I'm caring for my 87 year old mom who has dementia. When she can't have her way she calls social services and lies about her treatment.
My mother is not nursing home material because she is too combative.
How do I protect myself from these people.
I have full POA. What questions should I not answer due to my rights.
I do feel like I am constantly on the run trying to stay ahead of the pack or accusations that seem to fly my way mainly by my sister. I did not learn that there was indeed a "problem" between us until I was 28 and my brother-in-law told me about it. It seems that my sister has never gotten over the fact that my parents had the nerve to have another child and actually bring it home to live. She determined that she hated me and wanted me out of her life and has pretty much made my life miserable for the past 60 or so years! She has verbally told me that she will hate me until the day I die; she is 6 years older than I. The only time she is nice to me is when she wants something and then without fail something happens and it will appear to be my fault....at her doing, and I am once again hit in the face with some type of accusation.
Four years ago she tried to make my younger sister believe that I was stealing money from my mother because we both banked at the same bank and I had my mother on my account as a co-signer, in case I was too ill to pay my own bills. My younger sister and I are close and she told me immediately. I told her that I had never taken a penny from my parents and if she wanted to bring in an accountant to be my guest, my books are open! In reality this sister and her daughter are the only ones who have EVER taken money from my mother and father and NEVER repaid A CENT! She was part of the reason I took POA to stop the robbing of Mom's account.
As the oldest child she felt that she should be put in charge of everything involving my parents estate, however for about 8-10 years I have taken care of my Moms finances/banking and doctor appointments, therefore I requested POA and was given it by my mother......this fact did not endear me to her in any way, she actually tried to stop it.
I am the caregiver and yes I do pay a set amount each month towards household expenses and food as does my mother. My sister was also paying and then for 2 years just stopped paying, she has only recently begun again. My mother and I had to make up her portion during that time and no she has no intention of repaying that money. Yes, my sister has also done some things that could be considered "dicey," after my father's death.
This house belongs to my mother and when she passes away we will each own a 1/3 share although my younger sister and I would like to just buy my older sister out. None of us wish to live with her a moment longer than we have to.
I was moved into this house because I was ill. I was having gran mal seizures and panic and anxiety attacks. My parents did not want my daughter and I living alone and my daughter possibly being alone with me during a seizure and becoming frightened. So my house was sold and we were moved in with them. I am currently on disability myself. I know it is odd to think of a disabled person caring for someone else but that is exactly why I was put in this position....I was the one already at home, so keep watch on the person who is ill, because everyone else is working. So I basically became the unpaid caregiver.
I have not used an in home worker as of this time. I have relied on my daughter to either run to the store for me or stay here while I run to the store, type thing. She will be graduating soon however and working so I may have to find someone else to help. My older sister is not planning on being of any help, she told me when I returned from vacation that I would need to seek assistance from an outside source when she returns to work in August. Just when I was prepared to tell her and my daughter that both of them had to step up more and help me out and they could each take a night or two during the week to cook dinner as well. All I do is run around "putting out fires" all day long....it's exhausting! When my head hits the pillow at night I am "gone in 60 seconds!"
When my sister reported me falsely she did not call 911 or go to any medical facility to have her "injuries" looked at or treated. I think she said she did call her social worker but I have a feeling she went to see her therapist a day or two later and told this huge story and the therapist told her she had to report the "abuse" that had happened to her. She belongs to a huge HMO and one of their social workers came here to the house and then 6 weeks later is when APS showed up. See she raised such a stink with her HMO telling off the Administration and her doctors that THEY SENT HER TO AN IN HOUSE THERAPIST! Then she wonders why her doctors don't want to help her!!! They realized she has a problem!!!!!!
She has been gone for the past two weeks and I thought it was going to be so hard dealing with Mom all day long by myself. It was just the opposite, it has been heavenly! No screaming, yelling or ATTITUDE!!!!! My mother is quieter and less upset, just easier to deal with. She does ask where my sister is every day and I tell her but she has never said she misses her. THE DOWN SIDE....SHE WILL BE BACK IN TWO DAYS! My daughter and I both dread it!
