Many of us, myself included, come from a dysfunctional family which adds a lot of weight to the challenges of caregiving. I have read stores on various threads on other topics and decided it would be good to have a thread just for this topic for people to share, vent and discuss.
The idea for this thread originated on the thread named "The Caregiver....How are YOU doing today?"
195Austin-- I wish I knew a NH would not kill her.. but I do believe it would.. I am going to look further into possible Assisted living type place that doesnt cost a crazy amount each month.. I do know I have to do something.. the stress is affecting my health.. I hope one day to find the peace you have found and take back power of my life.. or get power really because I dont believe I ever had it.. If I did I know my life would of been much different..
My reason for sharing this story.. Is I have tried (very recently) to put the past hurts in Gods hands.. because I am all my mom has... and it has been no easy road w/her here in my home.. but this site also has helped me so much.. just being able to vent is so very helpful.. Julieann.. I hope you find peace in the road you have ahead of you.. and we are all here for you!
Heres an update since I got my mom out of the hospital.. It has been horrible.. since I brought up having her eval. for dementia/ALZ... she is so angry.. she feels my husband and I are trying to make her crazy.. I honestly dont know how much more I can take... she is still not speaking to my husband.. so it makes it very stressfull in my home.. and my sons brain surgery is going to be coming up soon.. I wish assisted living wasnt so damn expspensive.. and a NH is not an option because I know it would kill her to be put into one.. I feel very mentally drained..
I'm sorry for the abuse you and your siblings had to endure while your mother looked the other way. According to what I've read on that subject, it is not uncommon for the mother to know, but to also look the other way.
Emotionally speaking my MIL treated my wife like a substitute spouse. I had a similar abusive experience with my narcissistic mom.
I'm sorry for the abuse you and your siblings had to endure while your mother looked the other way. According to what I've read on that subject, it is not uncommon for the mother to know, but to also look the other way.
Emotionally speaking my MIL treated my wife like a substitute spouse. I had a similar abusive experience with my single parent narcissistic mom.
But, I remember giving my mom a piece of advice. Also, in mom's eyes, no woman was good enough for her favorite son of all things. So I told her, that it would be to her benefit to be nice to my sister-in-law, after all she was now in the family and married to my brother. I also told her that if she wasn't, she would run the risk of alienating my brother from mom. Well, mom managed to be let's say polite, but I could always tell that she wasn't fond of either of my sister-in-laws. Well, I'm happy for you that you've made a connection w/you nephew. It's good when we at least have a few good eggs in the family. Take care, Margeaux
I'm glad your sister and you are close. After such a hard childhood, many children barely talk to each other.
My parents are both dead, my brother ... well ...he's good at the business end, but doesn't have an empathetic bone in his body. (An expert has told me he actually suffers from Asperger's Syndrome, although he has no idea.)
My sister,,,,she's a PIA. She is nasty, negative, uncooperative, denies there's a problem, lies, sneaks, refuses to comply with any of my requests.
I'm sure this is the right place for me especially since I do not have 1 "warm fuzzy feeling" for either of my siblings. I've been in therapy for 17+ years so I've learned that I'm okay, I just grew up in a terribly dysfunctional family going back generations.
My sister has now been living with me for nearly 10 years. I did have the chance after the crisis, to permit my brother to put her in a facility, but I thought I could do it. He said she'd continue to destroy me. Well...now after enjoying a 4 month break while she lived at my brother's and he determined what would happen, she's been back her for just about 3 months....I'm back to my self-destructive behaviors....drinking.
Any suggestions??? Should I just say "good-bye" and let my brother put her in what she can afford on her SSI?
I haven't posted for a few days.
Cmag, I was reading about your wife's carpel tunnel surgery, I hope you and she are doing better, and I wish you nothing but the best for a speedy recovery.
