an empty-nester! I was a nester for only two-years when I have to relocate to my childhood home and take care of my mom full-time. Dat1917 work it out at your pace and contact your local Area Agency On Aging -- they help me out with adult diapers, wipes and chucks and reimburse me for caregiver bills and/ or Skilled Nursing Facility /Adult Assisted Living bills.
any time during any 24 hour time. I do not know if they are available in your area.
My husband and I were the primary caregivers for his elderly mother who had advanced Alzheimers. Several days a week we had independent caregivers found by referrals. As expected, some were good while several were not, but the good ones were gems, and we had those two up to the time of my mother-in-law passing. Echoing KatieKate - check churches, friends, social organizations. That may be more difficult other than by phone, since you're a shut-in along with your patient.
I suggest you find more than one caregiver, because if you have one that's really dependable and that you like, they too will have their own family challenges, automobile problems or whatever. I'm just trying to say to not get your heart set on the 'good one' you end up with. Have an alternate caregiver at hand just in case, so you too don't entirely depend on 'the one'. We hired an alternate for fewer days and hours, but she was also a gem and willing to take on more hours and days when needed.
Another point I wanted to make comes as a concern for yourself! You didn't mention how long you have been the caregiver, but you may want to consider using a respite care opportunity soon. That may help during the time you're looking for caregivers; to at least have a day or two for you to recharge yourself. You may also want to look into an Adult Daycare program, which may provide you some relief one day a week or so. However, I realize getting your loved one out of the house for any outing can be in itself a significant amount of increased work just to prepare them for the day.
Last suggestion - if you're a person of faith - simply thank God that He will bring the right people into your life to help; new caregivers, a new friend etc.
I find private hires can be challenging too, and I've been through quite a few in my four years of taking care of my mom who has Alz. Disease. Thankfully, I have found two that are serious, professional women who work well with me to provide comfort and good care to my mom. (Both aides were referred to me from acquaintances.) I truly appreciate these caregivers and pay them a competitive rate. And because I also do the caregiving work still myself, I am constantly empathizing with them, providing them with the tools they need to do the job, and supporting them throughout.
If you are able to cover some of the hours with a privately paid worker, I would also recommend you search at local churches, by asking everyone you know (e.g., doctors, nurses, social workers), and by checking with those from local support groups if participants can recommend anyone. Great people are out there and want to work. The challenge can be in finding them.
Getting away feels so good, doesn't it? Hang in there. Consider using a grocery store that delivers, like Walmart, so you're not wasting your free time grocery shopping.
- The better caregivers want to work longer shifts. If you can do something like eight hours a day, three days a week, you'll get a better/more reliable person vs. a shorter shift (2-3 hours every day). Caregivers don't like these short shifts because they spend too much time driving around, so if you've got someone working that schedule, he or she will likely quit if something "better" (= longer) comes along.
- The better caregivers want extra money. If your situation is challenging (LO has poor behavior, very remote house), or if it is very important that the person show up every day (for instance to be on an international conference call), talk to the agency about paying an extra dollar or two an hour. Again, you'll attract a better quality caregiver and the $20 extra dollars you pay a week will be very worth it
- Again, if reliability is an issue, you may be better going through one of the bigger agencies. In our large offices, we keep an "extra" caregiver available in case one of the other caregivers has a problem. If s/he does not get staffed with a client, we'll have him or her do office work.
- Agencies vary a lot. Most national brands (like Home Instead, mentioned here) are franchises with each office owned by a different person, so a great experience in one location (where the franchise owner is fantastic) doesn't necessarily mean you'll have a great experience somewhere else (if that franchise owner isn't quite so good). Check references, check Internet reviews for the specific office in your town, ask friends and medical professionals for recommendations in your town.
I have also gone through an agency before. The problem was I couldn't afford the rate through the agency for very long and mom's care escalated beyond what the local agency could provide over a short period of time anyway.
Then I had to move mom onto Medicaid and was awarded 24/7 care through the state of NY CDPAP program. You were required to go through an agency, they were supposed to help you find the aides and they paid them. Well, the agency fell short of getting my help most of the time. I resorted to going on care.com to find aides.
