I had been taking care of both of my parents for over 2 years. Since my father passed away last year, I have been taking care of my mom. She lives 30 to 1 1/2 hour away from me and for a long time, I have been going to her form 3 to 5 times a week. My mother has dementia and she has many health issues. She used to smoke 1 1/2 packs to 2 packs a day and now with the help of 3 to four aides, she smoke 1 to 3 cigarettes a day. She was in hospital many times in one year! Since she fractured her hip a month after my dad passed away, she cannot walk around and needed to be reminded to use her walker. To make long story short, I am taking in a way taking care of her 24/7. including taking care of her bills. My husband has been unemployed for 2 years and I have some health issues and I am in a sense working full time taking care of mom. I am not getting paid to do this and my family and I are financially strapped! I don't know what to do about this! My sister lives out of country and the original agreement was that we get equal share when mom pass away. I don't think its fair. Also I need to make some money in order to take care of mom! I told my sister that if things heading this way, my family and I can lose our home. She did not say anything nor did say anything to support me. I am so lost and scared and don't know what to do anymore. Any suggestions?
My suggestion is to step aside from the emotional triggers, eliminate the guesswork and SEE AN ATTORNEY.
Find out exactly where you stand and what it would take to get compensation and perhaps recoup your losses. If you cannot afford an attorney, you can contact your local legal aid group and ask for help.
Blessings for all in this situation and may peace prevail.
So, I take her to a day program that gives me about 30 hours a week. There are caregivers that work 40 hours, but they have other help that can be relied upon. I know several cases where the other caregiver comes in three hours in the morning, transports to day care, comes back to pick up a day care, prepares dinner.... In my area just those six hours, there is a three hour minimum here, would cost $90.00 a day! If the family caregiver is emotionally stable, and patient they are providing care that cannot be bought anywhere! To do so for nothing only benefits other beneficiaries.
first of all, my mother lives in another state, NYC. The medicaide in her state in far better than in my state. The time to travel is all depends of the traffic. I tried my best not to go during rush hour. NYC traffic is very unpredicatable. My sister and I agreed for now until she can get medicaide, that she is to remain home with the help from the aides 24 hours a day, although we don't know what she will be like a year to 5 years from now. We never know if she going to get sick or hurt herself. Although I hired the aides, my mom rarely go out therefore, I am the one who go food and accessories shopping, take her to doctors, etc. My sister and I are working with elder lawyer for over two years and still havnt set up trusts for mom! Too much long distance communication! Unfortunately, due to my mom dementia, she is not capable to make any type of decisions, so making another will is out of question. I did bring up about getting money to help with my expenses, but the law is against any indirect expenses. I am still working with the lawyer to see if we can be cleared with this. I cannot work for two reasons: One is i have a lot of health issues and to make long story short, I need approximate 5 surgeries! And the other is taking care of my mom is unpredictable! She was hospitized many times and I cannot start a new job and leave everytime something goes wrong with mom! I f I cannot get an allowance as one of you mentioned, then I will have to spend less time with mom and try to find a way to work from home. I hope within the next few days, my sister and I will clear this mess and get started on the trust before the year is out! Thank you all for wonderful support! I am glad that I am not alone in this!
Talk to your sibling or have an intermediary speak with your sibling. Why would your sibling reject the idea of having you draw money from your parent's assets to help care for your parent? As long as your parent's assets are used in the best interest of your parent, your sibling shouldn't have a problem with it. Drawing from your parent's assets, for care giving, is not a violation of trust.
And if you feel you can no longer care for your parent based on the toll caregiving is taking on your life, tell your sibling you can no longer do this, and that other arrangements for care must be made. If you destroy yourself caring for your parent, neither you nor your parent benefit in any way. Getting in-home care assistance, by drawing from your parent's assets, may be one way to get much needed relief. Use of your parent's assets for respite care, is also an option. And if you tell your sibling you're at the end of your rope and simply can't care for your parent any more, your sibling may offer options you've not thought of to provide caregiver relief.
I have told all of them that if I have to sell every last thing that they have to get my mom good care, then I will.
Whether that means that I get paid for taking care of her 24/7 or if she is in an assisted living facility. To me it only matters that she is being cared for well. I’m meeting with an attorney tomorrow to iron out the details.