Two weeks ago she did it again, she accused me of grabbing her 15 year old granddaughters arms and bruising her and causing welts on her arms! I told her she was a liar, that that NOT HAPPENED and I walked past her to the bathroom door and told her granddaughter to let me see her arms and she held them out to me and guess what was there......NOTHING, NOTHING, NOTHING! Because it NEVER HAPPENED! The entire time I am walking towards the door my sister is yelling at me NOT TO GO IN THERE, SHE IS UPSET ENOUGH! When I opened the door she was checking her makeup in the mirror! I just do not get my sister, this is now 3 years in a row that she has accused me of injuring her or now her granddaughter AND IT NEVER HAPPENED. I turned and looked at my sister who was standing behind me and said "Look at her arms, there is NOTHING there! I NEVER grabbed her or injured her, her arms are perfect, lily white!" She shrugged her shoulders and walked to her room! She decided to remove her 2 grandchildren from the house that very moment and take them to their father. I told her she could use the vehicle she drives, that she was NOT taking MINE! So she stood in the hallway yelling at me, "Sure lets just get stingy, let's just be stingy now!" I said to her "Are you kidding me? You just accused me of injuring your granddaughter and marking up her arms and you want me to loan you my car to take them to their father for two weeks? Really?"
Just to let you know, I NEVER GRABBED MY GREAT NIECE OR HURT HER IN ANY WAY SHAPE OR FASHION AND I WOULD TAKE A LIE DETECTOR TEST TO PROVE IT! I only say that because the only other witness was my mother, however her memory lasts for about 15 minutes! The great niece isn't talking!?
I truly think my sister has a legitimate mental problem I just don't know if anything will ever change and I am tired of the accusations and character assignation. I told my parents years ago that she needed mental help as a child and they could have stopped this; they thought it was sibling rivalry that would end on its own but it isn't, it's worse. I want my Mom to spend her last days/years in a comfortable environment without attitude and mental abuse (via argumentative behavior) and I have found this past two weeks with her being gone has been beneficial for us all!
How do I deal with all this and still be the best caregiver I can possibly be to my Mom? The funny thing is, I think my sister plans on ME caring for HER in a few years! She has alienated her children. I have just two words...NOT HAPPENING!
Secondly, as mentioned by earlier posts, keep good records, financial, health, outings, meals, etc. just as if you were a professional paid caregiver. If you have your ducks in a row, then if and when APS visits, you will be prepared.
Lastly, if you think she is doing this to get under your skin; then the next time she does it; record her accusations/call to social services. When she is calm and you are calm (as I know if it were me; I would be screaming mad); I'd say "okay mom, it is obvious that you don't think i take good care of you; you reported me X times, I hope you understand that if APS comes in, they will likely investigate and remove you from our home and place you in a facility until they can evaluate the situation; they may even put me in jail so you might be in the facility for a long time...but if that is what you want, thats okay with me"....then just walk away and let that sit with her. This is just a little white lie you would tell her to get her to understand the real consequences and stop the threatening behavior.
If I said that to my mom; she would freak out if she thought she would be removed from the home and placed somewhere else.
Dementia and paranoia are awful, they latch out to the ones they love and the ones that are right there for them. My mom has accused me and my brother of stealing, etc. and made some wild calls to the police; then they call me or ask her to come in to discuss and file charges and then she can't keep it together (dementia) and they realize she is crazy talking with the dementia. I am factual and keep the emotion out of it.
I hope it all goes well for you. It is very stressful; and she sounds like a handful. I hope you can get some in-home help a few hours a week to relieve some of the pressure. Maybe respite care (if you or her can afford) for a couple weeks.
It still sounds to me as if your troublesome sister is:
A] mental in some complicated ways, &/or,
B] deliberately trying to keep you jerked around and off-balance, to keep you from looking too close at what she's doing.
Heaven only knows what she could be up to--she could be claiming Mom and maybe even you, as dependents on her taxes; taking money; filing false documents relative to taking full ownership of the house; ANYthing.