Again, it's hard to find reliable home health aides no matter where you go. I did happen across one retired RN that only wanted part-time hours (unfortunately), but she was great and stuck with me until the end. Mom passed on Dec 8, 2017. :(
It is unfortunate that the home health aide industry doesn't have better training and that it doesn't bring in a higher level of help primarily due to the low pay. Ugh.
Good luck. Just keep pushing through and you will get there. I did, but it wasn't easy by any stretch.
I to have had a lot of trouble finding good in home care for my wife! About 10 year’s worth. I finally found two great care givers and an acceptable agency. Below is my 12 points of thing to look for and what I came to understand.
1. Find a caregiver that lives close to you! It is amazing how many problems this solves.
2. Find a care giver that does not have any other time commitments other than care giving. Several of the agencies hirer collage students which have class schedules and when their schedules change they will quit. Also if you are their second job it’s a big red flag for me. I have had more than a few not show up because they had to work late at their primary job.
3. Be inpatient with the agency. I stayed with several agencies far too long. You are paying them to manage their care givers. I would not stay with an agency whose caregivers didn’t show up more than 5 times a year. If the agency does not do a good job at first they will not get better no matter what they say.
4. Not to be prejudice against the young but I have had better luck with older retired or older housewife caregivers without small children at home. However watch their health. I have had several agencies send people out who could not walk up a flight of steps. Also be wary of their mental state. Being weird is O.K. but I have had several, sent by agencies, which were just completely gone out to lunch. Some of them denned doing thing I know they did. Saying crazy things that they do in their lives and for their health is very common and is easily ignored. We had a vegan once who wanted to completely change all the stuff we eat. She didn’t last long.
5. Each care giver has their own way of doing things. Some of which bother me to know end. However I came to understand not to sweat the small stuff.
6) Buy a safe and lock up all the valuables and meds.! Including yours!
7) Wright down all the things that you want the care givers to do(and really be specific and think about it)!!! Then make a check list of the important stuff for them. My list was a full 3 single space typed pages long. I then created the check list from that which was one page double spaced. I give the new care givers only the check list because I find that they don’t know how to read (most likely don’t want to).
8. I do my own training. The first shift I do all the work and they watch. Also, I review my big list before the shift and while I am doing the work I also talk about all the stuff on my list. The second shift they do all the work and I watch and correct them as needed and go over the big list again. This also gives me a good indication of their physical abilities and mental state. It usually takes about a month before they fully get the routine. Make sure they understand that questions are O.K. If after a month they still haven’t figured out the routine something is wrong and you need to dump them. If you can’t be around consider getting some hidden recording devices just to observe what they do when you are not watching them.
9. There is no substitute for developing a personal relationship with the care givers. The agencies tell them not to do this but I find most of them will anyway. It also can provide an early warning if something is wrong or they are planning to leave. Also, help them out if you can! I rotundity give my care givers a ride to the airport or a ride to pick up their car from the repair shop. If they will not open up to you it’s a Red flag for me.
10. Make sure they understand that this is not phone time. Every Caregiver we have had a phone problem. The quality of the care is a lot better when they are not distracted by their phones.
11. Be sure that the caregivers know that you will not can them just because the patient gets angry with them. My wife constancy complains that the caregiver does not do her job correctly. I know better.
12. My wife is very sentive to pain! Even when I am her caregiver she clams I have really injured her. I know better! So I have on occasion had to reassure the caregivers that I understand accidents will happen and that she will magnify an inadvertent scratch completely out of proportion. Of course real abuse is another thing.
I hope this helps!
It is also hard to just fill a couple of hours here and there
The other alternative is to hire independently but no assurances then either
This is rural, and caregivers drive distances. A couple of hours is not enough to pay their gas.
We started with one agency while looking ahead to a weekend getaway. The first caregiver had children in school, and no one else available at the time, so we also tried the national agency. Their's stayed a weekend, and it was wonderful! In over 5 years, we asked for someone different once with each agency, and she was immediately changed. We also have an agreement with the caregiver about snow/ice conditions, such as, if school is cancelled, use your own judgement as to local roads, and call. It takes time and effort, but well worth it. Good luck.