Well I was reading also what people were saying about detachment. I am not the live in caregiver in my family, my sister is. She's been living in mom's home for the last three years. She's been in charge of my mom's sister, the narcissist who just passed a month ago. My mom has about stage 4-5 ALZ. Mom was always her sister's enabler. Throughout my life mom really had this need to always be at her sister's beck and call. My aunt who I had posted couple weeks ago, about her abusive behavior into her senior years until her death didn't just start then. She had a history of being verbally and physically abusive to grandma, and I even witnessed it on a couple of occasions when I was a kid. Mom knew of many instances, and I never felt that mom came to either my sister's or my defense. She allowed it by ignoring it. She also permitted my aunt to be in our lives constantly, her sister even lived with us throughout the years, so there was no getting away from this toxic individual. Unfortunately, dad didn't have any boundaries, because he just seemed to go along with mother's plan, I guess to keep the peace with her.
But in this game of dysfunction, this certainly sent the message to us that we somehow didn't figure into mom's definition of being a responsible parent. So my sister and me definitely became like the little mother's for my two younger brothers. Funny thing is that mom has always looked up to my brothers as if they are some kind of kings for being men....the gender thing. Anyway, now that it's been exactly a month mom lost her sister who died at age 93, mom's 91. So mom took it hard at first. But now she doesn't talk much about her sister she was sooooo co-dependent upon. I do go there, but live across town. My sister has caregivers in place, one even spends the night. But sometimes I try to help out, in the sense that over a period of time I've been trying to encourage my sister to really become more informed about ALZ. I realize she's been stressed with the situation of living over there w/mom and previously my aunt. She has POA, MPOA of my mom. She lives there of course doesn't pay rent, and has a full time job. My sister up until now has been pretty controlling of many situations w/respect to my mom. I feel like on the one hand she lives there and she does a great job. She just doesn't know sometimes when to quit. While my aunt was still alive, of course my sister never did look into say some kind of adult day care, so as to keep my mom at least minimally busy. I had suggested this a long time ago. But this is where some of her control attitude kicks in. I notice that whenever let's say I've suggested, that maybe a program could be sought out, she would shoot the idea down saying, "Oh mom, wouldn't want to go unless her sister was able to go w/her, (her sister was getting immobile by then). Anyway, after my aunt passed away, the very next day my sister called to tell me she had mom out for several hours shopping and to get her nails done. When she ran down the itinerary of that day, she almost had this tone in her voice, as if saying, now that mom's sister was gone....mom was going to hop to it, and be out and about all day. Mind all of you, mom had for the last year pretty much been home bound, of her own choice.
So I didn't say anything to my sister at hearing this, but thought, well o.k., I hope she doesn't tire my mom out. My sister started to tell me right after this that she felt as if my mom became more alert, and was awake all day the first week after the death of my aunt. So today a month later, my sister called saying she felt angry. She now feels as if mom went back into her usual ALZ mode, of sleeping all day, and as she refers to it, "tuning out." While I admit that my mom maybe didn't many times show loyalty to me, nor my sister, so I don't feel real connected with mom, I also realize that she's suffering the effects of the ALZ. My sister sounded pretty upset about the tuning out, and says things like, she feels she does so much for mom, but there's no response from her, etc. When I try to interject w/rationale about the progression of the ALZ, I know it falls on deaf ears.
There's a part of me that sympathizes with my sister, but then I feel like here is the control factor again. O.K., can anybody give me some insight, am I on the right track here? Yes, I try to stay detached. Then there's more, but I'll talk about this later, as I'm afraid I've written a book by now! HAAH, Have a great evening all!
Margeaux
I wish I could think of some advice, but I can't. I hope that you can sleep well tonight. Sometimes things work out while we sleep and everyone gets a fresh perspective in the morning. We know you were acting in your mother's best interest.
