Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
I don't think I will be able to continue the way I have living with my mom is making me depressed and I am starting to resent not having a life. I used to be able to find some humor in it but her negativity is draining me!
It seems "normal" how you feel but I would say hang in there. She just needs to vent her emotions on someone who loves her as you do. You just have to learn to shake it off when you leave her side. Good luck!
Her personality change is the disease. Whether it be dementia or alzheimer's. I recently (TODAY) have finally convinced myself of this very same thing. Things are progressing so quickly with my mother. We went straight to the nursing home in lieu of assisted living. The upbeat person I knew has been replaced with a negative Nelly.
Our Mom's who we knew are no longer the same. I am so sorry - I too feel guilty for wishing I didn't have to deal with it.
I read someone wrote on this site that their mother had the right to rot. I agree.
You can't let her live in your head. You will go nuts.
hug!
i hope things improve soon.
try to really find solutions, so your life can blossom.
try not to later think:
“i didn’t do X, Y, Z in life, because of person A. and person B prevented me from doing W. and…”
all these people you admire (whether actors, athletes, singers…)…whatever your taste is, in who you admire…
they went for it!
(some of them succeeded because they’re extremely selfish, just focusing on their own goals for hours and hours…ignoring everyone else in their way) (i’m not advocating to become an extremely selfish person)
and of course there are many factors why someone succeeds. and everyone defines “success” in their own way.
—
my point is,
go for it! go for your life!
find ways to be kind to others AND yourself.
plan your life/future, so that your elderly parent doesn’t, even unintentionally, plan/decide your future.
Sometimes, it's just lack of control, fear or both.
FMIL got cancer and FFIL had a stroke. FMIL was under the impression that we would be there every overnight but that wasn't possible. I was the one to bring up the idea of an aide, and she cried, then screamed at me, then offered to show me her checkbook about how she's helped out SO, then banished me "to my room."
Fortunately, she now loves the aide that Brother picked.
FMIL's cancer went into remission, but then it came back. She was offered an easier and newer option first, but they took that away at the last minute and said she would be getting a stem-cell transplant. A month in the hospital versus a week. No winter holiday season. The idea that a second caregiver be introduced.
SO asked her innocently one day if she'd started looking for this second person, and she BLEW UP. It was on speakerphone, and it was just ranting about MY HOUSE and I WANT and HOW DARE YOU.
SO said he needed to go and hung up.
Now the doctors are rethinking giving her the newer easier therapy. This reduces the hospital stay, makes it so that she can go to restaurants for Family Dinners, and obviates the need for a second or more skilled person, for now.
For now, she's gotten what she wants. And the defensiveness masking as grouchiness has dissipated. She's a friendly person again.
I have been trying for so long to keep my mother at home. She is 96 and times of her being negative and nasty are increasing faster nowadays. I know she has dementia, but knowing that does not help when she is being nasty to my daughter ( 39 ) who also lives with us and has been a tremendous support to me in caring for mom and has helped mom herself A LOT !!!
But tonight, mother being so extremely nasty in a paranoid way to my daughter (who is the sweetest you could want!!) is hitting the tip of the iceberg for me. My daughter was in tears and was worried I was upset with her (not in the least! and told her that) and went to spend the evening with her boyfriend. Meanwhile, my mom continued her nastiness. I plan to call her NP tomorrow to ask for other medication ( ? maybe Seroquel) to get us through until I can figure out moving her somewhere. We can't afford continual caregivers at home, or assisted living, and pretty sure she wouldn't qualify for snf. So I will be starting the "what to do" process tomorrow.
My mom is 94. I keep thinking it won't last forever. . .but it could.
I'm looking for respite care today. Nobody in my family can or will help me.
I miss my grandkids so much!!! I would never want to hurt them like this
Good luck to you
I always think these posts serve a purpose as the folks who answer find it therapeutic to answer regardless and others come along and read the answers and find some help in them. So, to me, it’s still a valid thread. Just my thoughts on it.
I’ve tried so very hard for YEARS to help with, or do anything that needed to be done for her; perhaps I’ve done this to myself?? It took me over 6 months to find a place that was clean enough, organized enough and had services enough that I thought she could possibly like it ... well let’s just say that all that effort seems to be wasted as she hates it and reminds me of that every minute of a phone call or visit.
