So last night my husband and I were at my mom's to have dinner with her. This involves me doing 90% of the work but I don't care about that, it makes her feel like she hosted us. But as were all talking my heart just sinks further and further. She couldn't figure out the TV remote and my husband was showing her the basic buttons over and over while I was in the kitchen, and 1 minute later she couldn't remember them again. Then she starts talking about her upcoming doctor appointments. Foot doctor (she just had neuromas removed in both feet, didn't improve much of anything), her "pain doctor" for back pain with no known cause, her "head doctor" that's the neurologist appointment coming up.... then she tells me she made an appointment to see a doctor about "getting her eyes done".
WTF! First of all, she had that done about 18 years ago. Her eyes look fine! I tried to tell her-- Mum, you don't need to have that done-- but she wouldn't hear of it. "I want to do it, so I'm getting it done".
I dropped it. We stayed for about 3 hours and then got ready to leave. She complained I didn't stay long enough, but I left anyway.
Came home and made a stiff drink.
No way in hell am I taking her for totally unnecessary cosmetic eye surgery. How do I handle this with her? She will need someone to drive her. Do I refuse to drive. She'll throw a fit. Tell her to take Uber?
This is insane and I want off this crazy train!!
Doctors treat Medicare like a cash cow.
I've started pushing back and asking what is the purpose of the follow-up and can it safely be scheduled for 6-months or longer.
Whenever I'm in the waiting room of one of my FIL's doctors, it's like a meeting of the aches-and-pains-sporting society. Once inside the exam room, a nurse takes his vitals and asks FIL if he's fallen lately. The doctor comes in, spends 5-minutes, and does nothing beyond scheduling follow-up because there's nothing substantial to be done.
It's sad, really. On some level they must know they are slipping mentally.
Does your mom live around you now? I too was long distance for many years, and now know lots of what I saw was early dementia too. I just didn't realize it at the time, and NEVER EVER wanted this to happen to her.
There is one tactic that worked well for me. It's getting a call on your cell-phone and it works something like this: Imaginary important call you need to answer - "Hello, yes, uh-huh, alright, I'll be right there" while simultaneously pointing to your phone "I've got to go now, mom. Love you" [kiss on the cheek and head to the door].
It's not easy at first but with practice you can do it. I felt awkward the first time I did it. I remember saying to myself "just keep walking...just keep talking". I thought for sure FIL would know I was lying (he didn't). I breathed a sigh of relief when I closed the door behind me. My heart was pounding. I felt relieved because I knew I had visited him.
I'm learning to be okay with lying so I can get time "off". In fact I just did it. I told her I would be gone for awhile with my husband going to look for garden supplies (which doesn't interest her) but in reality we are going out to lunch. If I told her the truth she would definitely try to come with us. Sorry not this time.
If Mom is having problems with the remote surprised she can use the phone. My Mom not being able to not use the remote and phone was a sign she need someone there 24/7. My Mom not long after forgetting how to use a remote, forgot a pan on the stove. I had a nephew living with her and found it. You may want to find alternatives now for Mom if she can afford it.
Funny thing is- she has me make most all of her doctors appointments, or any calls involving utilities or businesses. She claims she "can't talk" (blaming the old aphasia) but she didn't ask me to make the call to the plastic surgeon. Or her nail appointments. She is obsessed with getting her nails done every two weeks.
Every day I am amazed at how strange this disease can be. Before we went over last eve, she broke a glass shelf. I never could figure out how she broke it but she told me she cleaned it up. I asked her if she swept too using the vacuum. She said yes. Well when I went over I could see there were still glass shards so I cleaned it up again, and then said I was going to vacuum again to make sure it was all up. She told me she didn't have a vacuum. I got it out of the closet and said yeah, here it is.
Is it normal for people to go in and out of dementia spells?
Anyway, I don't think she is ready for a care home yet. At this stage she would absolutely refuse anyway and HATE me for even considering it. But down the road when she can no longer do ADLs that will change. I'm not feeding and changing diapers or staying with her 24/7.
I'm expecting a dementia diagnosis after she is seen by the neurologist, and then I think I will do what you suggested. I will tell the plastic surgeon about the dementia, and I will feel legally justified with the official diagnosis.
The appointment is March 26 and it can't come soon enough.
You cannot reason with your mother because her brain is damaged. Your husband can explain the remote control to your mother as much as his patience will endure but nothing will stick because she has dementia. We go through this with my FIL but in his case, it's his cell phone and CD player that have him flummoxed. We try to redirect him but he's obsessed with both of those gadgets. It wears us out.
We keep our visits short now. 20-minutes for a quick check-in and 45-minutes on days he's not so bad. I've found that not making a big production of leaving is key: "Now I've got to be on way and continue my errands. Love you." Kiss on the cheek and out the door.
She was pissed I left after three hours last night. That alone triggers me. I don't really want to be there AT ALL, given I see her all the time, but it's never enough.
I just have to be firm with her on this, as hard as it is due to our old dynamics.
Or, you can sit on your hands. Don't argue about fetching her back and forth, just don't do it. When she says 'I need a ride on [date]' you say 'uh-huh.' When she says 'so you'll pick me up, right?' you say 'no, I can't possibly, I'm afraid.' Don't apologise, don't explain, just no. She'll throw a fit. Is that worse than your condoning totally unnecessary cosmetic surgery?
Or, if the risks are indeed minimal and you are confident that your mother does in fact know what she's letting herself in for - quite pointlessly, I agree with you, but then I tend to think cosmetic surgery is idiotic anyway, with rare exceptions - is letting her enjoy wasting her money an option?
Maybe I'll tell her to call my do-nothing sister to come into town and take her? Man I'm feeling pissy today. I need to get out for a walk.
So, she's mad. Would that be a new thing?
If she's got the wherewithal to make it happen, more power to her. Just don't participate.
She would need someone to drive her home. She's assuming I will do it. She will find out very soon that I am not. But what gets to me more than anything is not the inconvenience of it, but the insanity of the decision.
And yes she will be livid. That's been her MO my whole life. If I don't do as she demands, she gets very mean and nasty. In the past this would trigger me so much. In fact I often complied just to avoid her wrath. But I just can't be that way anymore. But man those old buttons she can still push amaze me.
Thanks for the support. This forum has turned into a life line for me. Vast majority on here are incredible so thank you.
Unless there is an actual medical problem, and Barb makes an excellent point about checking there isn't one, wouldn't it be better to go along with enthusiastic discussions but Do Nothing?
I'm at that weird place with my mom where her executive functioning is clearly going down hill, but she is still able to drive, make phone calls, and is as stubborn as a mule, even when it doesn't make sense.