Talking to your mother about it might not help since she does have dementia but you can try.
If you can get an elder attorney (which much of the time they will give you a free consult) if you can get one to advise you on putting together a contract for you to get paid for the hours that you are taking care of her. Present this to your sister. You are doing a job. It isn’t easy. I take care of my mom who has dementia 24/7 and I love her, but it’s a job. It takes away from my income. It’s actually cut it in half. That’s a hard hit to take on one’s family.
I used to drive 11 hours (each way) once a month to go check on my parents because none of my other siblings would. I spent close to $40,000 over the course of 4 years when my dad was ill. I have siblings who say that I spent that money out of the goodness of my heart and that I shouldn’t be reimbursed for any of it. And, I wasn’t reimbursed. That is money I will never see again, but I’m still paying those credit cards off.
I feel that if you are spending that much time taking care of your mom and it is preventing you from getting a full time job, then you should be paid for taking care of her. Even if it is the $10/hour that some of the private pay respite care providers charge. It adds up and will help your family.
You have already mentioned to your sister the inheritance issue. Why not pursue the being paid for your time issue.
There are some states that will pay family members for taking care of the elderly. You can find this out through Medicaid. There are fewer states doing this nowadays without the care receiver being qualified for Medicaid.
If she qualifies for Medicaid (which she may not if there are asset that you are fighting over) then the state will pay you money for caring for her. They prefer that to her going into a nursing home.
Good luck to you. It’s hard when everyone is fighting over money that doesn’t even belong to them yet. I look at it as though it is my mom’s money and I will use it to take care of her the best I can. If there is anything left after that, then it will be split evenly (between 9 siblings here).
Bless you and take care.
Say mom raised you and siblings in the house all of childhood. She made sure everyone knew she never wanted to go to a nursing home. She also has a trust in place that states anyone is to be paid for a service they provide and those monies are to be withdrawn on a monthly basis to pay for her care. One of several siblings steps up to care for mom to keep her in her home. Sibling does this out of love, most would never do this for someone I didn't. To complicate matters, mom develops Alzheimer's and all know that the best place for her is at home.
One of the children does all of the care for mom, give up career, home, family to provide the care. Wouldn't any parent want that child justly compensated, especially if that child does everything? If all shared equally in the responsibilities then that is another story. Other children live in the immediate area and continue on with their lives and careers and family and home but just do not have the time required. That child providing care is not paid because another sibling has POA's and controls all funds.
Wouldn't parent want money to go to family rather than a facility? ie pay for care provided by a child? Even if money is exhausted Medicaid allows payment to family caregiver with a contract in place for a reason. It saves the system money in the long run. There are many misnomers about Medicaid. It is not second class health care. It is the same care that anybody that privately pays would receive. Many nice facilities have a number of Medicaid beds to move private pay residents to when money is exhausted.
Or, if your mom has enough income, I suggest, as others have, that you determine a fair rate for the care you're providing and have her pay you (in a way that's documented).
You need a care agreement prepared by an elder law attorney that is compliant with Medicaid rules. Most states allow payment to family caregivers for necessary care as documented by a doctor. Why should sister benefit from your sacrifice? Been there, done that!
xo
-SS
how do your mothers bills get paid? is their a POA? good luck!
