Is there anyone out there besides me who wishes their mother would die? This miserable woman has lived with me for 5 years and I don't know how much more of her I can take. She is constantly trying to start an arguement with me. I don't get it. She has 3 other children who want nothing to do with her, I take her in and I get all the crap. Someone, please, just tell me you understand...all I want is a little sympathy and understanding for someone!
I don't agree 100% with this poem, (especially the line "when they no longer serve the land", for me it is more "when they no longer alive even though their heart still beating") but I really think it contains some truth.
I hate the men who would prolong their lives
By foods and drinks and charms of magic art
Perverting nature's course to keep off death
They ought, when they no longer serve the land
To quit this life, and clear the way for youth.
- Euripides, 500 BC
But listen, you have got to go on that vacation. No, Mom will not understand. But you just have to go, somehow. And hubby has got to be back in your life again, somehow. Occasionally, an elder with dementia will recognize an unspoken truth, that the person caring for them cannot totally be taken for granted...it takes an action though, not just words they will not remember, like reducing visiting if they are in an ALF, or shunning/bring non-verbal while caring for them if you cannot safely step away when being abused.
Human parents are not supposed to eat their young, though, and it does not necessarily honor them if you let them. Some of our parents might be selfish enough that they would not care that we give up our own life and future to cater to them; others would be appalled if they truly realized what was happening. It sounds like yours is one who would be appalled at herself if she really understood the depth and degree of the hurt she was inflicting. My mom once said to me "Well I'm sorry but I am just worried about everything" after she brought me to tears for bringing her shoes in to her to the therapy area one day. For some reason she was embarrassed about having someone bring her shoes and called me a stupid idiot in front of everyone. I'd had a bad day and just broke down and cried, and staff saw what happened and helped me out.
What I am trying to say is..its HER, and her dementia. Her reason is going or gone and therefore she will not be able to be reasonable. It's Not You.
He is under hospice palliative care close to a year now. Twice in the past 3 months they decided he needed to be hospitalized (once for MRSA infection, the other for blood being too thin) they said he really needed to be treated in hospital because HE COULD DIE if not. Isn't this what we are waiting for?! Let the man die. He is miserable!
We figure close to a million dollars of medicare money has been spent on the care of my father in law. $1,000,000!
With reasoning such as this you can see how medicare expenditures could bankrupt our country.
God has been calling this man home for years, but we keep pulling him back.
Although I'm not caring for an aging parent I understand completely where you are coming from. I just wish I could be as strong as you have...I have been told the real person I need to stand up to is not my father in law, but my wife & her mother.
I will be standing in your corner cheering for you!!!!
Now if it turns out that it is time for hospice due to a worse medical condition, the that is a sad time but not a guilty time for you....and Ellie, I have to say Sherrie is right...caregiving seems to be the most loving thing you can do and you can anticipate it as a giving back time of joy in your relationship, but sometimes it does not work that way. If you stay and look around on here more, you will read the stories of people trying very hard to love and care for people who no longer (or maybe never did) return anything but criticism and complaint.
Yes it hurts.
My mom won't accept any help, assistance but calls me for every issue as if I should resolve all the big stuff because I'm her daughter. I get all the grief and anger and others or my brother who has nothing to do with her or even a phone call is praised or excused.
We both wish it were over. She's terribly unhappy, lonely and unwilling to change her circumstances. I often envy when someone tells me their parent has passed. I honestly pray for that release for my mom and our family. I know she is ready to go as well.
After my dad died in 1998, when she was fit, well and had a car, I encouraged her to get out, volunteer, go do something but nope, her life revolved around shopping, the library and walking her dog in the park. She had no friends, having alienated most all of them and fought with the neighbours wherever she lived. One time her house was "egged" and it wasn't even Halloween.
Speaking of dogs, many years ago she got a puppy weiner dog and insisted it slept in the bed. My father said no, no dogs in the bed, so she moved herself and the pup into the spare bedroom. For the last 12 years of his life my poor father slept alone and went everywhere by himself. After 50 years of busting his chops to give her everything, he died a lonely, broken man. He was a wonderful man and every time it crosses my mind I feel pure hatred for her..
I liked what you said about gma being able to die and be with her family in a better place. I feel the same way and then sometimes I realize it is the only way I will ever get my own personal life back as well. None of us would ever wish someone dead, although we may say it in the heat of any argument, but when our parents or grandparents keep saying they want to die, I just hope God is listening and grants them their wish. For those in pain, I honestly feel that they should have a right to end it when they are ready. My father was ready and he thought the doctor could just give him a shot, it took about 8 days with him on Morphine.
Take care and God Bless you!
I'm not sure this will help you because sometimes nothing anyone can say really changes how one feels; but you were right, the social workers are right, and the fact that your mother - even if reluctantly - did agree to the move to residential care shows that at bottom even she knew you were right: that in the circumstances at the time, you could not have brought her home and ***even if you had*** she would still have grown older and more frail.
What you feel is sadness. You have no cause to feel guilt.
So from here, just do what is still possible. Her hair and nails should still be nice - discuss grooming with the staff, explain to them how important her appearance was to her, ask them (very nicely of course) to take a little extra trouble to help her. When she repeats herself, remember that useful phrase 'deflect with humour' (and, I'd add, with affection). Incontinence does break the spirit of all concerned, but the more relaxed you can be about it the less shaming it is for her. No, it's not nice, but it isn't something she can help - show her you understand.
Guilt won't help her. Dignity, though, is about how others treat her - that's worth fighting for! Hugs to you.