LO is in a very good center, so I hate feeling like I am complaining. It's in his hometown, not ours because there were more options for visits and connection as well as medical options being better than the small town, we live in. The problem is we are 4 hours away each way and he really doesn't want to see us even if we come it only agitates him because he doesn't believe he needs MC and wants to go home still going on 1.5 years later. He's one of those that think it's our fault, whereas it was deemed required by medical professionals and agreed on by a judge. We get there occasionally and get eyes on him, and we see it's good and well as getting updates from family closer by who can visit more regular and see it's safe and clean etc. The problem is the center had a good director that communicated well and kept us, and his care plan updated but she left in January. The new one is very sweet, and she loves her patients it's clear, but we can't get communication at all. Unless you count the monthly bill, which is huge. We have gone up the chain to no avail. His care plan is not up to date as legally required. I'm not sure it's even being reviewed, and appointments are lacking/behind because they want them canceled for various reasons and then say we will help find something better suited for him but then NEVER get to us to say how we do that "better way". As POA and med proxy what are our rights? What is reasonable to expect? We'd like once a month minimum update/reply if all is well and more as needed and right now, he has issues so I feel it is needed but cannot get it. What would you do if virtually NONE of your questions were being answered, or emails replied to? I mean I am happy they clearly are putting the time where it matters most, to care, but to a degree this is also needed for care quality and consistency. We do need kept in the loop, but how?!? It's incredibly frustrating! For perspective he is 82, has multiple health issues and was incapacitated due to advancing mixed dementia (Vascular/Alzheimer's)
I would send a "sweet", nicely worded letter spelling out the problems that you have had. The fact that the Care Plan has not been updated/reviewed.
Send a copy of this letter to the Attorney that you have been dealing with and indicate that if an acceptable response and resolution to this matter is not received by (give a date 1 to 2 weeks ) you will send copies of the correspondence to the Ombudsman and they can follow up. (If you wish also indicate that the Attorney will follow up as well)
In my experience, its the RN who is responsible for his care plan. And should be responsible seeing he gets to his appts.