But I don't know how crafty she might be...
there are some really twisted people who are that smart, even though really mental. And some really disturbed folks who cannot figure their own checkbooks.
My Mom would rage and get all kinds of inappropriate....but when social workers came to the house, she acted like a sweet, innocent lamb, according to her, nothing was wrong, and she acted shocked that I would tell anyone stories of her behaviors like that.
Then turn right around, as soon as they left, and rabble-rouse to relatives, telling them all sorts of lies--which, they believed hook-line and sinker, because she always limited how much contact she had with most folks, so they rarely, if ever saw her rages and machinations.
She's alawys been REAL good at mixing in plenty of truth, laced with lies, so it's real hard to tell the difference. .
I wonder if there's some way you could finally get the troublesome sis out of the house?
If there are enough reports of her behaviors, might social services or police be motivated to get her outta there, because she's endangering your Mom and you both?
Her behavior is elder abuse and disabled abuse.
Guessing there needs enuf track records of it to get systems to act on it.
VERY good you put your foot down, to block her taking your car...who knows? she could have had it disappeared/stolen, and got the proceeds from that...you'd be dependent on her for transport then, and out a car.
But she may not have thot that out very well.
Kaiser Permanente? [guessing]
Yeah--HMOs can be amazingly helpful, and other times, really bad.
But they're usually good at keeping records on people with issues.
That's documents that can be subpoenaed, by Social Workers called to protect you. Just add those records to the police reports when you call 911 to report her behavior. And your diaries/calendars.
Just don't let her at your records you are keeping--ever.
Your Mom is likely so tired from her behaviors, she cannot deal with it, and kinda shuts down from that when sis is out of the house.
Sis's behaviors are also damaging to any minor children who experience it--if she's calling protective services on you, or even threatening to, maybe you need to pick up the phone and call CPS on her for demonstrating violent, abusive language and behaviors where kids can be affected by them.... just sayin'. Possibles.
Start looking into what she might be trying to get away with.
The madder she gets when you refuse her something--like your car--the more suspect it is she's up to something.
Or that could just be some really narcissistic behavior.
Your daughter needs respite from that stuff, too...bet she will be really glad to get away more, after graduation. She needs to learn/experience how real people live...learn some joy, etc. It's hard to do, when one has been exposed to that kind of stuff so long. REALLY needs some counseling helps.
Hope things smooth out, now you are starting to do more things to protect you, and things to empower you. Keep up the good work, setting firm limits on other's use of you and your resources. Guard your resources carefully.
Her son told my younger sister and I a couple of years ago when we went to see him, that he no longer considered her to be his mother and he now considers his step Mom his mother. He calls my sister by her first name and his step mother "Mom" when speaking. He told us she was a "toxic person that he did not want to associate with." Unfortunately he doesn't associate with any of us since he does not wish to see her. He was very surprised and happy to see us but he has been brainwashed by my sister since his birth, thank God he got away!
He daughter basically ran to the East coast a year ago to escape her. I think she sees her mother becoming more frail and decided to run for it before she was tied to caring for her!
She returned to our home after a couple weeks absence and my daughter this evening confided in me that she was trying to get very chummy with her and had my daughter trying to help her with her phone. My daughter saw something on her phone that disturbed her and she came in to tell me to watch out, that she felt she was getting ready to go to APS against me again. It seems that EVIL and LIARS never sleep!
You have encountered some bad medicine. You are right--too many medical and nursing staff, despite some or even more education in the care of dementia'd elders, cannot cope with it, either.
AND, laws prevent or hobble use of various ways of helping deal with dementia'd elders, even as a last resort.
Problem is, large portions of population are reaching this state of affairs.
We need reforms in laws governing how meds and other things can be used to help with dementias, at least as last resort measures.
We need -really good- education for professional caregivers--and make sure they really get it.
We need far better methods of determining dementia, and responding appropriately to it.
