Follow
Share

My father I believe has Lewy Body Dementia from Parkinson's Disease. Lately it has been getting worse. He has a full time aide 12 hours a day, and most of the time he gets along with her. But sometimes he believes she is telling him things and doing things to him that don't happen. Yesterday he told me she told him someone killed her baby, so her husband killed that person, and they were going to pin it on my dad. He at times believes people have the mafia tracking me and going after me.



I am getting him into his doctors, but unfortunately he fights against seeing his primary care doctor. He lives in an Assisted Living Facility, but I am starting the process to get him diagnosed so he can get the right care. He does not want to admit what is happening, which I understand, but it is so hard to help when he gets angry at me wanting him to go to the doctor. I lose my patience at times, so I have learned to lean on my sister, who lives farther away and does not deal with him on a daily basis. She has more patience with him.

This question has been closed for answers. Ask a New Question.
Find Care & Housing
With Lewy body dementia, psychosis can run rampant. You father is paranoid. He has delusions and hallucinations. No reasoning will change that. Perhaps some antipsychotic medicine might help. He needs to see the psychiatrist.
Helpful Answer (0)
Report

I suspect my mother overheard the awful story about a young girl’s body being found as it was all over our local news and, when I visited her the next day, she told me the police had come to the home and located a young girls’s body. Recounted in great detail. So she’d worked herself into a panic that the nurses and PSWs were murderers.

Her broken dementia brain latches onto negativity and runs with it.

I have the most success reframing the story.

“I’ll check with the staff.”

(leave her room briefly, then come back)

“Yes, the police were here yesterday, just visiting a retired colleague. I saw that case on the news! Awful! The police must have been discussing it with their retired colleague because, on the news, they said it happened an hour from here.”

She needs to be right or she digs in and rages. Perhaps your father isn’t as advanced as my mother, but this is what’s working for me now. Try taking his reality and giving it a twist.
Helpful Answer (0)
Report

It might be helpful for you both to allow the staff physician at his AL to become his physician of record.

We may be extra lucky, but OURS is great, and has been very helpful guiding my LO through the twists and turns of diagnosis and care.

It would seem that you dad might find the less red tape the better approach more functional rather than having to go “out” to meet with a doctor.

I find hallucinations more difficult for me than for the hallucinator. Sometimes I just feel as though I can’t be sure.
Helpful Answer (0)
Report
Kmi7688 May 2022
His primary doctor is the in-house doctor at the ALF. He feels that all the staff and doctors are against him and don't like him.
(0)
Report
Hallucinations are not uncommon. Or confabulation where they mix up thoughts, ideas and reality into a strange story.
Helpful Answer (0)
Report

This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter