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My next door neighbor's mother had moved in with her and required a lot of care. She was incontinent, refused to take baths, cursed her daughter and was generally difficult. My neighbor and I compared notes often and her situation made mine look easy. But then her mother fell, began to decline even more and then was gone. Although my friend had complained, she now says she misses her every day. I had thought I would feel relief on the day my mother doesn't wake up but I am taking my friend's words to heart and know that no matter how difficult I perceive it to be, it is so much better than not having her with me. Know that you have to trust your heart, make the best decision you can, and cut yourself slack on the days it isn't so great because in the end, you will be able to look back and be glad you were there for your dad
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This is a safe place to vent. This forum has helped me keep my sanity -- and I share this website with everyone and anyone who is - or about to become - a caregiver. As a matter of fact, I think this is so helpful because it often lets you know the good, bad and ugly and allows you to get a baseline view of reality about your own situation. I thought I was THE ONLY ONE who felt the way I did, and then I found out it's just normal caregiver angst, or more seriously, burnout.
Seriously, move forward with best intentions and know this is a safe place on the days when things don't go to plan.
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Outdoormelle,
I too am often shocked by the number of people that say "don't do it" when asking about bringing parents into their home. If I had it to do over, I would still do all the things I have done.

My mom was a decent parent, she worked a lot and was married 5 times so life was full of ups and downs but she did her best. I love my mom and she needs to be cared for and I will do my best for her.

I am blessed with a lot of support so maybe it is easier for me. I am the person that cares for her 24/7, but my husband stands by me and gives me occasional breaks. My children and grandchildren come and hang with me. One daughter is a speech pathologist, one is a nutritionist, a son in law is a doctor, all give support in their areas of expertise. Maybe I would feel different if I was all alone.

I am blessed by the privilege of caring for my mom. The good and the bad all are worth it. Yes, I am somewhat limited when it comes to going places and doing things, and the care is not always easy but there is a time and place for all things. While my mom is on this Earth, I will care for her.
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Dear outdoormelle,

It is good of you to bring your dad home. Everyone is so different. I think for some people there is some regret in letting an elderly parent move in. I think we all start out with the best intentions and then our parent's needs escalate and this can be increasingly stressful.

For myself, as the oldest of my sibling group, I have always been the default caregiver in my family. My mother divorced my father and he had no one in our town. I don't regret living with my father or caring for him. But I do regret not getting more help. The lack of support and understanding from siblings lead to burnout, anger, resentment, depression...but I hope my dad knew I tried.
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outdoormelle, did someone tell you that bringing your father in is a terrible decision? I didn't see your post. Is there any reason that they thought it was a bad idea? Like he is abusive or can't attend to the activities of daily living? I don't know about others, but I usually restrain from saying anything about other people's affairs unless they say there is a problem. In other words, if you said you didn't want to do it, I would support you on that. If you said you did, I would support you on that, too.
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thanks for your honest and open replies. cwillie... I hear what you are saying. I wasn't  addressing the posts of caregivers who are facing burn out or are having a hard time. Absolutely what the folks are here for. Support, advice and friendship. My surprise was reading how many felt that it was a mistake to bring your parent home to live with you.
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Hi there,
I see you are care taking your dad who has mobility problems. I'm also guessing that you had a fairly normal, loving childhood and have a pretty good relationship with him now. Lucky you. I'd give anything to be in your situation.

My 94 year old mother is in stage 6-7 Alzheimer's. Our family history is that she "got caught" and they "had" to get married. Both were alcoholics, had bitter physical fights and divorced 5 years later. I'm an only child. (I'm happy no other child had to suffer in that family.) A kid was the last thing she wanted.

Mother was narcissistic and thought of herself first. Only the best and finest for her. She conducted herself like a queen. She never hugged and kissed me (thank God my dad did) and pushed me away when I wanted to hug her.

