My Mother in law used to be very patient in any and all situations. Now, she yells and screams at the top of her lungs at anyone when she does not get what she wants exactly and precisely the way she wants. Any advice on how to handle her and to avoid these horrific outbursts?
There isn't always a medical explanation for bad behavior. Even with dementia at play, elders know how far they can and cannot push their loved ones. If MIL wants something badly enough and knows she must act civilized in order to get it, watch and see how long it takes her to clean up her act.
You're not her whipping boy nor should you be the target of her horrific outbursts. Nobody should. She's old and frustrated by her limitations, which is understandable, but to treat you in such a nasty manner is not.
First of all I suggest you find out more about her specific health conditions. You will find information on most serious chronic disease which explains what the person is going through, how it might affect them in day to day life, and how families and caregivers can best help.
In both heart and lung disease, it's important to understand quite how exhausted and frightened a person can feel especially if they are stressed or over-exerting themselves. Um, best I give you two examples.
Gentleman with advanced pulmonary fibrosis, serious shortness of breath, became depleted very rapidly on standing, mobilising, washing, dressing - any activity. What his wife, who looked after him beautifully, couldn't understand was that listening, hearing, answering, speaking, thinking also take up oxygen. When he gave her curt answers, or winced when she talked to him, she felt hurt and disrespected. But the man felt as if he was drowning, all the time. He literally didn't have anything to spare.
Lady we're currently supporting has advanced COPD and is on 24/7 oxygen. I like her a lot. I am the only one of my service who does. She is *incredibly* rude and impatient - or so you think, until you mentally add back in all the normal courtesies that she no longer has breath for. She barks instructions at you - do this! No! Not like that! Like this! Put that there! Give me that! - and if you get something wrong (i.e. don't do it exactly as she would) she snatches the task from your hands and virtually pushes you out of the way. But, no, she can't spare breath for please or thank you; she doesn't have the energy to wait; and because she thinks we're all bossy morons she won't sit tight by the fire and let us bring her her meal - she pushes her O2 canister into the kitchen and stands there keeping us under close supervision.
So. Key factor is probably that your MIL is feeling physically dreadful. When she needs something and shows signs of impatience (or you know there's going to be a delay, so you can anticipate she will), reassure her that the thing will be done, then courteously insist that she gets comfortable first and focuses on relaxation. If she has this sort of sense of humour, you can look her in the eye and say "yes, I'll get onto that right away, but Breathing Comes First. Soon as you're comfortable I'll fetch your drink/magazine/cat o'nine tails..."
Best of luck, May you never feel as bad as she perhaps does.
My parents did quite well (all things considered), but time & time again (while both were alive and after Dad was gone) if there were REAL problems with "anger and meaness," I would have them tested for UTI & (at least) 95% of the time when that was treated, they were back to normal.
Why? No one could ever explain it.
But it is a simple test & can produce AMAZING results.
THIS. YES.
Also what comes to mind is the stress factor chart (Holmes-Rahe stress inventory).
Approx 50-100 may push a person from their comfort zone. Anything near 100 is very high stress. Over 150 *sustained*can increase chance for health breakdown.
#1 Death of spouse 100 pts.
#6 Major personal illness 53
#34 change in recreation 19
# 36 major change social 18
MIL is adapting to MANY changes & I'd guess at the LEAST is at 190 points.
Hopefully with grief counseling & a loving family for support she will adapt to these changes & stress will reduce.
1. Empathy goes a very, very long way. Put yourself in her shoes with the loss of your spouse and very painful back issues. I have a herniated disc and when it was acting up its worst, it was the worst pain I’ve ever been through, including childbirth.
2. Reflect what she is saying back to her. This lets her know that you hear her and will comfort her.
3. Give her limited information on her condition. Be honest, but you don’t want to scare her and you don’t want to overwhelm her with information she cannot process.
4. Distraction, distraction, distraction. Find ways to distract her. Change the subject to something positive, something fun, something she enjoys hearing about it, I.e.., her grandchildren. Use music, poetry, prayer, photos, and talk to her about her husband. Share stories about him. Let her express her grief. A word of caution though, If her dementia is so advanced that she can’t remember that her spouse has died, then you don’t want to keep bringing that up to her because it’ll be like she is hearing the news for the first time every time it’s brought up. If this is the case, when she asks for him, just tell her that he’s gone to the store or some other excuse. She won’t remember.
5. Use lots of humor. Give her silly and outrageous responses to her requests and demands that will bring a smile to her face. This creates distraction as well.
6. Tell her you love her. Give her as much affection as she will accept. We all need love and affection.
7. Understand that these outbursts are a part of her condition and are her brain’s ability to communicate at this point. With dementia comes a loss in language skills, vocabulary, comprehension, and the ability to produce formal language. However, the brain retains the ability to say expletives, sexual talk, racial talk, and ugly words, It is hard for us to see this as the brain retains the ability to converse—you know, the back-and-forth of conversation. Dementia patients retain the rhythm and intensity of a conversation, but they cannot make out words. They hear sounds, but not the words.
Yourr mother-in-law is doing the best she can given her circumstances. You are a wonderful daughter-in-law because you reached out to find solutions instead of fighting with her.
Does she want things done "Right Now!" ? My Mother does - it looks like she cannot trust her memory to hold the request for any longer than 'now'.
Tantrum behaviour may be due to verbal or social skills diminishing? Sorry to compare to a toddler, but when the child grows & can express themself better, the tantrums reduce. It can be a sort of reverse of that.
1 - start with her primacy care doctor to rule out infections, blood chemistry imbalances, or anything that might lower her oxygenation to her brain;
2 - if that checks out OK, she may need to be seen by a neurologist for further evaluation of "brain causes" (strokes, decreased perfusion to brain, or new types of dementia....) and/or
3 - a geriatric psychiatrist to evaluate and treat behavior problems.
Going forward, your MIL will probably do better in a consistent environment that is simplified (less new things or stimuli to react to) and consistent routines. She will probably be prescribed anti-anxiety medications and maybe some other medications. Please realize it can take weeks for a psych medication to be effective and for your MIL to get used to sedating side effects.
Also, please read “The 36 hour day”. Both have been invaluable dealing with my 99 year old Mom.
There is no magic bullet but tools to help us navigate.
Mom lives at home with 24/7 care..... I live down the hall from her and manage her care and life.
My heart goes out to you both.