Difficulties with it are related to failure to get them diagnosed adequately, inappropriately treating them, not treating them; poor, inadequate, inappropriate placement; etc.
It's devolved into a game of "hot potato"--each facility or caregiver trying desperately to NOT get left holding the bag--due to inability to deal with the dementia behaviors, or, not wanting to take in a patient who has no funds to pay.
Insurance has hog-tied and hobbled care for many elders, as well as for just about everyone. What the insurance industry has done to medicine [and far too many other sectors of everyone's lives], is heinous.
End results are: too many families left dealing with dementia'd elders they are ill-equipped to manage. Home care helpers are mostly not covered by insurance--insurers still believe it's cheaper to centralize people, rather than help individuals stay put in home with more helps. Families lose jobs, lose their own sanity, lose their health, due to caring for advanced-dementia'd elders--creating ripple-effect costs never counted nor covered.
IF the bean-counters ever really counted the far-reaching costs of leaving families to handle elders without help, at home, they'd soon see it cost less to do in-home extra care staff, than it costs to run nursing homes.
Extra help at home, could allow families to keep working and functional and contributing!
It should be a criminal offense for Systems to leave multiple disabled persons caring for each other, while allowing mentally ill aggressive persons to create havoc and further trauma upon them.
Raven,
About the only tools we have as caregivers left to hang by multiple Systems, is to keep reporting episodes of trauma committed by elders, or by other mentally dysfunctional others, and keep records of everything to help document what the disruptive person is doing, and/or what the dementia'd elder is doing.
The more reports on record, the greater likelihood of getting realistic help
--either to get the elder into a facility for proper care,
--or, to get disruptive, damaging other persons removed from the home and prevented from coming back--like, maybe, getting restraining orders on them.
That the person lives there, shouldn't be an issue--if they are causing damages, they need removed and prevented from damaging anything or anyone else.
MAYBE, you could start by contacting the local Area Agency on Aging, to ask for advice. They have lawyers who volunteer at those offices, you can make appointments, and bring your list of questions. They can connect you with Social Workers who might help advise.
Just go into it knowing to ask various persons...
each person you contact for help/advice, can have some information others don't. We're all human; it means variations on patience, knowledge, and experience--as well as how well we slept last night!
The State has no desire to increase their number of wards.
As long as you show a diagnosis and the inspector sees a clean environment with a patient that is not malnourished and whose medical care is followed, you should be fine.
Your mom is not the first to make false accusations.
No sense reasoning with your mom, she has a condition that precludes it.
I agree---it's gotten so bad, there's hardly enough of anyone left over, to be human beings! Paperwork is horrendous, in any professional job, or home care-taking--causes so much more stress....laws don't help as much as they hinder---until they suddenly do a great job of protecting us.
If it makes you feel even a tiny bit more secure...
IF APS got involved, they would also have a look at the accuser's capability of handling a POA--"next in line" is fairly meaningless, if there's so much family contention.
IF there's too much family dysfunction, Social Services, or you, can direct them to set Mom up with a "disinterested 3rd party" POA---usually these get paid to be such---people whose job this is--to totally remove it from bickering/warring family members. Family members can work -with- an appointed POA, but cannot have the POA themselves.
They've already started a file about your sister, your Mom, and you, I think, from what you've said already.
To prevent missing anything, they would likely err on side of caution, and give some credence to ALL sides' accusations--she said, she said, mom said, cops said, other witnesses said, etc.
MAYBE, if you preempted the problem child, by requesting, or at least asking about, some outside person to be the POA, to learn what an appointed outside POA can do to work with the caregiver.....to remove that from the equation where your sister is concerned.....particularly IF she's covering up some of her maneuvers to take control----your doing something like that, could totally trump her efforts.
I told my mom that if she ever ASSAULTED me again, I'd see her in jail, and I was evil when I said it, and meant every word. I also had to remind her that she was now on a down hill slide, and was getting weaker by the day, and that I was strong and young, and well, she had a lot of serious health issues. No one would question her early demise, not with all those health problems. End of physical abuse from that day forward.
