Having dad move in the last 8 years has turned me into a mean and bitter person. I don't want to be this way but it has come to this. Not sure if I should get therapy or not (had it when I was a kid and marriage counseling and didn't like it at all).
I gave up my beautiful home office from where I run my business to the cold basement. I make breakfast in the morning and dinner every night. I do the shopping, run the errands, dr runs, hospital runs., manage the medication and pay the bills. He pays a few of his regular bills but gives nothing to us for heat, light, cable, food, gas transportation, etc. We have no privacy. I feel guilty to go out to dinner and dates are a few hours out on the weekend. My wife and I get time only when he goes to church (after I drive him there). He goes out during the day when I am not home (he can't be alone) so he calls his lady friend and they go out as soon as I leave the house. If I am home he doesn't go out. His lodge times are usually the same time I am scheduled to be at my social functions.
When we have the house for a couple of hours it's like heaven. When I am out, as soon as the garage doors go up it wakes him up and he has to come right out to see what we are doing.
It's gotten to that I don't talk around him, as anything I say gets repeated to everyone. Dinner is in silence because anything I say gets topped or a story ensues. He can't have a back and forth conversation because it always ends in a story with a grandiose person or event.
We can't have him cook as the kitchen ends up a disaster and the last time he cooked the chicken was raw.
I can't leave him overnight as he is a fall risk, every time I have he ends up getting hurt. He can't drive anymore so he leans on friends or me.
Anytime he talks to me I am short, I don't want to be that way.
We don't entertain anymore because he comes right into the middle of the party and literally sits down and takes over the conversations. The last time within 5 minutes he had a huge pain attack that he hadn't had in months and hasn't had one since. It was quite the scene in which I became the caregiver and had to deal with it in front of my friends, amazingly enough not bad enough for him to sit in at dinner.
I have cameras around the outside of the house for security that I see from my desk and he feels it's great to look over my shoulder to see his friend come to pick him up rather than waiting outside, all while I am trying to work (Extreme pet peeve of mine).
The messes in the bathroom, the stink from his room the mess left behind.....
Sometimes it is the words or the delivery in what he says. I'm sorry, I guess I am just being petty, but in the last 10 years we have become caregivers for too many and we have not had time for ourselves if we do, it is so hard to get done as siblings are not involved and we live so far away.
We are trying to get a vacation this year but it will be a juggling act if we can get it done.
I'm now in my 60s, my 50s were supposed to be filled with travel. Now looking like won't be until my 70s if I make it that far. All I do is work now and don't have fun, if I get out on my bike or my fun car it's just for errands. If I travel it's for work. My sibling gets to vacation and travel.
I'm tired and burnt out and bitter.
NH is not an option there is no money. My kids may help but it's like trying to pull teeth but yet I can make dollars fly right out of my wallet.
Too much? Am I just being petty? I know I have to cherish these years and what I have but in the meantime, it is so hard when it is right in my face.
Thanks for listening my rant is done...
Also can you apply for medicade? There are care centers that will accept Medicaid.
I've read many post from you in the past, and I am sorry to say but I always get the image of you being a doormat for your dad because you always defended his abuse, and put up with his taking advantage of you and your family. No, I am not calling you a doormat. I just get that image in my head. That's all I'm saying.
So, after 8 long years, it's about time you get angry!
Trying to figure out how to travel before I am dead. Wifes a teacher so the school year is out. We get a few weeks in the summer every other year if I beg hard enough.
Yeah, I'm angry but no other option.
I find myself feeling guilty for not feeling guilty. I love my mom, but I am starting to feel resentful & annoyed.
Being a caregiver for our parents is by far the hardest thing ever !!!!
Kudos to us all!!
