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I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
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V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
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One thing to consider: does she have an advanced directive? If she has alzheimer's, putting in a feeding tube is only going to be confusing and prolong the inevitable decline to death. Death by not eating is not particularly painful after the first two days because after that time, the person is no longer hungry. Some very ill people do this on purpose when they wish to end their lives without other assistance because it is so much better of a way to end.
If your mother clearly has dementia from which there is no return, that it is progressive and she has declined over the last 2+ years, I believe there is not a moral problem with allowing her the dignity of choosing not to eat. I would prefer to be allowed to not eat than to become the confused, non-verbal and non-mobile being trapped in a body that my own mthr has become over the last 8 years.
Being Mortal by Atul Gwande is a book / video/ interview/ TED talk you should read/watch to learn more about end of life issues for everyone and the consequences of interferance like feeding tubes.
I think maybe a drastic change either way may accompany progressing dementia. For a couple years before her diagnosis, my LO might eat voraciously one week, then eat almost nothing the next.
I couldn’t figure out any pattern to this, but I certainly observed it. She also drank large amounts of coffee, which she hadn’t done previously.
Most of her old friends try to tempt her when they visit her, but I’ve never seen her taste any of their contributions since she’s entered the AL.
All of us have days where our appetite wanes, 24 hours is hardly long enough to be diagnostic of anything. I think Surprise was trying to ascertain how advanced her dementia is, while loss of appetite is an end of life sign it would need to be one of a group of clues and it would need to be persistent. I'll link a web site with some things to look for
If she hasn't reached that point her lack of appetite could be from many other causes and you may need to play detective to figure it out. In the meantime you can try to encourage her to eat by offering favourite foods that are easy to eat, supplements like boost and ensure were made for this.
IIncontinent yes but that's been because of tipped bladder from years and years ago. Her speech is fine. Her symptoms started in rehab after a prostetic knee dislodged. ER put her out to try and put back but it did not work. Then did more anestedic to try again. I believe that is when it started.
Cindyn, It sounds like this is a temporary setback not alz related. Yes, something is going on cognitively because of the anesthetic. She's not at (the end of alz progression and not eating), she's (not eating and something else). Have you seen a neurologist with your concerns about the anesthesia effects?
Yes, it is a sign of late dementia. Is your mother incontinent, unable to walk on her own, and barely verbal? That would be the stage when you expect them to stop eating. Otherwise there may be something that hurts - like her teeth, or her tummy, or she may be stopped up with constipation. Or it could be a UTI. What are her symptoms of dementia?
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
If your mother clearly has dementia from which there is no return, that it is progressive and she has declined over the last 2+ years, I believe there is not a moral problem with allowing her the dignity of choosing not to eat. I would prefer to be allowed to not eat than to become the confused, non-verbal and non-mobile being trapped in a body that my own mthr has become over the last 8 years.
Being Mortal by Atul Gwande is a book / video/ interview/ TED talk you should read/watch to learn more about end of life issues for everyone and the consequences of interferance like feeding tubes.
I couldn’t figure out any pattern to this, but I certainly observed it. She also drank large amounts of coffee, which she hadn’t done previously.
Most of her old friends try to tempt her when they visit her, but I’ve never seen her taste any of their contributions since she’s entered the AL.
I think Surprise was trying to ascertain how advanced her dementia is, while loss of appetite is an end of life sign it would need to be one of a group of clues and it would need to be persistent. I'll link a web site with some things to look for
https://alzheimer.ca/en/Home/Living-with-dementia/Caring-for-someone/End-of-life-care/Physical-changes-at-end-of-life
If she hasn't reached that point her lack of appetite could be from many other causes and you may need to play detective to figure it out. In the meantime you can try to encourage her to eat by offering favourite foods that are easy to eat, supplements like boost and ensure were made for this.