Don't be scared. Tell these people who, and what, you deal with. They'll get it. My question to you is this...how do YOU protect yourself from your MOTHER? SS is the least of your worries from where I'm sitting..
What other expenses could she possibly have other than medical at this stage, unless she still has a home or rental property etc. I just don't see how he can justify spending her money and how does HE determine how much money you need, what if you need the nurse more often?
It is sad that it all comes down to the fighting like this when our parents become ill and pass away. I have heard so many people say, "When my parent dies I do not EVER want to see my siblings again!" I thought I was the only who felt that way, at least about one of them.
Madeaa I agree caregiving is learned the old fashioned way but a little education can make the task much easier. Support is essential but if Mom broke her hip and just wet the bed for the first time, support won't get the sheets changed. Knowledge will get the job done
Many pundits for hundreds or thousands of years, who have commented how weird people are--give people difficult circumstances, and they just get weirder!
"There's no one stranger than folks!"
MAYBE since Mom has mental health/dementia issues, and shown behaviors that might be unsafe in a private home [much less brother's filthy frat/dorm/bachelor pad], MAYBE it's time to turn her over to STATE supervision/custody for her protection?
That could avoid contention between siblings, and get Mom's needs met.
Do you have pictures of your brother's place that show she was removed for her safety?
You have reasons you are no longer able to reasonably care for her at your place [financial and/or health]?
If brother is in control of her finances, yet you are expected to care for her under your roof...AND he is not providing adequate money towards that....WHAT!?!?!!
Did you provide itemized financial documentation that showed where money is spent , under your roof, for Mom's care [housing, help, supplies, food, medicine, transportation, your time, cleaning, laundry, security, etc.??] when presenting your case to Social Services before, to substantae that brother is not doing what's needed?
[[anyone can make up double-ledgers, to "prove" they are doing right finances...it does not make them right--only, that he's not yet been caught yet]]
HAVE you already tried sending ALL Mom's bills directly to brother to get them paid?
If he's the financial POA of mom's estate, ALL billings need sent directly to him to get paid...--AND-- you keep records of all that, that is, do what you can to have providers keep you informed whether and how he pays Mom's bills.
THOSE are the kinds of things where Social Services MIGHT start seeing problems, if bills get presented to him, and they are not paid.
They are not likely to go digging to learn if he's buying a fishing boat with Mom's money, or making his own house payments with Mom's money, unless they have good reason to.
Mom's bills for her care and upkeep INCLUDE: bills for a -portion- of rent, utililties, etc. for Mom, that you norrmaly pay for yourself if you lived alone....
Mom is part of your hosuehold, and it is reasonable and realistic that part of all those basic bills are paid for by her finances....unless Mom is destitute....and even if an elder is destitute, STILL make bills up, keep track of finances used on behalf of the elder under your roof, so YOU have accountings that can be showed to officials to prive you have been doing due diligence.
Basic bills are "overhead"--which would need paid no matter where Mom lived...home or facility. Only, facilities cost vastly more than your home...usually.
NOTE: A confused elder needs to be in, maybe an "Alzheimer's care unit" or "Memory-care" unit, to keep her from wandering away, keep her safe.
If a family member is behaving like he's gonna obstruct that, it could be considered elder-endangerment.
While Facilities [including the largest elder care provider in the cuontry--documented] frequently try to keep numbers and income going by admitting confused elders into "Assisted Living", Assisted Living facilities are NOT--repeat NOT appropriate-- places for elders with confusion/dementia/alzheimer's.
BEWARE facility staff/management who try to tell families their assisted living units are safe for confused elders!
While at inor levels they might be safe, the basic rules governing elder care object to placing confused elders in "assisted living".
When an elder wanders, cannot keep track of their own meds, forgets to eat, cannot take proper care of food items, etc. confusion, they need to be in special Care Unit--a place with locks to prevnt them getting loose and getting lost or hit by a truck or lost inbad weather, and staff actually, realistically TRAINED to care for demented elders.