🥰😎🍀🦋🐞🌸🌞🌕☄️💥
Is that being a bit hard - yes of course it is, but if it cannot be two way then it has to be solved in a way that gets your sanity and health protected. You are being used /abused and too many of us put up with this. Cherish these years - doesn't sound like you are doing much of that, nor that you will have good memories. He had his life to make arrangements for his care, if there is no money now then he will have to take what the state will provide. Your post may be a rant - good it gets things off your chest - but the situation is bad for you and if you become unable to cope then there will be no one. SO either he abides by some limits and you don't feel guilty about them, or you hand him over to the state and don't feel guilty about that. We may care for our parents but we do not owe them a cushy life at a cost to our own heath, mental and physical.
I don't know who told you that yoi need to "cherish" this time. Maybe that's the problem. Caregiving is hard. It robs you of time, money and privacy, especially if you don't set the expectations clearly when the person moves in.
It sounds like Dad expects carte blanche.
I am trying to do more for me and my wife. It is all in my head I guess. I am sure anyone else would be happy with the situation. When he was with my sibling she complained and that was only 3 weeks.
Trying to make forward progress but ever now and again I slip backward. Trying to be nice but it is so hard when you never have privacy, I get it in 1 to 2-hour increments,
TG always has approached the whole caregiving shebang from the position that he is a responsible and humane person and a decent member of society. We look after our own, we adapt and cope, we do the right thing, we are practical and sensible, we are considerate of others, we are reasonable in our expectations.
His father, alas, on the other hand, is not a responsible or reasonable person and doesn't give a fig about those values. He isn't evil, he's what people who don't have to deal with him would call spontaneous, happy-go-lucky, easy-come-easy-go, the life and soul of the party. It isn't that he exactly *expects* TG to pay for his choices, it's more that he assumes that something (i.e. his excellent son) will turn up and lo and behold it always has.
For *years* his father has overspent and done a wide range of other daft things, and TG has always picked up the pieces. Picked them up and refrained from complaining or criticising to the point of bursting a blood vessel.
Petty? Mean? Bitter? Of course not. Worn out and ready to explode, I should think.
Get yourself to your county aged resource center/ department..here in my county it’s called ADRC aged disability resource center, They will guide you on the Medicaid application. I found an independent placement specialist in my area . It’s franchised, there maybe one near you. Carepatrol… my specialist helped us place my in laws into a AL that took Medicaid without need to self pay for a period. We placed them together. When one of them passes, the other will have to share a room.
You don’t pay the placement specialist, they get paid by the AL company.
my specialist helped me recently place my mom. AL wanted 1 year self pay… my mom may not make it. But I was honest with them , I believe she will make 10 months. They won’t have her leave or have her share a room. A contract that carepatrol has with the AL company.
if your dad refuses to leave , make things uncomfortable, tough love…do it for yourself.
I admit , I’m the in law . I did everything in my power for my husband not to become the caregiver. Including finding the placement.
BIL in charge of finances ,is greedy and wanted us to share caregiving , so siblings and himself could net $9000. SIL also wanted us to share caregiving. Because she thought it best….She works and once retired wouldn’t have to do caregiving since she lives more than an hour away.
anything I’ve learned here …. Absolutely not. I didn’t work since I was 15 to continue working into my 70’s ….
Do it for yourself and in the meantime get yourself a caregiving company to help out…
He will continue to go on putting up with his dad, possibly till the last day, as he said he was supposed to cherrish this time.
Years from now, if he can outlive his dad given the tremendous and increasing stress of caring for him, he probably will miss his dad and will say he would do it all over again.
A small change might be figuring out a way to pay a neighbor or service to check on dad once a day while TG and wife are away, getting Meals on Wheels delivered, lining up rides to church, etc.
Respite is important for all caregivers.
To this day I have a strained relationship with my mother whose almost 95 and living in Memory Care Assisted Living since I vowed NEVER to move her in with me, based on the hideous experience I lived through in my youth.
If you're not careful, your father will outlive you and your wife while you break your backs caring for him. Stress, resentment and bitterness is killer and it ruins your life. Trust me, I know.
He has to go. It's your house and you do not want him there anymore. Everyone always says that we have to "cherish" these years with our parents when they're elderly. I ask:
What is there to cherish?
-Becoming a nanny-slave to a narcissistic, selfish senior who thinks the whole world revolves around their needs and demands.
-Giving up one's home and turning it into a senior care facility with ramps, grab bars, hospital beds in the living room. Then add in smelling like piss and sh*t most days.
-One's freedom and liberty. Not being able to leave the house without an interrogation or literally arranging for baby-sitters (that is if the senior isn't being stubborn and won't accept).
-In addition to becoming a nanny-slave we also have to be entertainers. Alleviating the senior's boredom. If that means they're in the mood to instigate a fight or engage in a bit of verbal abuse, we better take it with a smile.
This is what we're supposed to be "cherishing"? This is what most of us get. All the romanticism about elderly caregiving is a lie. This is what most of our lives are.
Find your father a care facility and take back your life.
Have you explored this beyond calling and asking prices?
Your dad presumably gets Social Security, which is not " nothing". Pease consider talking to and eldercare attorney about options.
I've come to a conclusion that Tgengine just needs to vent and gets validation for his suffering. That is all he needs so that he can continue the status quo.
I would be shocked if he made any changes even small ones.
The only way change would occur would be when circumstances forced things to change.
He is steadfastly holding on to his conviction that he is doing the right thing by his dad regardless of how wrong it is for him and his wife.
His dad, on the other hand, walks all over him and his wife.
No one deserves to be treated like a doormat and walked all over. Especially by the needy people they're taking care of and doing everything under the sun for.
Guilt can be very powerful and many times adult kids will live in total misery and for years at a time in order to be doing the "right thing" by their needy, elderly parents.
Sometimes a person just needs to vent about it and complain to like-minded people who understand where they're coming from.
I hope Tgengine does find a different living arrangement for his father. If that doesn't happen, he still has a right to vent from time to time and we all should.
No other options? Yes, there are. People here know of and suggest many, all entirely workable. But only if you want them and are willing to do them. Change, especially big change, can be hugely stressful and difficult for a short time (my husband and I just went through a massive one). But staying with your current situation is clearly grinding you down continually with no hope of a happy end in the foreseeable future (which is what we, too, would have had we not made the other choice). Your current situation sounds like it is awful for you, your wife, *and* your father. Is martyr really your life goal? Will you be remembered as the kind man who faithfully helped his family members? Or as the bitter, cranky old man who never had a bit of joy in him but did his much-cursed roundly-hated obligation? I am so sorry for you right now, with your raw cry of pain of the burdens crushing you. Please seek those options and create the change for the benefit of all of you.
She never offers to cook, clean or do anything. Sometimes, she will unload the dishwasher and she thinks in her mind she has made a major contribution and therefore it does not have to do anything else for the rest of the week. I know it’s part of the disease, but it’s been this way for a long time even before she was diagnosed. my father did everything for her, so she is extremely dependent on everyone. When she tells me she cleaned the sink for example, I’ll ask her what she used to clean it with and she’ll tell me the kitchen sponge. Therefore, I do not push the issue of cleaning.
My husband is unbelievably patient and kind to her. He is the one that takes me off the ledge when I am ready to lose it. I feel terribly because every time we want to have a date night, we have to make up excuses as to where we’re going so she doesn’t ask to come with us. Sometimes I will flat out tell her that we are going on a date night and she can’t come with us but then I feel terrible about it afterwards. I know that she is sad and lonely and we do like to take her out to dinner with us every once in a while, but she never offers to take us out or pay for it. It’s very frustrating.
It’s all the little things that have become pet peeves of mine. Sometimes just looking at her makes me angry. I’ve grown to not even like my mother and it’s horrible to say that and I feel terribly guilty about it.
I just wanted to let you know that I feel your pain and I hate feeling angry and bitter toward someone that is sick.