There was no possible way that Mom could stay in our family home. Recently diagnosed with breast cancer, needing a hip replacement, and suffering from the onset of dementia she was falling and hurting herself, burning pots into oblivion and forgetting phone numbers. On my weekly Saturday visits I was constantly berated for things I hadn’t told her, even though I had at least 10 times over. It’s been 7 years since Dad died and everything just stopped working for her, or was a stupid thing to her as she’s lost the ability to work microwaves and answering machines. I had a million post it notes everywhere with reminders and notes.
I know deep down I’ve done the best thing to keep her safe. I also know that this isn’t easy for her - neither is it for me. What I don’t know how to do yet is protect myself from getting sucked into the negativity, how to get rid of the constant lump in my throat, or even sleep the night through again. I’m hoping with time, and with what I’m learning here with all of you, is that I will find the strength to weather this. I refuse to lose my marriage, my job and perhaps even my own sanity simply to care for a very negative Mom.
I love him to death, and I also need help coping with this. This post and comments has helped me some but my situation is different because I live with my Dad. But yeah just hang in there because I DEFINITELY understand and I might just make my own post about this myself.
You don’t have the power to change her behavior but you can certainly change your reaction to it.
You can also break cycles. Don’t copy any of her personality traits.
If she isn’t willing to change her pessimistic behavior she will become lonely because most people will avoid her.
People like this are extremely difficult to be around. They will drain all of your energy.
I think you should do whats best for YOU, not your Mother. Pray and ask God to take the guilt away. You dont owe your Mother anything but as her daughter you can help when you can or if you want to but if its too much allow the professionals to do it. Step back and stay involve with her overall care as far as making sure she is being treated well. I wouldn't stress out over it. You have a life too. I PRAY it all works out for you.
My mom lives off of disability and SS from my deceased dad. I recently married my High school sweetheart and boyfriend of 8 years, and her family decided that her 3 bedroom condo was too big for her now that I am married and no longer staying with her. There were also several times over the summer where she left burners on, left the oven on. Once the fire department had to come because of the excessive gas from stove being left on.
My husband and I bought our house on November 22, the day after, mom has another stroke. Instead of moving to an apartment, she decided she wanted to live in a 5 star retirement community (independent with options for apartment care or to move up to AL). My family pulled many strings to make this happen as she was adamant on wanting to live there specifically.
Well, she moved in March 2, and shortly after, COVID came through and made everything a mess. I worked several hours for several days a week for many weeks helping my mother downsize and move into her new place. Something about the move, while I agree can be stressful, has completely turned her into the most hateful person ever.
My uncle helps us a lot (probably out of pity and care for me), and when he didn't show up one day, my mom called and cursed him out and was so offensive. I asked my mom if he specifically said he was going to be there that day -- nope, he didn't say he was. I said mom, you cant get mad at someone for not helping if they didn't say they would be there. She says - why dont you leave your husband and go hook up with him. My uncle. Still cannot believe those words came out of her mouth. It has nothing to do with my husband and everything to do with her insecurity.
She also recently said to me, how on EARTH did I manage to raise a daughter with the compassion of a mosquito, how? how?!!! And freaked out on me. Mind you, this was after hours of moving and organizing her belongings.
She has called me a b*tch so many times I cant begin to count. The thing is - I never get nasty with her they way she does to me, I stay calm cool and collected. I say, mom, sometimes I think you say things you dont mean when you are overwhelmed. It's almost like she wants me to spit fire in her face right back. I refuse.
RECENTLY, she has been getting into trouble, and even threatened the staff at her new living facility all due to this Covid quarantine business. She feels she is being treated unfairly, forget that thousands of people are dying and especially in her communities age group/health status.
My relationship with my mom has been take take take ever since my childhood. I can distinctly remember even trying to talk to her about things and she says, Im not your friend, Im your mother!
I see all of you who are sometimes in your 50's, 60's, and beyond with the same issues I face. Will this be my life for the next 40 years? What can I do? It's becoming too much for me to emotionally bare.