I have a sibling who has told me he's entitled to more than half of whatever because he used to work on the parents cars 20 years ago when our dad was in his 50s and he was still working full time. Never mind the fact our parents helped set him up in a house, so I think he's been paid back for the little bit of work he did. A little detail he leaves out. Anyway, if your husband is unemployed, you are struggling and in a position where you have to pay for some things for your mom, then your mom should be on Medicaid and of course there is probably some social security benefit to her as well. It sounds like the sister doesn't really care either way, even though she's out of country, she probably knows the financial situation your mother is in. And thus what is the inheritance if you have to pay for some of her needs? I'm going to guess the home. I'd ask the sister for financial help to pay for some of those things mom needs that you're covering, have her split it with you. Also Mom can keep the house and be on Medicaid, but as soon as she goes into a nursing facility for a certain amount of time, the house must be sold. Medicaid is very strict. If this is the situation actually, husband is not working, maybe he has disability, you keep looking for work, mom eventually goes into a home, then the house must be sold and the funds go to Medicaid as I understand it or whatever medical debt your mom has when she passes will not be covered by Medicaid until the rest of her property is sold and that covers it. If you and mom manage to keep things going, and keep her off Medicaid to hang onto the inheritance, and she passes, the estate must still go to probate, and I can tell you for a fact, attorney's don't care who did what or who says what, in the end it'll be divided in half. Just don't let the attorney's stir up the hornets nest so to speak and drag it out, and most will, the only thing accomplished by that is the attorney's get to charge you more, they love it when siblings fight over inheritance. You can try to get mom to do a living trust, with a clause that you get more because of the help you gave her. A friend of mine just went through this, it took two years of hearings, she was dragged through the mud. In the end after the medical cost her mother incurred, there wasn't much left anyway and it was like a nightmare of a probate hearing. If you do try to do the trust, it will cost to do it, no cheap.
You might consider moving her in with you if you have your own place, or get your own place, even just rent somewhere, then you can technically use some of her social security to pay for the utilities and such since she's using some of them, same with food. You won't have the drive anymore either to take care of her which will save on fuel cost. The time saved because you don't have to drive so much, will give you more time to look for work. When she gets sick again and has to go into the hospital, you can keep her in the hospital, then transfer her to skilled nursing for a while which medicare will cover to give yourself a break before she comes back home. Almost everybody here knows how that goes. Good luck, everyone's situation is so different, hopefully you can get some good ideas here, something that will help you out.
I'm in somewhat of a similar situation. I'm trying to work to pay my own bills and hang on, my dad wants me to quit working and move in with him, if I do that I know I'll be homeless when he passes, that's a guarantee, so I'm doing what I can now to find more work, and take care of myself because if you can't take care of yourself first, you can't take care of anybody else. I've been driving back and forth to his house for ten years, hospital stays, heart attacks, cancer, etc....
Consult an elder law attorney, or the attorney who drew up the will to see about compensation now for caring for your mom. It makes more sense for you to get paid now, rather than wait for your mom to die. Think of this as getting your inheritance early (and you are performing a job that you should be compensated for.) Also, keep all receipts of expenses you've paid for mom's care and get reimbursement.
If your sister doesn't agree, tell her she will need to move back and split the care. The only other option is to pay a stranger to take care of her. Hopefully, your sister will see the foolishness of that idea.
The 50/50 split only applies to whatever money is left in the estate after your mom passes. By the time your mom does pass, the estate will be smaller anyway and your sister will get less.
Look into daycare. We have a program here in Pittsburgh Pa area that is covered by medicaid, takes over their medical...relieving the person of the cost of a medicare
supplement. The day care picks up the client, feeds them and keeps them active while there...then takes them home.
Remember, like in an airplane, when the air mask comes down in front of you...they tell you yo put it on yourself before you try to help anyone....you are no good to anyone if you can't breath. Same with caregiving...you need to MAKE time for your self. If you don't, you will resent he situation your parents put you in.
As for Veterns benefits, if dad was a qualifying war Veteran, his widow is entitled to up to $1113 pr month to help offset her care costs. It is currently taking 8-12 months to get the benefit. If you get your US congressman or US senator to follow up after 4-5 months....may be less. Currently, the claimant can get benefits with higher income and assets if proper planning is done! This can slow the bleed of the savings. You need a qualified advisor go help wiyh this...the VA cannot offer advice. They are only there to submit an application.
Google Filial Responsibility....years ago, before our lives got so crazy, the family took care of the parents...it was a given. Today, families have moved away from the home base...the children are busy with their own lives. It can be a burden to take care of our parents....but they brought us into his world and took care of us....with no expectation of being paid. They gave their all...paid for our college in some cases, used their retirement money for this.....and we forget all this when it comes time to help them in their time of need. I understand the hardships and it isn't always fair. The siblings living away just don't understand what the local siblings go through on a daily basis. Don't let yourself get to a state of resentment. Call your local Area Agency on Aging (waiver programs)...look for daycare/home care options. Explain to your sister...if you don't do it...who will? She will have to pay someone else to care for mom. Good luck in your journey!