Fast forward 60 years. She can no longer afford the memory care home. She was falling a lot there anyway and broke her wrist. I have been taking care of her for 4 years but now she lives with us. On top of being completely confused, she is mean, screams frequently, is demanding, needs total assistance with everything (toileting, bathing, eating, dressing, medicines, walking, etc.). At lunch today she threw her sandwich at me, screaming and shaking her fists in my face.
Now, with our less than wonderful family history and her Alzheimer's and normal demanding attitude, do you think I'm singing about how wonderful it is to take care of her? It's easy to criticize our attitudes but, until you've walked a mile in our shoes, you can't really say how "bad" we are. All of us are doing the best we can.
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My life's philosophy has always been "no regrets".

While I didn't move my mother into my home and provide hands-on care as so many of the brave souls have done - as you see by their posts - I did dedicate six years of taking care of every detail of her life.

My own situation of having a sevearly disabled adult child living at home would have made it impossible to give either the care and attention they each needed - had my mother lived with us. But honestly- had it just been hubby and me I doubt if I would have moved my mother in. As it was, my mother was extremely difficult to deal with. Moms life practically became my whole life - I neglected myself, my husband and to an extent my son.

I was completely out of my depth - knowing little about dementia and being totally unable to draw any boundaries. I say with complete honesty, I was teetering on the edge of emotional and physical collapse when I found this site - and the good people here saved me.

So silver lining? Yes. I know without a doubt I did the very best I could for my mother. That every decision I made on her behalf was in her best interest. I treated my mother with love and respect until the very end.

Was I perfect? No. But - I did the very best that I could. And - for the rest of my life I can go forward knowing that - with no regrets.
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So, I think that "kids" who were neglected and/or abused, who caregive because they think, magically, that their abusive parent will begin to love them are almost always disappointed in their caregiving experience.

Kids whose parents have dementia/mental ilness that prevents them from appreciating the sacrifice that their child is making are similarly disappointed.

Kids who have a dysfunctional family relationship, in which one sibling has always been considered slow, less able and gets stuck with caregiving are often angry and resentful.

But there are often situations in which bringing an elderly, disabled parent into a private home is simply not the best idea. In a good care facility, your parent has medical supervision, socialization and on site access to services. For those of us who live in zones where there are hurricanes, tornados and awful snow, having a parent safe and sound in a facility with a generator can be a Godsend.
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Cwillie, You've said all!
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The people who manage to carry it off without any worries are not as likely to post of course. I think lack of support is the biggest factor that leads to burnout, and just how much support and what kind is needed is something that varies according to our personalities and the type of care we have to give. Most of us here began caregiving with the best of intentions and an "I can do it" attitude, often the despair you read here is the result of caregiving that has gone on too long or has pushed us beyond out capabilities. If you read back far enough you will find evidence of my own spiral into total burnout and you may think I am a horrible person based on some of the things I wrote. The thing is, this is a safe place to come and scream, curse and cry, and even when our posts are full of venom you are really just seeing a tiny glimpse of our lives.
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I moved across the country as soon as it was clear my Mom needed me.

We have always been very close. We always talked a couple times a week..very often more. I know her feelings were very strong against going into a nursing home....she saw how awful it was for her Mom.

So...once I arrived...I discovered my Dad was in even worse shape...and advanced dementia too.

I never gave it a second thought. I was surprise to learn my brother would be no help at all. All he wanted was money.

So, I admit it was hard dealing with my Dad. But to my great surprise, when I started make plans to put him in a nursing home because it had gotten so bad...he suddenly died.

My mother survived him by only 10 months. She was always a dear, sweet, easy going. A pleasure to be around. That did not change. But..the TIA stole everything from her. She stopped being the Mom I knew. Sharp wit, wonderful sense of adventure, all gone. But..I never for a minute regretted living those final years with her.
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How people feel depends much on the personality of the care receiver, their relationship when the caregiver was a child, and the length of time someone needs care. If a parent is an angel and a great parent, then it doesn't wear as heavily on caregivers to be with them for a few years. However, if the parent was a neglectful or abusive parent who still treats a caregiver poorly, then it gets old fast. We tend to lay blame on the caregiver because the care receiver is old. Many times it is not the caregiver who is at fault. They can give years of their lives, only to be mistreated by the parent and criticized if they try to protect themselves. I've not seen this in families where parents love and respect their children.
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