You need to have brother's intenions of threatening your putting Mom into a proper facility, in writing, along with some proof [like photos of his messy place?] that his place is inadequate, and, that you can't do it anymore, since he limits finances for her care, and she's gotten out and wandered.
And have a Doc's statement that Mom is confused and needs to be in a proper care facility for her safety.
A proper confused elder care facility would be most happy to admit especially an elder with income that can afford them keeping her there.
[[that's why so many "assisted living" places run by the likes of ProPublica ---please see: http://www.pbs.org/wgbh/pages/frontline/life-and-death-in-assisted-living/ for a sense of how things get run for profit...]]
Maybe once you have better documentation in hand, then try contacting Social Services to ask how to proceed to help Mom best.
Mom could become ward of the State, or, a third-party POA could take charge, who actually had Mom's best interests in mind.
Everything you said is spot-on...but, even MD's have their faillings, when dealing with elders, dementias, etc.
--even those trained in elder care, often fail to get it right---or maybe they are just overloaded, and aren't paying attention.
Working in nursing homes, people are people--they don't pay attention, are understaffed, the building is poorly laid out to do the work, staff inadequatgely trained to deal properly with demented patients, etc.
Facilities need nannycams, too--REALLY.
Kinda think if they did have these gadgets, staff might be screwing up less, and, elders would be observed in full flower of their behaviors.
Places I worked, had difficulties with all sorts of infractions....
sheets so thin, one could actually read a printed page thru them; lost clothes, laundry equipment broken down more often than not, unable to keep up with clean linens; meds not passed, crash carts not up to date, etc.
Docs at the acute facilities send patients to NH's who should have been kept at the acute hospital, prescribing meds by mouth for elders unable to swallow, telling NH staff the elder was fine moving/feeding themselves, when they were darn near immobile.
NH staff who wear loads of perfumes, trying to camouflage the stench indiginous to NH's, cause breathing problems in patients, staff and visitors.
The same staff over-use disinfecting and room deoderizing sprays, causing similar problems.
Management too often fails to back their nursing staff, preferring to preserve even poor aid staff, as those do the hardest hands-on work...and it's harder to get adequate nurses aides to do those jobs--people have a hard time lasting very long in those jobs, physically.
Nursing homes and other facilities are about the money. Insurers are about avoiding payouts.
Facilities need to keep beds full, even if they have to fudge on who's qualified to fill those beds in Assisted Living, for instance.
Staffing for Assisted Living is thinner than in the NH's, so even less coverage for actual patient care is there.
The rule of thumb is, the more complicated the care needed, the moer staff is needed....but companies routinely cut boots-on-the-ground staff to cut costs--rarely management, who get paid the most.
It's broken systems that keep trying to do business as usual--things are changing, but it's not happening without plenty struggles. Plenty of people will get hurt, as things try to get better.
This is only one instance, I could write a book about how ignorant they are when it comes to the behaviors of dementia and Alzheimer's patients! I feel like we need to crash their meetings/seminars and educate them...oh wait they are on the golf course!
At this time all the other family members, one in particular that lives between these two sisters, in fact is the middle sisters husband decided we were trying to kill the Aunt and were abusing my MIL so he called DHR with complaints. What he didn't realize is that during this time that both sisters had home health care workers that came 2 & 3 days a week to check their vitals and help them bathe...etc. When the complaint was made MIL was in rehab and the case worker came to see her, then they met with home health workers and got laughed at when they told the complaint that was made. The case was dropped, they never even came to check the homes.
Come to find out that years previous, MIL who has always loved drama, had lied to the daughter of this complainant saying that she was being held prisoner in her own home. The funny part of this is we didn't even live in the same state as she did when this lie was told.
It might be in any caregivers best interest to ask doctors if home health care is available and if it would be beneficial for your loved one. It not only would give you a break but also someone that can cover your back when these allegations are made.
I'm going to have to get a doctor to send a letter advising against such an action. She has admitted that dad has not been mistreated by us, that in fact, he has been treated very well.
I'm not sure, but I think you, rcuthbertson, and I need an attorney.