I’m a young adult, my mother isn’t on any social security / disability insurance but has MSA with orthostatic intolerance, we’re on Medicaid, low income, but we want to move to Boston MA. I only know two people in it but I’m not sure if they’d have the availability for me to rely on them. My concern is housing, food, refilling her medications, getting the supplies she’ll need, a mattress with a bed frame, things like that. I also don’t know how long it takes for healthcare insurance to be accepted, and she really needs that. Of course these things would be solved with thorough researching, but I’m very burnt out and caring for her 24/7, so I don’t have a lot of mental energy at the moment. I’ll have my only other family member to provide some financial support, but they overwork themselves for income, so that’ll be most of what they can do from another state. We need to move fast before winter seeing as it worsens her health to stay in this house & state.
https://www.multiplesystematrophy.org/msa-resources/for-care-partners/
I wish I had some concrete advice for you but all I can wish you is good luck.
Re-evaluate your plan vis a vis Boston. Find a state that has a milder climate and a low cost of living. Consider that it will take time for you to establish eligibility in whatever state you move to as Medicaid is state run.
You are NOT responsible for your mothers care. You are young and deserve to live the life you want away from her and her care. And your other family member that is overworked to try to provide financial support for you both shouldn't be doing that either. You both are NOT their responsibility. Only their immediate family is.
If your mother requires that much care that you can't live and enjoy your life away from her, then she may have to be placed in the appropriate facility. There are Medicaid facilities that you may have to look into for her, so you can be free from this very unfair responsibility. You deserve better! Please know that. And don't settle for anything less.
Moving to a city with a milder climate, as suggested, and a lower cost of living, is a much better idea, AFTER you research and get your living accommodations set up in advance. Along with ALL of your mother's medical needs, medications, etc.
In other words, New Mexico, sure, or a Florida city, or any number of other southern states in the USA where the cost of living is WAY less expensive than Boston MASS comes to mind. Avoid the east coast, in other words, that's my suggestion. Anyone on a fixed/limited income would do well to avoid the east or west coast cities, really.
Is family going to pay for the move? Buying your mother a bed and mattress?
You posted this time last year and looks like nothing has changed. I suggested at the time that Mom apply for Social Security Disability. It costs her nothing. She gets a SS Lawyer and he handles everything. He gets paid from the retro money received. Once you are OKd for disability, you get a lump payment from the day you applied. Your local Social Service Dept should be able to help you.
Changing States will effect her Medicaid. It does not go from State to State. And the New England States are not where you want to be.
Where are you getting Money to live on? Is Mom getting Supplimental Income? Housing voucher? I am sorry, but if you can't handle doing the research, you are not going to be able to handle a move with no help. In ur last post u just turned 18. Your sister needs to figure this out. Your Moms health seems bad enough for her to be placed in LTC. I know, last thing you want to do but you need to have a life. Training for a good job.
You need help from professionals. Call Office of Aging. As if they can help you with your situation. Your local Social Services should help. I think moving will just cause more problems for you. Sorry, but people just don't come knocking on your door. You have to get out there and find help. Its is out there. Wish you had come back to the forum last year. We could have continued to help. Office of Aging should be your first stop.