Mom has exhibited typical BPD/narcissicistic/ocd behaviors my entire life, with some psychotic outbursts. Now she is old and also showing dementia like behaviors. But she's also been a very clever actor, turning the crazy off & on at will my whole life. How is anyone to tell what behaviors are what and how to respond? E.g., long hysterical crying jags when she doesn't get her way, pretending she can't talk, or walk. And then being just fine moments later.
As time went on, I started to feel guilty and as if I were not being a "good" daughter. It almost cost me my husband, my health, and my job (after first retirement job!). You must rely on what her doctor says (if he/she has been her doctor for a long time and knows her) and share your limitations, as well as your love, for her. I ended up in therapy because of the "control" issues I had. My main advice would be to stay in close touch with her doctor, and her medications!, and only do what you feel is what you are capable of doing to help her through her ageing years. Take care of YOURSELF! Stay in touch with your doctor and tell him/her of your situation. I am no "young chick" myself (67), so I finally had to tell myself that I wanted to enjoy being with her, to do all I could for her, to love her....but not at the expense of my priorities. When she passed away about three years ago, we had spent time together and done all of the things we enjoyed doing together. Although I missed her more than I ever thought I would, I comforted myself with knowing I had done all I thought was possible to make sure she was loved and cared for properly.
I wish you well. Our situations are quite a bit different, but your question touched my heart. Remember that you are not the only one who has gone through this type of situation and do what you can live with when she is gone.
ProfeChari
Hang in there. It is so so hard. I feel for you.
Madeaa - I have done all the homework/paperwork thanks to good advice I received a while back. And fortunately she is going into a continuum care facility. You start at one end and keep moving down the block into different "neighborhoods" as your care needs increase, until you wind up in the care center (nursing home) end. I'm so grateful this place had an opening.
In highschool, the few friends I could bring over due to mom's antics would tell me that I won't know when she goes senile (the preferred word of choice back then) because she would act out so often, particularly when:
1. There was some important event not focused on her
2. You needed to be on time to something like work
3. You had accomplished something or gotten an award/reward for something outside the home
4. You had admitted the stress was getting to you. I remember my dad begging her to lay off because it was killing him. And it was. He died of his 4th heart attack.
5. No discernable reason in the world. Random was always a possibility.
6. It would alienate/isolate you for her to chase off the people you had brought over.
Maybe it doesn't matter what's BPD or dementia. She's never going to get therapy for BPD, and if her dementia accelerates, it wouldn't stick anyway. The care workers at the facility can deal with her far better than me. I decided my role here was to look out for her safety and that's it. I can't make her happy. I can watch over her bills and personal business until there is none. I can see that she is safe until the end. No more than that.
This whole thing has made me conscious of my own stress, and very willing to work with therapists and my doctor to make sure my anxiety is managed. I work in a high-stress profession and have my mom situation and life's normal pitfalls. But, I also believe some things in my life can't be controlled with a pill. I'd rather try therapy, meditation, exercise, relaxation techniques than jump right into a higher dosage. But that's just me.
I visit my mom every 4-6 weeks. It has to be on the weekend because I work full time. It can't be in the evening because of sundowning. It needs to be between 10-12 to be honest. This is not a huge window and sometimes there are conflicts with other things. No, the nurses don't always understand and think I should be there more often. Some family think her situation is my fault for going off to college,etc. It doesn't matter one whit what they think. We do what we can the best way we can and that's that.
I truly am sorry that some family still blame you for her behaviour. That is ridiculous but hurtful. The nurses should know better, IMO. But, as we see from some of the comments, anyone who has not walked this road does not know what it is like. As you say, we do the best we can.
"They say" that for every hurtful comment in a relationship, 5 positive ones are needed to offset the effect of the negatives. Living your whole life with the constant negatives, which far outweigh the very few positives, strains the relationship beyond repair and creates stress from any contact. Mother could not live long enough to make up for that, even if she had a change of heart/mind. I don't hate her. Sometimes (often) I dislike her behaviour, but still choose to do what I can to help her. I also choose to protect myself by detaching and distancing. It is the healthy thing to do. I see you do that too. Good for you.
Just because somebody is a blood relation does not give them some kind of right to run all over anybody.
Whatever happens, my advice is to NOT under any circumstance become her POA or guardian or any type of role that has a legal connection to her in any way.
It's very easy to get sucked into a very time consuming and stressful set of work to keep their finances, medical assistance, etc up & running. Forget about the time for social visits to them. Just do not do it to yourself.
The court can appoint a professional guardian for her who will deal with filing taxes, audits, inventories, and getting her bills paid.
You have done your part, so prepare to let go of that aspect as well.
My mom was dx with dementia in 2009 and has mild to moderate memory issues, but just recently dx with mania and personality disorder. My sister and I knew she had some type of personality disorder... It was a crazy life growing up, chaos, rages, anger.
A very calm and typical example is my grad, I was the only one who gradutated and she didn't want to go to my grad, she complained the whole time and took fits. My dad insisted the family go... it is always and forever about her, mean, jealous, warped and hateful.
The situation right now is that I am her power of attourney and a pschiatrist admited her to a psych unit in hospital (after she 'attempted suicide', because she wanted a psych evaluation stating she was 'competent'). Tomorrow she is finally moving to a permanent placement in a care home. I have had a difficult time enforcing many boundaries. She has lost relationships with everyone in her life, I am the only person left, and I am ready to jump ship because she is so difficult. But I was hoping to build within myself the strength to set/make/reinforce boundaries on an ongoing basis and have success and be able to have a reasonable relationship with her. That will never happen, and she has taken too much of my time and energy already. I feel like there is nothing left for me to do but let go. Focus on my family, my life, my future, myself and work on improving boundaries each day.
But I have felt alone is this because I am just coming to learn about the complexities of what and who she is and how I have gotten here and how this has impacted me. Now I am trying to figure out what is next? If there is no way to have 'good' visits, and predictibility, and relationships (not that I didn't already know that), then what I have been feeling for years, of pushing her out of my life, feeling less love for her, less need for her, more toxic and hateful towards her... it makes sense to hand this over to trustee, drop it, and let go.