My 71-year-old husband has had a traumatic brain injury (TBI) diagnosis for about seven years, and the neurologist just told us we now have the Lewy Body dementia (LBD) diagnosis. From what I understand, the LBD comes from the TBI. We weren’t able to spend extra time at the last visit to ask any questions, but certainly will when we see the neurologist again. Thanks!
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Wishing you the very best of luck dealing with a difficult diagnosis for your dear husband.
He should be fully tested and formally diagnosed with Lewy Body Dementia. This is VERY important as there are some medications someone with LBD should not take. (some commonly given to people with dementia)
If the Neurologist did the tests to confirm LBD great.
Please note that often LBD is diagnosed in people with Parkinson's
Also LBD can also lead some to become violent. (more so than other forms of dementia)
The important thing then is you have to remember one important thing.
SAFETY.
If it no longer is safe for YOU to care for him at home you will have to place him in Memory Care.
If it is no longer safe for HIM for you to care for him you will have to place him in Memory Care.
The safety issue goes both ways, you do not want to injure him while caring for him and you do not want him to hurt you.
Check the Parkinson's Website for more information about LBD. The Alzheimer's Association website might be of help as well.
Lewey Bodies and my husband checked off every box except “falling out of bed”. There are so many symptoms that overlap with the Traumatic Brain Injury. There is so much to take in for both of these diagnosis. I appreciate your response.
With this new diagnosis you need a doctor who will TALK to you. Speaking of things that are more rare than hen's teeth.