My husband who is at about stage 5 Alzheimer’s is experiencing significant behavior issues. He’s not wandering yet but it’s like he’s 5 years old most of the time. He talks in a child’s voice, makes crazy faces and plays like a kid. Nothing harmful yet, just constant and a little annoying. Anyone experience this and have any suggestions on dealing with this?
Give him some tasks to do that he can accomplish. (pairing socks, folding towels, hanging clothes on a hangar if he can do that. Come meal time he can help set the table, clear the table, load the dishwasher or wash dishes. Be careful of sharp knives and heavy glassware like casserole pans)
Like a lot of other things with dementia this phase may pass and believe it or not you may miss it.
Remember, this is a destroying disease, the next steps progressively get worse. Some still may be ok moodwise (but maybe he stops talking or doesn’t recognize you), but another’s dementia leads them down a dark path. You may not be able to handle those stages at your home.
I got through it with a sense of humor, because that was my husband’s and Papa’s favorite thing - even though it just about did me in some days.
Whatever it takes - a long shower, a glass or two of wine, a long talk with a friend, screaming into a pillow, a mild antidepressant, a nap when he naps, whatever. These are not normal times, so chuck normal duties out the window if you need to.
Sending a huge bear hug to you, be sure to come back. Everyone who’s already been through it can be a great help!
Great idea, but with ALZ and dementia, one has to be cautious about choking hazards!
" caregiving". Perhaps have your husband attend some type of day program like ARK or other adult day programs for dementia patients. This will give you a break.
As far as what to do , as long as he is safe, you can choose to simply smile and continue what you are doing or you can choose to engage with him where he is at the moment . It is a tough call sometime, but frankly sometimes letting them ' be in their world/ space' ( as long as safe) does not necessarily mean that you have to also act like a child and enter into it with him. You can simply beca presence of affirmation being sure he is safe .
Speak with folks at ARK or other related dementia care specialists for best practices.
Practice good self care for you to help avoid " caregiver exhaustion".
You have a parent/child relationship now and you're the parent. Yes, it is a bit annoying now and it would be a good time to start sending him to adult daycare if you don't already. You have to have respite from caregiving. When people don't, a bit annoying turns to anger, rage, and abuse.
P.S. I appreciate all your responses / feedback to us. Are you still Burnt? I hope you've recovered.
Thank you.
Gena / Touch Matters
You will need support in this. It is hard to see a loved one, much less your spouse, go through this. Sounds like you will soon need physical caregiving help as well. God bless you!
As with all the stages, they typically don't last long before another step down is taken, so I would say to try and be grateful that he's at least not violent, angry, aggressive or wandering(yet.)
And make sure that you're taking good care of yourself and getting out and about doing fun things that you enjoy without your husband. And if possible, find a local caregivers support group that you can unload with and find people that understand exactly what you're going through, and will be there to support you on this journey that will only continue to get worse.
Best wishes.
I suggest you read this 33 page booklet (which is a free download) which has THE best information ever about managing dementia and what to expect with an elder who's been diagnosed with it.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia.
The full copy of her book is available here:
https://www.amazon.com/Thoughtful-Dementia-Care-Understanding-Experience/dp/B09WN439CC/ref=sr_1_2?crid=2E7WWE9X5UFXR&keywords=jennifer+ghent+fuller+books&qid=1657468364&sprefix=jennifer+ghent%2Caps%2C631&sr=8-2
She also has published a workbook entitled, “It Isn’t Common Sense: Interacting with People Who Have Memory Loss Due to Dementia.”
https://www.amazon.com/Isnt-Common-Sense-Interacting-Dementia/dp/1481995995/ref=sr_1_4?crid=2E7WWE9X5UFXR&keywords=jennifer+ghent+fuller+books&qid=1657468655&sprefix=jennifer+ghent%2Caps%2C631&sr=8-4
Here is a list of useful tips from her e-book I found to be excellent:
The “Dont's”
· Do not reason and argue
· Do not demand that they reason or problem-solve
· Do not demand that they remember
· Do not demand that they get their facts straight
· Do not correct their ideas or scold them
· Do not reorient them
· Do not think that they are being uncooperative on purpose
· Do not think that they really do remember, but are pretending not to
· Do not use a “bossy” dictatorial attitude in care
· Do not act with impatience
The Do's
· Enter into their frame of reality, or their 'world'
· Be aware of their mood or state of mind
· Use few words and simple phrases
· OR use no words, just friendly gestures and simple motions
· Do everything slowly
· Approach from the front
· Wait for a slow response
· Constantly reassure them that everything is 'OK'
· Keep people with dementia comfortable 'in the moment' - every moment
· Maximize use of remaining abilities
· Limit TV or radio programs which they may feel are frighteningly real
· Maintain privacy
· Provide a safe physical environment
Language Needs
· Use short words
· Use clear and simple sentences
· Speak slowly and calmly
· Questions should ask for a “yes” or “no” answer
· Talk about one thing at a time
· Talk about concrete things; not abstract ideas
· Use common phrases
· Always say what you are doing
· If they repeat their question, repeat your answer as you did the first time · Give them a longer time to process information
· Wait patiently for a response
· Be accepting of inappropriate answers and nonsense words
· Speak softly, soothingly and gently
Care Needs
· Recognize that receiving personal care feels intrusive
· Reassure with your tone and manner
· Do one thing at a time
· Talk through the care “play-by- play”
· Be aware of your body language and use it to communicate relaxation and reassurance
· Be sincere
· Use a soft, soothing touch
· Be aware of the individual’s unique triggers
· Be aware that a person with dementia may not accurately judge whether a situation is threatening to them
· They may respond to fear, pain or anxiety by defending themselves with what we call “aggression”
· If they become distressed, stop immediately and allow them time to calm down – don’t try to restart the activity right away
You need to change your behaviour to adapt to the dementia because the person with the disease cannot.
Wishing you the best of luck with a difficult situation.