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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
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I would start by taking him to the doctor for a cogntive and memory test. You don't have to tell him this is the reason for the appointment -- a "therapeutic fib" is morally and ethically ok in order to keep your loved one calm and cooperative. An accurate diagnsosis is important. Also ask them to test him for a UTI, which can cause sudden and rapid changes in behavior, cognition, memory, etc. There are other health problems that can create dementia-like symptoms as well, many of them treatable.
Next, make sure all his legal ducks are in a row: he has an assigned medical and financial PoA (and please, not you (or only you) -- it needs to be someone at least a generation younger than him). He should have a Advanced Healthcare Directive, too.
Finally, you will need to educate yourself on dementia (if this is the diagnosis). In this forum, under Care Topics find D for dementia and read. Also, Teepa Snow has very excellent videos on YouTube that I found very helpful. There are also books, and probably podcasts as well.
You are in good company on this forum -- many, many have been in your shoes and can give you support and advice. May you receive wisdom, clarity and peace in your heart on this journey.
It broke my heart when my mom began to call for her mother and confuse me with her, and this was very early in her spiral into dementia. My mom did get over that phase and recovered somewhat for a time, but it was definitely a sign of things to come.
Sounds like this is more than just "mild cognitive" issues. I would try and get him in to see his neurologist for a more definitive diagnosis. And in the meantime start educating yourself about the disease of dementia so you won't be so frightened when changes and declines happen, as both are inevitable. The book The 36 Hour Day is a good place to start along with books and videos by a dementia expert Teepa Snow. And find a local caregiver support group where you can share with others what you're feeling and going through. Also make sure that you have all your legal paperwork in order like POA's(both medical and durable)because if he gets too far into his dementia he will no longer be able legally to designate someone for those. You're going to be ok, just do your homework and start getting your ducks in a row.
One of the earlier signs my mom displayed of her dementia was when she'd introduce me as her mother. The first time she did that, I turned around to look at her, expecting to see her laughing. She wasn't. She was dead serious!
I suggest you read this 33 page booklet about dementia and what to expect with an elder who's been diagnosed with it. Lots of Do's and Don't tips for dealing with dementia sufferers are suggested in the booklet.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia.
The reviews for her books are phenomenal b/c they are written in plain English & very easy to read/understand. Her writings have been VERY helpful for me.
This is more than mild cognitive decline. It doesn’t just happen overnight.
Definitely start educating yourself. You’ll need to be prepared for the next things that happen. You’ll need to manage a lot of issues from here on in, The legal things should be first priority.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Next, make sure all his legal ducks are in a row: he has an assigned medical and financial PoA (and please, not you (or only you) -- it needs to be someone at least a generation younger than him). He should have a Advanced Healthcare Directive, too.
Finally, you will need to educate yourself on dementia (if this is the diagnosis). In this forum, under Care Topics find D for dementia and read. Also, Teepa Snow has very excellent videos on YouTube that I found very helpful. There are also books, and probably podcasts as well.
You are in good company on this forum -- many, many have been in your shoes and can give you support and advice. May you receive wisdom, clarity and peace in your heart on this journey.
And in the meantime start educating yourself about the disease of dementia so you won't be so frightened when changes and declines happen, as both are inevitable.
The book The 36 Hour Day is a good place to start along with books and videos by a dementia expert Teepa Snow.
And find a local caregiver support group where you can share with others what you're feeling and going through.
Also make sure that you have all your legal paperwork in order like POA's(both medical and durable)because if he gets too far into his dementia he will no longer be able legally to designate someone for those.
You're going to be ok, just do your homework and start getting your ducks in a row.
I suggest you read this 33 page booklet about dementia and what to expect with an elder who's been diagnosed with it. Lots of Do's and Don't tips for dealing with dementia sufferers are suggested in the booklet.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Jennifer is a nurse who worked for many years as an educator and counsellor for people with dementia and their families, as well as others in caring roles. She addresses the emotional and grief issues in the contexts in which they arise for families living with dementia.
The reviews for her books are phenomenal b/c they are written in plain English & very easy to read/understand. Her writings have been VERY helpful for me.
The full copy of her book is available here:
https://www.amazon.com/Thoughtful-Dementia-Care-Understanding-Experience/dp/B09WN439CC/ref=sr_1_2?crid=2E7WWE9X5UFXR&keywords=jennifer+ghent+fuller+books&qid=1657468364&sprefix=jennifer+ghent%2Caps%2C631&sr=8-2
Educate yourself about what lies ahead as dementia progresses. Knowledge is power.
Best of luck
Definitely start educating yourself. You’ll need to be prepared for the next things that happen. You’ll need to manage a lot of issues from here on in, The legal things should be first priority.
So sorry this is happening.