While my mom was in the hospital I discussed my concern w her Dr. about the possiblity that she has dementia.. so he arranged to have a neurologist due a consult.. she was fine at one point w it.. she even agreed she has felt many times confused and forgetful..she was all for seeing this dr. and possibly starting medication.. but as the day went on and she saw that she may have to spend another night in the hospital she went into this other personality.. calling me every 15min.. threatning to leave.. calling the nurses.. the nurses calling me.. she was dead set on not spending another night in the hospital waiting for a Dr. she did not need to see.. She called me and accused me of making her out to be crazy.. this broke my heart.. I reached my breaking point.. I just broke down and cried and cried.. at this point it had been a few days of me running up to the hospital bringing food..talking and talking to her..explaining things over and over.. I couldnt reason w/her on any level.. and this isnt the first time when my mom doesnt get her way that she has acted like a spoiled child.. even when she is home (at my house) if she doesnt get her way she threatens to leave and go to "her" house..or she wont come out of her room..or eat.. so yes.. I just broke down.. My husband went up to the hospital to try to reason w/her.. well this made everything worse.. he told her she needed to stop acting like a child and understand that I am trying to help her ect.. long story short.. she is now home(my Home).. her primary Dr released her due to her performance w/out seeing the other dr.. and she wont come out of her room when my husband is home,or eat, and she insists she is going back to her house.. I know she cant.. and my husband says for me to just ignore when she says this.. but she is so angry she wants no part of being here.. assisted living or NH is not an option.. so as I said to my husband it was hard enough before this.. now living like this is impossible.. The combination of her personality plus the possibility of dementia is a nightmare.. One part of me is so very sad.. one part is angry.. and what ever is left is just completly burnt out... now I am in the middle of my mother and my husband.. my mom feels I am taking his side.. but I know the truth.. just when you think things cannot get any harder or more stressful.. they can..
I am sorry that you suffer from a mental illness. As you know from experience, it makes care taking harder and dealing with your mother's emotional blackmail far more difficult. My own mother is a narcissist and I have bipolar disorder. I could not survive, nor could my family survive if she was anywhere but in the nursing home.
A certain degree of being selfish is healthy for we must detach emotionally from those who want to suck us into their drama queen or drama king insanity.
I hope the therapist can help you with your anger which sounds very deep with a lot of history underneath it. If not, I'd find another therapist.
One thing that helped me with my anger was to write my mother a letter, read it to my therapist after which we burned it in a fire proof container and cast the ashes to the wind. I hope you find some peace from your hate and strength to be more detached with love from your mother. You didn't make her how she is. You can change her. Nor can you control her. All you really have control of is you and choosing a healthy path for yourself in taking care of yourself despite what your mom does or does not do.
I also suggest going back over this thread and find what I posted about detaching from narcissistic and or borderline type people, or any type drama king or drama queen.
I wish you well in your journey.
When the children leave the thorny nest, expectations don't change. Parents expect the kids to call and to visit, though they themselves don't. When they grow old, they expect the children to give care, though they themselves never did. Many say things like "you owe it to me." Why? because you never came to my baseball games or school functions? because you never came over to see me? because you went for several years without calling? because when I was in the bed ill you acted like it was an inconvenience to you that I couldn't come home for Christmas?
When we mature, we have to make decisions about whether to carry on the bad feelings or pull ourselves out of them. Most healthy people will pull themselves out and not get caught in the old quagmire. Many people have to separate completely. Others can separate emotionally. I don't think there is any one right way to do it. It may be that some need a combination of both -- physical separation followed by emotional separation.
As someone who has recently moved back into a one-way situation, I can say it is hard to stay emotionally detached when physically close. I consider myself fairly mentally healthy, but it has been a huge drain on me physically and emotionally. I have gained a lot, however, in learning to live beyond the anger. The anger I was feeling was chewing me up on the inside. I have a feeling there will be some other positive benefits, too.
I think each person from a dysfunctional family has to look at their situation and decide what is best for them. If it is something that benefits the parent, but harms the child, I would err on the side of the child. There are too many other options than to put the adult child through the same abuse. I remember a few years ago when I first considered moving back to take care of my parents I thought that they had almost destroyed me as a child, why would I want to return and let them finish the job? Circumstances change, however, so each of us has to do what we feel is best when WE feel it is best.
it may be slightly vulgar so put on your delicate sensibilities vulgar proof ear buds.
here's what you said....
"My husband and I have been chosen by my 92 year old dad to be POA and Health Care Proxy, much to the displeasure of my three brothers, their wives and families"
I would advise them all to pound sand into the appropriate orifice immediately if not sooner. that's my advise. I hope this helps. good luck!